When you thought about having children what did you do?

P

princessjdc

New member
Right after my husband and I got marrried he got tested and he tested negative(not a carrier). We are in the process of trying so if our kid was to be a carrier then I would tell him/her about it and pretty much tell her/him about the disease its self. I dont know what the Ambry test consists of. All I know is they took blood work to see if my hubby was a carrier or not.
 
P

princessjdc

New member
Right after my husband and I got marrried he got tested and he tested negative(not a carrier). We are in the process of trying so if our kid was to be a carrier then I would tell him/her about it and pretty much tell her/him about the disease its self. I dont know what the Ambry test consists of. All I know is they took blood work to see if my hubby was a carrier or not.
 
J

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>krisjohn53223</b></i>

It really sounds like you hold yourself back on a lot in life because of CF. I chose to live my life to the fullest and not sit couped up like a mole just because I have CF..</end quote></div>

Well sh!t. If going to school at a Top 20 MBA in a month is holding back, I really need to re-access myself.

If working full time at a pharmaceutical company and being the #1 sales rep in the country out of 517 people is holding back, I should get my head re-adjusted.

If traveling to Austria, France, and Mexico in the past 12 months is holding myself back, I really need to get a life.

The list goes on and on and on and on....

<b> I would suggest knowing what you're talking about before you speak, Kris </b></end quote></div>

If I can interject here.....I am under the impression (I could be wrong) that she was referring to more of the emotional aspect that she thinks you might be missing. There is no question that your accomplishments are impressive, but to some people, not having a spouse &/or children, denies you an unconditional love. Again she doesnt know you and you actually offer an "alternate" type of unconditional love for the child that wont exist.....one that keeps the child from the worst of CF. Does that make sense?
 
J

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>krisjohn53223</b></i>

It really sounds like you hold yourself back on a lot in life because of CF. I chose to live my life to the fullest and not sit couped up like a mole just because I have CF..</end quote></div>

Well sh!t. If going to school at a Top 20 MBA in a month is holding back, I really need to re-access myself.

If working full time at a pharmaceutical company and being the #1 sales rep in the country out of 517 people is holding back, I should get my head re-adjusted.

If traveling to Austria, France, and Mexico in the past 12 months is holding myself back, I really need to get a life.

The list goes on and on and on and on....

<b> I would suggest knowing what you're talking about before you speak, Kris </b></end quote></div>

If I can interject here.....I am under the impression (I could be wrong) that she was referring to more of the emotional aspect that she thinks you might be missing. There is no question that your accomplishments are impressive, but to some people, not having a spouse &/or children, denies you an unconditional love. Again she doesnt know you and you actually offer an "alternate" type of unconditional love for the child that wont exist.....one that keeps the child from the worst of CF. Does that make sense?
 
J

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>krisjohn53223</b></i>

It really sounds like you hold yourself back on a lot in life because of CF. I chose to live my life to the fullest and not sit couped up like a mole just because I have CF..</end quote></div>

Well sh!t. If going to school at a Top 20 MBA in a month is holding back, I really need to re-access myself.

If working full time at a pharmaceutical company and being the #1 sales rep in the country out of 517 people is holding back, I should get my head re-adjusted.

If traveling to Austria, France, and Mexico in the past 12 months is holding myself back, I really need to get a life.

The list goes on and on and on and on....

<b> I would suggest knowing what you're talking about before you speak, Kris </b></end quote></div>

If I can interject here.....I am under the impression (I could be wrong) that she was referring to more of the emotional aspect that she thinks you might be missing. There is no question that your accomplishments are impressive, but to some people, not having a spouse &/or children, denies you an unconditional love. Again she doesnt know you and you actually offer an "alternate" type of unconditional love for the child that wont exist.....one that keeps the child from the worst of CF. Does that make sense?
 
J

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>krisjohn53223</b></i>

It really sounds like you hold yourself back on a lot in life because of CF. I chose to live my life to the fullest and not sit couped up like a mole just because I have CF..</end quote></div>

Well sh!t. If going to school at a Top 20 MBA in a month is holding back, I really need to re-access myself.

If working full time at a pharmaceutical company and being the #1 sales rep in the country out of 517 people is holding back, I should get my head re-adjusted.

If traveling to Austria, France, and Mexico in the past 12 months is holding myself back, I really need to get a life.

The list goes on and on and on and on....

