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Where are we all from in the World?
- Thread starter UKBASEDJON
- Start date
Jon I was wondering if you could tell me a little more about your self. It excites me when I see other people with C.F who are older because we have always been told we won't live evry long so if you could or don't mind will you tell me more about your self and how you have delt with it or anyone else who would like to share there story. Please e-mail me at mauishevy@yahoo.com
Shevy/ F/ 19 Utah
Shevy/ F/ 19 Utah
UKBASEDJON
New member
Hi Shevy
In answer to your question here are my vital statistic so to speak.
I am 41 years old. I was diagnosed in 1963 at the age of 3 months. Very luck back then as not many GP's could spot the symptoms. I was lucky that our GP had just attend a seminar on the new disease of CF!
The only main symptoms I had in early childhood were stomach related. I attended Great Ormond Street Hospital in London in the UK.
I has a normal childhood mainly unaffected by the respiratory side of CF. I started work at the age of 15. I have stayed in the same profession since then until now. I am an Architectural Modelmaker (see www.model-technology.co.uk for more info). I now own and run a model making company.
My lungs started to miss behave in my early 20's. First IV's in 1987 aged 24.
Regular IV's since then.
Current status: Married 18 years. No children. 2 dogs
FVC1 = 1.4 FEC = 2.8L height 6'1" weight 14¾ stone. CF Mutation both Delta 508
These are the facts however as always they only tell part of the story. Generally I believe I have been quite lucky. Last year I had a serious bout of pneumonia but apart from that just the usual round of IV's and Hospital stays. I try to keep a positive outlook on things. Enjoy life when I am well and plod on through we I am not. I believe my sense of humour has saved me on many occasions. I try to believe that although I can't do all the things in life I might want to I try to make the most of the things I can.
Well that's enough about me, What is your story? Or as you enquired, anybody else's.
Regards
Jon.
In answer to your question here are my vital statistic so to speak.
I am 41 years old. I was diagnosed in 1963 at the age of 3 months. Very luck back then as not many GP's could spot the symptoms. I was lucky that our GP had just attend a seminar on the new disease of CF!
The only main symptoms I had in early childhood were stomach related. I attended Great Ormond Street Hospital in London in the UK.
I has a normal childhood mainly unaffected by the respiratory side of CF. I started work at the age of 15. I have stayed in the same profession since then until now. I am an Architectural Modelmaker (see www.model-technology.co.uk for more info). I now own and run a model making company.
My lungs started to miss behave in my early 20's. First IV's in 1987 aged 24.
Regular IV's since then.
Current status: Married 18 years. No children. 2 dogs
FVC1 = 1.4 FEC = 2.8L height 6'1" weight 14¾ stone. CF Mutation both Delta 508
These are the facts however as always they only tell part of the story. Generally I believe I have been quite lucky. Last year I had a serious bout of pneumonia but apart from that just the usual round of IV's and Hospital stays. I try to keep a positive outlook on things. Enjoy life when I am well and plod on through we I am not. I believe my sense of humour has saved me on many occasions. I try to believe that although I can't do all the things in life I might want to I try to make the most of the things I can.
Well that's enough about me, What is your story? Or as you enquired, anybody else's.
Regards
Jon.
kelly what part of wa are you from??? I used to live in Vancouver wa and went to OHSU and i also lived in Spokane WA and went to Holy Family hosp. I have also gone to seattle to get treatment... I know live in Hawaii. My name is Cariann and i am 19 i will be 20 on the 12th of feb.
P
PeteRose
Guest
I am 43 w/cf - I live in the Chicago suburbs.