Who are you in a nut shell

[j121361]

who are you

Hi,
My name is Jamie,I'm 46 and mom to Joshua 21,Diagnosed at 8 weeks.
has mrsa,abpa,pa,cfrd,Asthma and currently hospitalized w/FEV1 at 17% due to infection.

We live in Missouri.

Usually My time is spent working and taking care of Josh,but last 3 months only taking care of Josh.

I'm divorced.

I've been looking at this site for quite awhile now, but recently decided to start interacting due to his decreasing lung functions.

I'm looking forward to talking w/ everyone

Jamie<img src="i/expressions/rose.gif" border="0">

 

[JORDYSMOM]

who are you

Hi there Nicole, Malora, Sheri, Jena, Kevin, Alex, and Jamie. Did I get everyone? Whew, there are a lot of new folks around here lately. That is so cool! I hope you all will jump in with your opinions or ask questions you may have.

This site is great for education and support. I hope all of you will find it as helpful as I have. I look forward to getting to know you all better.

Stacey

 

[Alys1987]

who are you in a nut shell

My name is alyssa,I'm 20 years old,I live in Levittown PA and I've had cf since I was born.

I was actually diagnosed using gene information,the first at the time because the CF gene was'nt discovered until 88 and I was born in 87.My mothers ob-gyn at the time of her pregency with me followed her through to my birth and wrote an articale about his techniques using gene informatoin to determine I had CF which he later published.

I also have asthama,MRSA,GERD,CFRD and lots of undiagnosed stomach problems which I've already had two surgeries for.

I had a sister who had CF to but she passed away in 2001 at 19 years old.

I just recently transfered to the Adult CF center at a new hospital which is veery differant but so far I'm liking it

 

[kayleesgrandma]

who are you in a nut shell

wOW, welcome to all you new members!!! I just spent about 20 minutes reading about all of you! I'm excited to meet you, and I hope you get to know us all here as a new extended family. There is such a great wealth of information...and I know you will find answers for your questions. This is Imogene's dream--coming true--a community of cfrs and families--learning from each other.<img src="i/expressions/heart.gif" border="0">

 

[LGMClark]

who are you in a nut shell

Hi,
I'm Laura
I'm 27 w/cf, CFRD insulin dep., Liver disease, sinusitis.
I'm 5'6" and weigh about 130 (but look like 100lbs, it's all in the spleen)
I have splenomegaly (enlarged spleen)
People always ask me "when are you due?" because my HUGE spleen makes me look about 7 mo. prego (it used to bother me..but now I shrug it off...)<img src="i/expressions/face-icon-small-mad.gif" border="0">
I was diagnosed at age 2 (sweat test)
I live in Hamden, CT.
I'm a 5th grade teacher!
I've been married for 3 years
No kids (I already have 22 kids M-F!)
I have 2 cats! (my babies)
I've had many things..MRSA, Mono, EBV, etc...but my main problem is PA (1 resistant strain and 1 not so much)
I have "tune-ups" at home about every 5 mo.
I have a "medi-port" (my third in 15 years..not bad)
I like to live life to it's fullest (cliche)
I like to gamble at Mohegan Sun (in the non-smoking section)<img src="i/expressions/coughing.gif" border="0">
I 've had 5 sinus surgeries (nasal-polyp-removals)
I've had 3 hernia's
My FEV1% flucuates from 32-39%
I do much better in the summer time.
I'm on the transplant list (non-active) for lungs and possibly for a liver...however, If need be, my husband will be donating prt of HIS liver to me <img src="i/expressions/present.gif" border="0"> Now that's what I call LOVE <img src="i/expressions/heart.gif" border="0">

 

[shallowwaters]

who are you in a nut shell

i havent filled this out yet so i guess i will give it a shot
im Kate
im 21
live in OH
i was dx at 5yrs old
ive had 4 sinus surgeries
just got married in Feb.2008
hope to have kids
have 7 animals
certified phlebotomist looking for a job
FEV1 currently 52% but working on that since im addmitted they still have my baseline at 100 so we will see.
im 5ft 2
106pounds.... working on that too lol

 

[AttyMom]

who are you in a nut shell

My name is Laura
I'm a week shy of 38
Had 5 borderline sweat tests...
Responded to a voluntary study of borderline patients and was diagnosed at 25 1/2
I am married
I have 2 sons: 6 & 8 (no CF)
I'm an attorney
Work-related stress doesn't help my CF...
Chronic Sinusitis
Live near Boston, MA

 

[xLifesEscapex]

who are you in a nut shell

My name mel
I'm a girl
I'm 13 (i know im like the youngest person that posted in this one)
I live in NY
I was diagnosed at a couple months im not really sure the exact number
I weigh around 95 lbs, and I'm 4 '11
My PFT's change a lot.
I recently started a new medicine called xolair
I have a thing for hair dye =]
I'm single
I like animals
I like food.
I'm really shy.

 

[running4life]

who are you in a nut shell

I'm new here.
Name is Ashley.
Just turned 21!
I also have CFRD and on the pump.
Training for a marathon that is in November.
I think I'm the only person on this forum who actually has to watch their weight. (ever since being diagnosed with diabetes at 15)
I'm a Junior Business major.
I love Jesus. I was a little out of control before I met him...let's just say I loved the liquour in high school

 

[running4life]

who are you in a nut shell

Originally posted by: AneJ1986



Not even my closest friends know I have CF

I'm still in denial (but I can admit it)



I am in the same boat. I have told a few friends YEARS ago but I don't ever bring it up. I need to though. How do they deal with your taking meds and what not?