<b> I would suggest knowing what you're talking about before you speak, Kris </b></end quote></div>

If I can interject here.....I am under the impression (I could be wrong) that she was referring to more of the emotional aspect that she thinks you might be missing. There is no question that your accomplishments are impressive, but to some people, not having a spouse &/or children, denies you an unconditional love. Again she doesnt know you and you actually offer an "alternate" type of unconditional love for the child that wont exist.....one that keeps the child from the worst of CF. Does that make sense?
 
J

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>krisjohn53223</b></i>

It really sounds like you hold yourself back on a lot in life because of CF. I chose to live my life to the fullest and not sit couped up like a mole just because I have CF..</end quote>

Well sh!t. If going to school at a Top 20 MBA in a month is holding back, I really need to re-access myself.

If working full time at a pharmaceutical company and being the #1 sales rep in the country out of 517 people is holding back, I should get my head re-adjusted.

If traveling to Austria, France, and Mexico in the past 12 months is holding myself back, I really need to get a life.

The list goes on and on and on and on....

<b> I would suggest knowing what you're talking about before you speak, Kris </b></end quote>

If I can interject here.....I am under the impression (I could be wrong) that she was referring to more of the emotional aspect that she thinks you might be missing. There is no question that your accomplishments are impressive, but to some people, not having a spouse &/or children, denies you an unconditional love. Again she doesnt know you and you actually offer an "alternate" type of unconditional love for the child that wont exist.....one that keeps the child from the worst of CF. Does that make sense?
 
J

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sakasuka</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>krisjohn53223</b></i>

It really sounds like you hold yourself back on a lot in life because of CF. I chose to live my life to the fullest and not sit couped up like a mole just because I have CF..</end quote>

Well sh!t. If going to school at a Top 20 MBA in a month is holding back, I really need to re-access myself.

If working full time at a pharmaceutical company and being the #1 sales rep in the country out of 517 people is holding back, I should get my head re-adjusted.

If traveling to Austria, France, and Mexico in the past 12 months is holding myself back, I really need to get a life.

The list goes on and on and on and on....

<b> I would suggest knowing what you're talking about before you speak, Kris </b></end quote>

If I can interject here.....I am under the impression (I could be wrong) that she was referring to more of the emotional aspect that she thinks you might be missing. There is no question that your accomplishments are impressive, but to some people, not having a spouse &/or children, denies you an unconditional love. Again she doesnt know you and you actually offer an "alternate" type of unconditional love for the child that wont exist.....one that keeps the child from the worst of CF. Does that make sense?
 
K

krisjohn53223

New member
Thank you Jazzysmom. That is what I meant. We are all dealing with this the best we know how. What's right for one person may not be right for another. No one here has the right to judge how others decide to live their lives, and when someone writes they decided to be "selfless" I take that as implying those who chose to have kids are selfish. Maybe I took it wrong, but that's how I read it. This is not the first time I have personally been critized or shall I say I felt like I was being critized for the way I live my life with CF from this specific person.
 
K

krisjohn53223

New member
Thank you Jazzysmom. That is what I meant. We are all dealing with this the best we know how. What's right for one person may not be right for another. No one here has the right to judge how others decide to live their lives, and when someone writes they decided to be "selfless" I take that as implying those who chose to have kids are selfish. Maybe I took it wrong, but that's how I read it. This is not the first time I have personally been critized or shall I say I felt like I was being critized for the way I live my life with CF from this specific person.
 
K

krisjohn53223

New member
Thank you Jazzysmom. That is what I meant. We are all dealing with this the best we know how. What's right for one person may not be right for another. No one here has the right to judge how others decide to live their lives, and when someone writes they decided to be "selfless" I take that as implying those who chose to have kids are selfish. Maybe I took it wrong, but that's how I read it. This is not the first time I have personally been critized or shall I say I felt like I was being critized for the way I live my life with CF from this specific person.
 
K

krisjohn53223

New member
Thank you Jazzysmom. That is what I meant. We are all dealing with this the best we know how. What's right for one person may not be right for another. No one here has the right to judge how others decide to live their lives, and when someone writes they decided to be "selfless" I take that as implying those who chose to have kids are selfish. Maybe I took it wrong, but that's how I read it. This is not the first time I have personally been critized or shall I say I felt like I was being critized for the way I live my life with CF from this specific person.
 
K

krisjohn53223

New member
Thank you Jazzysmom. That is what I meant. We are all dealing with this the best we know how. What's right for one person may not be right for another. No one here has the right to judge how others decide to live their lives, and when someone writes they decided to be "selfless" I take that as implying those who chose to have kids are selfish. Maybe I took it wrong, but that's how I read it. This is not the first time I have personally been critized or shall I say I felt like I was being critized for the way I live my life with CF from this specific person.
 
