Who are you in a nut shell

kayleesgrandma

New member
who are you in a nut shell

Hello all you new people!!! It's great to see you here! I hope to get to know you all better. Just wanted you to know that the origionator of this thread--"our littledebbie" passed away this summer..she is sorely missed, and we all still haven't gotten over it. If you'd like to know her, her blogs are still here.
 

Gymnast

New member
who are you in a nut shell

My name is Tori
I was diagnosed at 3...undiagnosed at 12...
I live in CA
I'm 20
I need to be able to talk to people that understand.
 

HowardtheDuck

New member
who are you in a nut shell

My names Paul
I'm 25
I'm Irish
I live in Dublin
I like Rock and Indie music
I work full time for an IT company in the Health sector
I like Football (Soccer)
I am without doubt the funniest person in my bedroom right now
When i grow up i want to be a robot
and this is my first post here
 
6

65rosessamurai

Guest
who are you in a nut shell

Originally posted by: HowardtheDuck

My names Paul

I'm 25

I'm Irish

I live in Dublin

I like Rock and Indie music

I work full time for an IT company in the Health sector

I like Football (Soccer)

I am without doubt the funniest person in my bedroom right now

When i grow up i want to be a robot

and this is my first post here


Hmm...for some reason, I thought your name might be Howard, from some paralleled world like Earth in which everyone was of the Avian type....hope your dream of becoming a robot comes true...

Welcome to the forum....and to all those other's who just joined as well...

Welcome!
 

Pinky

New member
who are you in a nut shell

Well hello everyone,
I have glanced around the site long enough, I thought it was time to join the conversation.

My name is Kortney
I'm a girl
I'm 25
Diagnosed with CF at 9 months
I've lived in Washington, Oregon and now currently living in Idaho
I've been married since 2004
I'm 5'1, 112lbs
FVC 71, FVC1 51 - My FVC was in the 80's a couple years ago so I'm tying to get it back there
I have one brother (7 years younger) who thankfully does not have CF
I have an obsession with Chocolate and Banana Cream pudding

You can find out more about me...
<a target=_blank class=ftalternatingbarlinklarge href="http://www.myspace.com/kortneykakes
">http://www.myspace.com/kortneykakes
</a>
 

JORDYSMOM

New member
who are you in a nut shell

Hi there all you newbies. It's great to have you. I look forward to getting to know you better.

Stacey
 

missT

Member
who are you in a nut shell

Hi All, my name is Tammy.
I am 37 years old
I was dx at 14 (although I should have been dx much earlier-Dr's sent me home everytime with cough medicine).
I live in NJ but live my life in NYC
Lungs are bad-PFT's low but--whatever, right?
Pancreas is ok (I think??)
I am single for awhile but its because of CF-just can't deal with telling another person and feeling inadequate, rejected, "not normal", etc
As you can see I am depressed and have anxiety issues.
On the bright side I have 2 Chihuahuas that I love!!
I love to cook--hate to clean.
I love to read
I like to shop
I spend toooo much time worrying about my hair.
I work full time. Actually, that is all I do-work.
I love to drink but I can't do it anymore (like I used to).
Love christmas!!!
 

Jennyvb17

New member
who are you in a nut shell

Hi,
my name is Jenny
I'm a 25 year old cfer
dx at birth (miconium ileus)(sp?)
I work full time at a car dealership
pft's are down right now, but usually about mid 70's
5'4" almost 5'5"
120 lbs
I have a dog named Lola who I love
I love cars, especially VW's
I love my boyfriend of 3 years
I like to bowl
I like to watch Tv
I need to be more active!
 

JORDYSMOM

New member
who are you in a nut shell

Hi Tammy & Jenny! Welcome to the site. It's good to have both of you here.

Tammy, my son was a late dx also; he was 15 yo. I think he's had every cough med out there too.<img src="i/expressions/coughing.gif" border="0"><img src="i/expressions/face-icon-small-confused.gif" border="0">

I hope both of you will find this site as helpful and informative as I have.

