Who are you in a nut shell

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MargaritaChic

New member
who are you in a nut shell

My name is Marla
I'm a girl.
I'm 33.
I live in Minnesota.
My daughter, Emma, was dx at 7 days old through Newborn Screening.
I am Married since 2003 to a younger man (oh lala)!
My husband is a Stay at Home Dad.
I am the breadwinner in the family.
I have a Yorkshire Terrier named Teddy Bear.
I love my daughter more than I ever thought possible.
I like hockey and football.
I LOVE ebay.
I love my job.
I love the fall (season).
Since the birth of my daughter, I am rediscovering a love for the color Pink.
I love black clothing (it is slimming!)
I love Will Ferrel, Jim Gaffigan, and Conan Obrien!
 
M

marcijo

Guest
who are you in a nut shell

My name is Marci
I am female
33 years old (34 in May!)
Diagnosed at age 20 (had walking pneumonia and the dr's wanted to figure out why.
Height: 5' 4"
Weight: not telling! But I would love to lose 25 lbs (I am pancreatic sufficient so CF doesn't affect my digestive system).
Married to DH for almost 11 years!
Mom of 2 children ages 5 1/2 and 4
We live in Washington State
2 Mutations are DF508 and R117H
3 siblings all without CF (but they are carriers)
I work PT at home doing bookkeeping
I culture mainly staph and have been lucky enough to be able to treat it with Keflex only! I have cultured PA only twice, once each time while I was pregnant. Right now I am on Levaquin and Augmentin at the same time to fight of 2 different bugs I was growing-so quite a change this winter!
I use the Vest, pulmozyme, advair, and hypertonic saline
 
K

kayleesgrandma

New member
who are you in a nut shell

Welcome! It's good to see some more new ones here! Hope to get to know you<img src="i/expressions/heart.gif" border="0">
 
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juliepie

New member
who are you in a nut shell

My name is Julie
I was diagnosed at age 6 and my sister was diagnosed as a result (she was 4)
I'm now 20 and my sister is 18
My pfts are hovering around 33%
I am a full-time student at the University of Rhode Island
I'm a double major in Chemistry and Spanish- no minor (that's enough!)
I work on campus as a tech geek
I have multiple tattoos
I have multiple piercings
I have a bichon frise named Winston
I knit
I have a coffee problem
 
M

miller88

Guest
who are you

my name is Rene (not Renee, but pronounced the same)
i'm a girl
i'm 20
i live in pa
i was diagnosed at 3 years old
i weigh 115 lbs. and i'm 5'3''
my pft's are ok
i'm in college
i love ice cream (especially milkshakes)
i hope to be a special ed teacher after college


hope everyone is doing well
 
R

rockgirl

New member
who are you in a nut shell

ROCKGIRL - (geology major- studying rocks is my pastime)
female
italian/german mainly
long brown hair/ green eyes
22 (23 in April)
5 yr of college

diagnosed at birth (10 weeks premature- with intestinal problems)
my FEV is not great right now, but it will be by next clinic
I have a G- tube and Mediport (1996 and 1998)
I went to a cf camp for two years in 93 and 94.

Study Geology, Atmospheric Sciences, and Environmental issues.
I love Architecture and to design buildings

I LOVE DANCE, THEATRE, and singing. I'm currently in "UrineTown" at the University I go to.

I love all food except: alfalfa sprouts, cashews, and chocolate( like bars, not the flavor). I love to eat anything and everything else. I cook dinner for roommates a lot, I love to sing while cooking sometimes.

I'm a small person with a big personality! I love doing Comedy Improv and having a fun time!

I'm a christian

I coach Little Girl's Basketball for a church program (Upward Basketball)

I've known tons of people with CF, but nobody in my family.

I have a mild form of CP too- but dance and exercise help to strengthen my muscles enough to overcome it to the point where people can't tell.

I have asthma, but love to run(like a couple blocks)then breathe.etc, then run...lol

I'm very much a people person and I'm excited to meet people!