K

krisjohn53223

New member
Thank you Jazzysmom. That is what I meant. We are all dealing with this the best we know how. What's right for one person may not be right for another. No one here has the right to judge how others decide to live their lives, and when someone writes they decided to be "selfless" I take that as implying those who chose to have kids are selfish. Maybe I took it wrong, but that's how I read it. This is not the first time I have personally been critized or shall I say I felt like I was being critized for the way I live my life with CF from this specific person.
 
J

julie

New member
Partner here, hope it's ok to respond.

Did you tell your partner they would have to take the Ambry tests? I WAS ACTUALLY THE ONE WHO PUSHED FOR THE AMBRY TEST AFTER REALIZING I WAS ONLY TESTED FOR 97 MUTATIONS AND OVER 1200 EXISTED.

What was their reaction? N/Z

If your partner was totally mutation free, how did you feel about generating a CF carrier? I AM TOTALLY MUTATION FREE OF known MUTATIONS. IT IS SOMEWHAT CONTROVERSIAL FOR ME TO BRING A CARRIER OF CF INTO THIS WORLD KNOWINGLY, BUT IF WE ADOPTED, WHAT GUARANTEES ARE THERE TO ENSURE THAT THERE AREN'T ANY MEDICAL PROBLEMS WITH THAT CHILD? I SEE POTENTIAL RISKS EITHER WAY.

Will you alert them about their condition before they plan having children? MOST DEFINATELY YES. I THINK THEY NEED TO KNOW SO THAT THEY CAN HAVE THEIR SPOUSE TESTED AND PLAN ACCORDINGLY.

And if your partner turned out to be a carrier, how did you go on with it? N/A, BUT IF I WERE A CARRIER, WE WOULD HAVE ADDED PGD TO OUR IVF CYCLE.

Is there an in vitro way of selecting their good gene? YES, PGD CAN SEPARATE EMBRYOS THAT HAVE ONE MUTATION AND EMBRYO'S THAT HAVE TWO MUTATIONS. THEN THOSE WITH JUST ONE MUTATION CAN BE SELECTED AND USED.

How can one be sure one is not generating a CF patient? IT IS 99% ACCURATE, THERE IS ALWAYS THE CHANCE FOR HUMAN ERROR.

Is there anyone who plain chose to not have biologic kids? Did anyone adopt? NOPE, WE DID THINK ABOUT ADOPTION BUT BELIEVE IT OR NOT, IVF WAS CHEAPER THAN ANY ADOPTION WE RESEARCHED.

These Qs are obviously directed to CFers. I'd appreciate your insights. My heart goes out to ya all.
 
J

julie

New member
Partner here, hope it's ok to respond.

Did you tell your partner they would have to take the Ambry tests? I WAS ACTUALLY THE ONE WHO PUSHED FOR THE AMBRY TEST AFTER REALIZING I WAS ONLY TESTED FOR 97 MUTATIONS AND OVER 1200 EXISTED.

What was their reaction? N/Z

If your partner was totally mutation free, how did you feel about generating a CF carrier? I AM TOTALLY MUTATION FREE OF known MUTATIONS. IT IS SOMEWHAT CONTROVERSIAL FOR ME TO BRING A CARRIER OF CF INTO THIS WORLD KNOWINGLY, BUT IF WE ADOPTED, WHAT GUARANTEES ARE THERE TO ENSURE THAT THERE AREN'T ANY MEDICAL PROBLEMS WITH THAT CHILD? I SEE POTENTIAL RISKS EITHER WAY.

Will you alert them about their condition before they plan having children? MOST DEFINATELY YES. I THINK THEY NEED TO KNOW SO THAT THEY CAN HAVE THEIR SPOUSE TESTED AND PLAN ACCORDINGLY.

And if your partner turned out to be a carrier, how did you go on with it? N/A, BUT IF I WERE A CARRIER, WE WOULD HAVE ADDED PGD TO OUR IVF CYCLE.

Is there an in vitro way of selecting their good gene? YES, PGD CAN SEPARATE EMBRYOS THAT HAVE ONE MUTATION AND EMBRYO'S THAT HAVE TWO MUTATIONS. THEN THOSE WITH JUST ONE MUTATION CAN BE SELECTED AND USED.

How can one be sure one is not generating a CF patient? IT IS 99% ACCURATE, THERE IS ALWAYS THE CHANCE FOR HUMAN ERROR.