 

[ncyra399]

who are you

My name is Nicki
I am 32 and was diagnosed at 6mos. old due to poor weight gain.
Just recently got diagnosed with CFRD, received a Gtube, portable oxygen, bipap machine.
PFT's suck
talk about possibly getting a transplant and that scares the heck out of me.
I have one brother who is a CF carrier, otherwise, no known CF in my family other then me.
I am very outgoing
I love animals

 

[Shaylaandrews]

who are you in a nut shell

My name is Ann
I'm 28 years old with mild CF
I'm the youngest of 6 children 4 of which have CF
My sister Died at the age of 23, and one brother died at the age of 29 from CF
My one surviving sibling with CF is 32
I have been married to a wonderful man for 7 years now. He is very supportive in everything.
I work full time in an accounting office
I have a tortoise, and a dog that keeps me active.
Life has been an adventure, and I look forward to all that it may still have in store.

"Be thankful for what you have and for what you don't have"

 

[eoiny]

who are you

howsa goin
my name is eoin
im 20 years old with cf
im from dublin, ireland - da place ta be
ive no girlfriend at d moment - dat wont last long.haha.
workin as a labourer, not d best for the health but the moneys alright ya know yourself.

 

[tucsongrl21]

who are you in a nut shell

Name: summer
Age: 20 (will be 21 on the 18th of april!!)
From: tucson, az born and raised
have 2 brothers without CF
My grandmother died when she was in her mid thirtys from CF. (Only known CF history in my family)
I love partying, going to the lake and the river!
My family is awesome and friends are great.
I have too chihauhaus (cutest things in the world)
This disease sucks....
Oh and did i mention, THIS DISEASE SUCKS!!!!
I am going to college, not quite sure what i wanna do yet but im leaning towards dental hygiene.
my PFT'S are around 63% which in my eyes SUCK b/c i used to be in the 100's about 3 years ago.
i love food
im 5'6" and weigh around 127
Just recently joined, never done this kinda thing before

thats about it!

XOXO~summer

 

[sheanna]

who are you

My name is Sheanna (I go by Shea)

I'm 22yo female
Diagnosed at age 5 - couldn't figure out what the $^%@ was wrong with me lol.
I have wanted to be a vet since I was 2 years old
I love animals of all kinds.
I live in Wyoming- and hate it
Therefore I'm applying for masters degrees elsewhere
I'm also an alternate at 2 veterinary schools this year
Sometimes I'm scared that I won't live long enough to justify veterinary school
I was Dx w/ CFRD last May
I don't know my mutations and should really ask...
My PFT's a pretty good and I work very hard to keep it that way. I am currently trying to decode my latest results...
I am 5'1" and 107 pounds. My goal is 110, but my nutritionist's goals is 5,303 tons.
I hate nutritionists. All of them.

I am so happy I found this website and I wish the best to everyone

 

[unstopable]

who are you in a nut shell

my name is troy
i'm a guy
live in illinois
i was diagnosed at 3months-died n brought back a few times
weight is 132pounds
i am a dad to 1 step son. can't have my own.
work full time-60hrs a week
i am a mechanic
i have been married for 6yrs
pfts are prety good
only stay in hospital once or twice a year for a few days then do at home IV antibiotics for two weeks
i love anything with a motor that goes fast
i race my drag car as much as possible, ride motorcycles, snowmobiles, anything w/ a motor. go paintballing, im very active most of the time.
i have a feeding tube, and a port, but they don't slow me down a bit. a believe if you slow down you will come to a sudden stop.

 

[unstopable]

who are you

my name is troy
i'm a guy
live in illinois
i was diagnosed at 3months-died n brought back a few times
weight is 132pounds
i am a dad to 1 step son. can't have my own.
work full time-60hrs a week
i am a mechanic
i have been married for 6yrs
pfts are prety good
only stay in hospital once or twice a year for a few days then do at home IV antibiotics for two weeks
i love anything with a motor that goes fast
i race my drag car as much as possible, ride motorcycles, snowmobiles, anything w/ a motor. go paintballing, im very active most of the time.
i have a feeding tube, and a port, but they don't slow me down a bit. a believe if you slow down you will come to a sudden stop.

 

[ERINSBIZ]

who are you in a nut shell

Name is Erin
Female
San Diego County, CA
130lbs. 5'4
fv1: 80's
dx: 1yr.
digestive issues most of life, lung issues now that I am older & kids.
Married 14 yrs. to High School Sweetheart!
Three very silly & active boys Brendan 9 & Connor 7 & Buddy the mini dog 1.
Connor 7 has cf b/ no symptoms: none, 0, so far
I work at my boys school where I am an instructional assistant for special needs specializing in Autistic kiddos
I have a relationship with my Lord and Savior JC.
I am a reality t.v. junkie.
I love date night.
I love girls night.
I love having dates with my boys.

 

[JORDYSMOM]

who are you in a nut shell

Hi and welcome to all of you new people. I'm so glad you are here. I hope you will find this site as helpful as I have.

Stacey

 

[bobbiex3]

who are you in a nut shell

my name is bobbie.
im all girl.
im 19 years old.
i live in KY.
i was dx at 2 months.
i weigh around 100 lbs, and im 5'2.
my FEV1 is 31%
im in the hospital now, but goin home today on picc.
this makes my 4th time in a year being stuck in here.
im a hair stylist.
i love my cell phone.
my boyfriend is my bestfriend.
i wish i exercised more and wasnt so lazy.