Rockgirl
 
C

carab128

New member
who are you in a nut shell

My name is Cara
I'm a chica.
I'm brand new to this site.
I'm 26 years old.
I'm 5'1'' 95-100 lbs (depends on the day...).
I just moved to Virginia Beach, VA from San Diego, but grew up in Texas.
My wonderful husband is a fighter pilot in the Navy, hence all of the moving!
My last FEV1 was about 70% (while living in SD), down almost 20% in one year.
I was really allergic to San Diego, so my FEV1 should be back up now that we moved!
I was diagnosed on my first birthday - failure to thrive.
I'm the only person in my family with CF and my husband is not a carrier.
I have been actively involved in the CF Foundation for many years now.
I love, love, love fund-raising.
I'm addicted to craigslist, perezhilton, and myspace.
I love to country dance.
I met my husband at a country dance hall. He asked me to dance and I said no. :D
I'm one of the most spontaneous and goofy people you'll ever meet.
I'm a summer girl and love the beach.
I am a Guitar Hero.
I love Jesus.
I've been blonde my whole life and decided to go super brunette last week. I'm very smart now. ;)
 
G

geckolady

New member
who are you in a nut shell

My name is Caryn
I'm a month shy of 20
I was diagnosed at 4years!
I weigh 102lbs, and i'm 5'1"
my PFT's are good
I had my G-tube removed last march after 8years
I have a thing for geckos
I work at a daycare
I go to school for elementary special ed
I live with my parents
I play the fife in a colonial fife and drum corps
I played the french horn in highschool
 
S

sunflower

New member
who are you

My name is Pauline
I'm a girl
I'm 37
I live in Ireland
I was an Airhostess
I was diagnosed at 33yrs old.
I ws ill at 6yrs old with Asthma. Very sick at 18 yrs old and again 27yrs old. At 27yrs old my life fell apart.
I Spent a lot of time looking for a good consultant to tell me what ws wrong with me.
My FV1 todate 88%
I usually weigh 124lbs and am 5'4"
I work for myself beauty therapist/interior designer
I get stressed out and hate it. Trying to stop it because I have Alopecia Aretea.
I'd emigrate tomorrow. we dont have a specialised unit here in Ireland its very bad. I cannot even move to another clinic in Ireland they are all the same we dont have segregation.
I'm engaged since 07
I am pancreatic sufficient and have had a sinus surgery.
I have three brothers and one sister. One brother is a carrier and the rest are afraid to get genetic testing
There was no prior history of cf in my family.
My mutations are P67L and DF508.
I like a good sense of humor.
I love to travel. I just been away for the entire month of Jan and went away in Feb for ten days.
I love NYC. Visit in Jan.
Love the shopping too.
Hot climates I prefer.
I love dunkin biscuits in my tea.
Im tea alochol.
My favorite T.V series is/ws SexinTheCity
I am bit of SJP. I love shoes and handbags. Im so broke because of these fashion items I have to have them.
I like sunny warm winter days the best.
I have the best Fiancé in the world he is the best.
Planning to have a baby this year.If all goes well.
I love life...I use to be afraid but now I embrace it.

I cooking when I am in the mood.
 
C

condeclan06

New member
who are you in a nut shell

My name is Lindsay.
I am 26 years old (will be 27 in May).
I live in Knoxville, TN but probably won't stay here.
I'm a stay-at-home mom until my little guy goes to Kindergarten.
I was diagnosed with CF at 2 mths. old because of a dehydration episode at Disney World.
I am married to a wonderful man named Alex (for 2 and 1/2 years now).
I have a 22 month old little boy named Kason, he is the light of my life.
I come from a HUGE family of 2 amazing parents and 10 children.
I have 3 other siblings with CF, but my older sister passed away before I was born.
My pfts are in the neighborhood of 60-70%.
I have usually a couple lung infections a year, one of which lands me in the hospital.
I also have arthritis in my knees, hips, and shoulders.
I have major sinus problems (chronic sinusitis), had one sinus surgery so far and it DIDN'T help.
My favorite candy is gummy bears.
I hate chocolate and most sweets (freak I know).
I really dislike shopping!!!!
My favorite color is Purple.
I do not personally go to church or believe in "God," but respect everyone's right to their beliefs.
I love to cook, take pictures, write, and hang out with my boys.
Some favorites: diet pepsi, turkey and provolone sandwiches, baked lays chips, bubble baths, oldies music, movies, daisies, hearing my son laugh, cuddling with my husband, and living life.
People that know me say that I'm outspoken, funny, stubborn, loyal, generous, and dependable.