Is there anyone who plain chose to not have biologic kids? Did anyone adopt? NOPE, WE DID THINK ABOUT ADOPTION BUT BELIEVE IT OR NOT, IVF WAS CHEAPER THAN ANY ADOPTION WE RESEARCHED.

These Qs are obviously directed to CFers. I'd appreciate your insights. My heart goes out to ya all.
 
J

julie

New member
Partner here, hope it's ok to respond.

Did you tell your partner they would have to take the Ambry tests? I WAS ACTUALLY THE ONE WHO PUSHED FOR THE AMBRY TEST AFTER REALIZING I WAS ONLY TESTED FOR 97 MUTATIONS AND OVER 1200 EXISTED.

What was their reaction? N/Z

If your partner was totally mutation free, how did you feel about generating a CF carrier? I AM TOTALLY MUTATION FREE OF known MUTATIONS. IT IS SOMEWHAT CONTROVERSIAL FOR ME TO BRING A CARRIER OF CF INTO THIS WORLD KNOWINGLY, BUT IF WE ADOPTED, WHAT GUARANTEES ARE THERE TO ENSURE THAT THERE AREN'T ANY MEDICAL PROBLEMS WITH THAT CHILD? I SEE POTENTIAL RISKS EITHER WAY.

Will you alert them about their condition before they plan having children? MOST DEFINATELY YES. I THINK THEY NEED TO KNOW SO THAT THEY CAN HAVE THEIR SPOUSE TESTED AND PLAN ACCORDINGLY.

And if your partner turned out to be a carrier, how did you go on with it? N/A, BUT IF I WERE A CARRIER, WE WOULD HAVE ADDED PGD TO OUR IVF CYCLE.

Is there an in vitro way of selecting their good gene? YES, PGD CAN SEPARATE EMBRYOS THAT HAVE ONE MUTATION AND EMBRYO'S THAT HAVE TWO MUTATIONS. THEN THOSE WITH JUST ONE MUTATION CAN BE SELECTED AND USED.

How can one be sure one is not generating a CF patient? IT IS 99% ACCURATE, THERE IS ALWAYS THE CHANCE FOR HUMAN ERROR.

Is there anyone who plain chose to not have biologic kids? Did anyone adopt? NOPE, WE DID THINK ABOUT ADOPTION BUT BELIEVE IT OR NOT, IVF WAS CHEAPER THAN ANY ADOPTION WE RESEARCHED.

These Qs are obviously directed to CFers. I'd appreciate your insights. My heart goes out to ya all.
 
J

julie

New member
Partner here, hope it's ok to respond.

Did you tell your partner they would have to take the Ambry tests? I WAS ACTUALLY THE ONE WHO PUSHED FOR THE AMBRY TEST AFTER REALIZING I WAS ONLY TESTED FOR 97 MUTATIONS AND OVER 1200 EXISTED.

What was their reaction? N/Z

If your partner was totally mutation free, how did you feel about generating a CF carrier? I AM TOTALLY MUTATION FREE OF known MUTATIONS. IT IS SOMEWHAT CONTROVERSIAL FOR ME TO BRING A CARRIER OF CF INTO THIS WORLD KNOWINGLY, BUT IF WE ADOPTED, WHAT GUARANTEES ARE THERE TO ENSURE THAT THERE AREN'T ANY MEDICAL PROBLEMS WITH THAT CHILD? I SEE POTENTIAL RISKS EITHER WAY.

Will you alert them about their condition before they plan having children? MOST DEFINATELY YES. I THINK THEY NEED TO KNOW SO THAT THEY CAN HAVE THEIR SPOUSE TESTED AND PLAN ACCORDINGLY.

And if your partner turned out to be a carrier, how did you go on with it? N/A, BUT IF I WERE A CARRIER, WE WOULD HAVE ADDED PGD TO OUR IVF CYCLE.

Is there an in vitro way of selecting their good gene? YES, PGD CAN SEPARATE EMBRYOS THAT HAVE ONE MUTATION AND EMBRYO'S THAT HAVE TWO MUTATIONS. THEN THOSE WITH JUST ONE MUTATION CAN BE SELECTED AND USED.

How can one be sure one is not generating a CF patient? IT IS 99% ACCURATE, THERE IS ALWAYS THE CHANCE FOR HUMAN ERROR.

Is there anyone who plain chose to not have biologic kids? Did anyone adopt? NOPE, WE DID THINK ABOUT ADOPTION BUT BELIEVE IT OR NOT, IVF WAS CHEAPER THAN ANY ADOPTION WE RESEARCHED.