Stacey
 

Csebe3

New member
who are you in a nut shell

My name is Chuck
I'm a nice guy
I'm 43 ty god
I live in Springfield, Illinois
I was dx (diagnosed) at 29 yrs of age
I weigh around 140 lbs, and I'm 5'6
I use to owen my own bussiness for about 15 yrs
now I have stoped working ie ( not by choice )
about 3yrs now, and it suck's
I love to go camping or fishing hanging out with my kids
yes,I actually have 4 kids, 1 son and 3 girls
I'm married 20 yrs now
I have 1 dog /9 cats / horses /25 fish /3 birds
they tend to keep me busy
I like to meet new people
I like to chat on-line
I play on-line games alot
I like to do as much as I can get away with

my e-mail is csebe3@aol.com or
csebe3@yahoo.com drop me a line.
 
B

bamagirl22

Guest
who are you in a nut shell

My name is Crystal
I am 26 yr old, married, with one daughter (no cf)
I live in Alabama
I was dx @ 5 months of age (failure to thrive)
I am 5'4" and 120 lb.
My PFTs are in the 70s
I have recurrent hemoptysis
I have a port (since 1997)
I have a college degree in business and work full time
I like to laugh, watch movies and spend time with my daughter
I take dance (hiphop & jazz)
I am new to this website (my 1st entry-will welcome all tips for navigating on here)
I love the beach and all tropical destinations
 

leothelioness26

New member
who are you in a nut shell

I am new to the site.
My name is Heather
I live in Alabama
I am 26yrs
Married since 12-1999
Was dx on 1st birthday because my left lung collapsed
My PFTs are usually in the 70s
I write poetry
Don't have any kids but have 2 cats (they are like my children)
I have had kidney failure due to antiboitics
I have Fibrosising Colonopathy from the enzymes
Both genes are DeltaF508
 

occupyjapan

New member
who are you in a nut shell

My name is Seth.
I'm a male.
I'm 23.
I live in St. Charles, MO.
I have CF.
I was diagnosed when I was 4 years old (I had repeated sinus infections wherein they cultured PA, and so they did a sweat test).
I'm 5'9 and weigh... too much. I don't know how I manage to both have CF and be chubby. :-/
My last PFT was 120% of predicted, and my FEV1 was over 100.
I have PA and MRSA in my lungs currently. They tend to fluctuate, though. I've had PA eradicated twice in the past without even requiring hospitalization for it. Right now, they're both there, but not really doing anything or causing problems.
I love chinese food.
I play all sorts of instruments (drums being my forte).
I play in a band.
I like indie rock.
Some of my favorite bands are Neutral Milk Hotel, Sunny Day Real Estate, Crumb, The Decemberists, The Appleseed Cast, etc.
I have a Maltese dog named Woody.
I have a girlfriend named Kathy.
I went to college for History.
I write a bi-monthly article for a popular online humor site.
I don't drink or do any drugs or anything like that.
I'm a pretty decent guy, or so I like to think!
 

rubyroselee

New member
who are you in a nut shell

My name is Leah
I am a girl
I am 26 years old
I was diagnosed at birth (meconium ileus)
Pancreatic insufficient
My FEV1 hovers around 82%
I am 5'8" and weigh 183 lbs
I am an RN/asst. mgr. in a doctor's office
I work full time
I am married (since 3/3/06)
I am a mother to one with one baking in the oven (9 weeks pregnant)
I have 2 cats
I love learning
I love the outdoors
I love playing sports and showing the guys that I'm better than them (ha)
 

kayleesgrandma

New member
who are you in a nut shell

Hello to all you new ones--we just keep growing and growing! I love to read what you are writting about yourself!!!
 
V

valigirl21

Guest
who are you in a nut shell

My name is Valerie.
I'm a girl.
My son is Noah.
He's a boy (obviously).
He is eight.
We live in TX.
Noah was dx earlier this year.
His dx is complicated.
He doesn't have mutations.
He also has FTT, Autism, GH deficiency, and ADHD.
He's beautiful, and smart, and he loves Spiderman and the band Nickelback.
Noah also has a perfectly healthy almost 12-year-old sister.
I work for an Oncologist.
I love to sing.
We are a very close family.
 

JORDYSMOM

New member
who are you

Hello to all of the new people. Welcome to the site. I look forward to getting to k now you all better.

Stacey
 

BrittaniJo2190

New member
who are you in a nut shell

My name is Brittani
I'm a girl
I'm 19
I live in OH
I was dx (diagnosed) around 6 months
I weigh around 105 lbs im 5'2
My PFT's - i dont really know
I love faries
I also looove to eat!
im engaged
I have a son named Caleb he's 3
I have a dog named peaches and a bunny named Bugs
I love to laugh and joke like 98% of the time!
 
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