I'm a human being, wife, mother, daughter, sister, friend, and CFer!
 
M

moosemom

New member
who are you in a nut shell

My name is Marci
I'm 40 and proud to be "old"
I live in CA, but I am a southerner at heart - Go Heels
I was diagnosed at 35 after many years of being sick (W1282X and D1152H)
I am married to my first love
We have 2 kids (Harrison age 11, Elizabeth almost 9)
My pancrease is fine
PFT's under 50 and droping (hence the hospitalization)
I have MAC - M.abscessus
I hate Cf meds, but it's ok because the meds hate me too
I hate the Vest
I have always been less then compliant with med regime but, since I am currently in the hospital, I plan to try harder
I love my family (they are why I am trying harder)
I miss my dog (he died in December - we'll get a new pup when I am feeling better)
I have fabulous family, friends and support but, most are out of state and none have CF
my mantra: "pull up your big girl panties and deal"
I can't spell and my typing is not much better
I don't cook
I love bad TV and watch too much
I am addicted to General Hospital more bad TV
I used to be a social worker, I have my LCSW, now I am a mom on disability
I love to travel, especially to cruise
I love candy and sweets, they are a food group, right?
Laughter is the best medicine - laugh or cry - today I choose to laugh because I have cried too much
 
K

Kori

New member
who are you in a nut shell

Hi My name is Kori and no it's not short for Kortney nor Korin
Married to Richard who is 45 and has CF
Mother to Jacob age 11 and Calob almost 9. They are mine from a previous relationship so CF is not an issue.
I am the "bread winner" so to say of our family.
Richard is a stay at home dad and does an amazing job. I'm the luckiest person I know.
I work at University of Alabama in Birmingham aka UAB it also helps that my hubby comes here for clinic visits and for those long 14 day inpatient stays. So lunch hour has taken over a whole new meaning.
I love my job.
I am so girly sometimes it's scary
I love the color pink and am seriously addicted to purses and shoes.
I love me some Eddie Vedder and am a serious Pearl Jam fan.
I volunteer with the CF Foundation and Great Strides.
As well as working at UAB I also sell Tupperware and love it as well. Disabilty does not pay many of the bills as I'm sure some of you may know. Have to do whatever it takes.
I have 2 other children both of the four-legged variety Maxx and Gracie both Boston Terriers.
I tend to be sarcastic alot. Even when I'm trying not to.
I am orginally from Jacksonville Forida met hubby there but moved to Alabama with him because this is home to him and where he feels he receives the best medical care.
I am 27 and my 28th birthday is tomorrow 3-14. Yes that means Richard is 18 years older than me it's a little shocking at first I know but you get over it and move on. Age is just a number and love doesn't know it.
My favorite quote is by Saint Augustine ~ Faith is to believe what you can not see; the reward of this Faith is to see what you believe. ~ Amen.
Anyways I also tend to ramble on too much which I have obviously done here as well... so if you want or need to know anything else feel free to ask.
One last thing I tend to be brutally honest so if you really don't want to know the Truth then I'm probably not the person you should be asking.
 
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JORDYSMOM

New member
who are you in a nut shell

Hi there all you new folks. It's great to have you. I love when we get new people. That means more points of view, and experiences to be shared. Jump in and give us your take on things.

Kori - I love me some Eddie Vedder too!! I have concert t-shirts that are so thread bare and worn, but I can't bring myself to throw them out. They are too indecent to wear in public, but I wear them around the house. LOL Also, my hubby says that I should come with a disclaimer that says if you don't really want to know, don't ask me. I am pretty blunt too, but hey, that leaves less room for misunderstanding.

I look forward to meeting you all.

Stacey
 
K

Kori

New member
who are you in a nut shell

Originally posted by: JORDYSMOM

Hi there all you new folks. It's great to have you. I love when we get new people. That means more points of view, and experiences to be shared. Jump in and give us your take on things.