These Qs are obviously directed to CFers. I'd appreciate your insights. My heart goes out to ya all.
 
J

julie

New member
Partner here, hope it's ok to respond.

Did you tell your partner they would have to take the Ambry tests? I WAS ACTUALLY THE ONE WHO PUSHED FOR THE AMBRY TEST AFTER REALIZING I WAS ONLY TESTED FOR 97 MUTATIONS AND OVER 1200 EXISTED.

What was their reaction? N/Z

If your partner was totally mutation free, how did you feel about generating a CF carrier? I AM TOTALLY MUTATION FREE OF known MUTATIONS. IT IS SOMEWHAT CONTROVERSIAL FOR ME TO BRING A CARRIER OF CF INTO THIS WORLD KNOWINGLY, BUT IF WE ADOPTED, WHAT GUARANTEES ARE THERE TO ENSURE THAT THERE AREN'T ANY MEDICAL PROBLEMS WITH THAT CHILD? I SEE POTENTIAL RISKS EITHER WAY.

Will you alert them about their condition before they plan having children? MOST DEFINATELY YES. I THINK THEY NEED TO KNOW SO THAT THEY CAN HAVE THEIR SPOUSE TESTED AND PLAN ACCORDINGLY.

And if your partner turned out to be a carrier, how did you go on with it? N/A, BUT IF I WERE A CARRIER, WE WOULD HAVE ADDED PGD TO OUR IVF CYCLE.

Is there an in vitro way of selecting their good gene? YES, PGD CAN SEPARATE EMBRYOS THAT HAVE ONE MUTATION AND EMBRYO'S THAT HAVE TWO MUTATIONS. THEN THOSE WITH JUST ONE MUTATION CAN BE SELECTED AND USED.

How can one be sure one is not generating a CF patient? IT IS 99% ACCURATE, THERE IS ALWAYS THE CHANCE FOR HUMAN ERROR.

Is there anyone who plain chose to not have biologic kids? Did anyone adopt? NOPE, WE DID THINK ABOUT ADOPTION BUT BELIEVE IT OR NOT, IVF WAS CHEAPER THAN ANY ADOPTION WE RESEARCHED.

These Qs are obviously directed to CFers. I'd appreciate your insights. My heart goes out to ya all.
 
J

julie

New member
Partner here, hope it's ok to respond.

Did you tell your partner they would have to take the Ambry tests? I WAS ACTUALLY THE ONE WHO PUSHED FOR THE AMBRY TEST AFTER REALIZING I WAS ONLY TESTED FOR 97 MUTATIONS AND OVER 1200 EXISTED.

What was their reaction? N/Z

If your partner was totally mutation free, how did you feel about generating a CF carrier? I AM TOTALLY MUTATION FREE OF known MUTATIONS. IT IS SOMEWHAT CONTROVERSIAL FOR ME TO BRING A CARRIER OF CF INTO THIS WORLD KNOWINGLY, BUT IF WE ADOPTED, WHAT GUARANTEES ARE THERE TO ENSURE THAT THERE AREN'T ANY MEDICAL PROBLEMS WITH THAT CHILD? I SEE POTENTIAL RISKS EITHER WAY.

Will you alert them about their condition before they plan having children? MOST DEFINATELY YES. I THINK THEY NEED TO KNOW SO THAT THEY CAN HAVE THEIR SPOUSE TESTED AND PLAN ACCORDINGLY.

And if your partner turned out to be a carrier, how did you go on with it? N/A, BUT IF I WERE A CARRIER, WE WOULD HAVE ADDED PGD TO OUR IVF CYCLE.

Is there an in vitro way of selecting their good gene? YES, PGD CAN SEPARATE EMBRYOS THAT HAVE ONE MUTATION AND EMBRYO'S THAT HAVE TWO MUTATIONS. THEN THOSE WITH JUST ONE MUTATION CAN BE SELECTED AND USED.

How can one be sure one is not generating a CF patient? IT IS 99% ACCURATE, THERE IS ALWAYS THE CHANCE FOR HUMAN ERROR.

Is there anyone who plain chose to not have biologic kids? Did anyone adopt? NOPE, WE DID THINK ABOUT ADOPTION BUT BELIEVE IT OR NOT, IVF WAS CHEAPER THAN ANY ADOPTION WE RESEARCHED.

These Qs are obviously directed to CFers. I'd appreciate your insights. My heart goes out to ya all.
 
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