Kori - I love me some Eddie Vedder too!! I have concert t-shirts that are so thread bare and worn, but I can't bring myself to throw them out. They are too indecent to wear in public, but I wear them around the house. LOL Also, my hubby says that I should come with a disclaimer that says if you don't really want to know, don't ask me. I am pretty blunt too, but hey, that leaves less room for misunderstanding.



I look forward to meeting you all.



Stacey

That is awesome. love me some old T-shirts. I think everybody should be blount and to the point... sugar coating things only makes the reality of it all worse. Glad to meet ya. Please stay in touch.
 
J

Jboo121104

New member
who are you in a nut shell

My name is Nicole
I am 26 y/o will be 27 in July
I was dignosed with CF at 2 1/2 yrs.
I am married for over 3 yrs now.
I have two beautiful stepdaughters and (with fertility help) had a daughter of my own. She just turned 1 in Feb.
I live in Cleveland but am from a small town called Gibsonburg
I have two siblings a younger sister who is CF free and a younger brother who unfortunatly also has CF.
My PFT's are around 60-70%.
I'm usually hospitalize once every few years but since I had my daughter it has been alot more often. Wich concerns me because I want to see my little girl grow up.
I have alot of sinus problems. Have had sinus surgery that didnt help much.
I am unable to work and have been unsuccesfully applying for SSI.
My husband works very hard but it just never seems to be enough.
Myfavorite color is purple
My favorite food is Chinese Pepper steak.
I want As the world turns and guiding light religously.
My daily routine is taking care of my angel baby, dishes, laundry, vacuuming etc...somtimes thats hard because i get tired easily and have days where my whole body just aches.
I'd love to meet new people with CF and share stories and advice.
 
1

13mlr

New member
who are you

My name is Malora
I'm a girl
I was dx (diagnosed) at 12 years old-failure to thrive
I live in MA
I am 15
I weigh 97lbs and i am 5'
My PFT's stink
I like animals
I'm single
I have mutation S1235R
I'm the only one in my family to ever have CF
I'm very sarcastic
 
S

Sheri

New member
who are you

I am a 20 year old female
Was diagnosed at 5 weeks old (failure to thrive)
I live in Queensland, Australia
I am quite healthy have only had 3 hospital admission in past 7 years
I LOVE sport, it makes up 80% of my life.
i like animals aswell have 2 dogs and 2 cats
My favourite food is probably chinese food but also love a good fish or chicken and chips at the beach etc.
i travel a bit around australia with my sport but have also been overseas a few times and am heading over to england for month soon which i am excited about.

check out my website www.mylifewithcf.weebly.com
 
A

AneJ1986

New member
who are you in a nut shell

Well I'm new so I feel the need to introduce myself

My name is Jenavese (I go by Jena)
I'm a girl
I'm 21
I'm black
I live in VA
I was diagnosed at 2 yrs b/c of rectal prolapse
I have a younger brother w/ CF but we have different fathers - what's that about?
I'm a nursing student at VSU
I am 4'11 and weight 105lbs
I've only been hospitalized once (it was a conspiracy)
Not even my closest friends know I have CF
I'm still in denial (but I can admit it)
I don't know what my mutations are
I'm not hip to the CF lingo yet - (PFT's in the 70s?)
I don't take many meds - I'm fortunate
I don't even take the meds that I should until I'm threatened by the doctors to be admitted (horrible, rite?)
I want a big family but I don't know if conceiving will be easy - what do u think?
I am on here for guidance and support so that I can get motivated to be a healthier me before too much self destruction takes place
 
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kdmr1220

New member
who are you in a nut shell

My name is Kevin
diag at birth
I am 37 and father to two kids 10 and 12
I am working 45 hours a week but my body cant take it anymore but have two children and a wife that depend on me.
Been relatively healthy fev1 65
Been married for 15 years
 
A

Alexr115

Guest
who are you in a nut shell

I am Alex
I am 19
I care for my Parter with CF
I am a law student
I live in the UK
I support Football, my team is Preston North End
I have a cat called Arthur
 
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