Who are you in a nut shell

[tinydancer0417]

who are you in a nut shell

My name is Melissa
I don't have CF
We think my husband has it, but haven't gotten definite declaration on that yet.
His name is Jason
He is 25
Has anyone heard of someone this old being diagnosed with CF?

He fills about 4 waterbottles a day of that sticky saliva
His sinuses are terrible
he has real digestion problems and is always complaining of his stomach hurting
he weighs 120 and is 5'9"
He had to get shots when he was little to make him grow
Could he have this???

 

[JustDucky]

who are you in a nut shell

Hello Melissa..Welcome aboard and yes, it is definitely possible to be diagnosed later in life..If you stick around the boards long enough, you will meet many adult diagnosis, including myself. I was dx'd at 33 years old. Good luck with the testing, if it does turn out that he does have CF, he will be finally getting the right treatment.
To all of the other newbies, welcome!!

 

[Sevenstars]

who are you in a nut shell

Wow, Brad, I just saw that your oldest brother is about to turn 60 with CF! That's amazing, good for him. I was diagnosed when I was 8, too. Good to see you are doing well for yourself, keep lifting weights!

Melissa (tinydancer) your husband could certainly have it... that seems unbelivably skinny for his height, and malnourishment is one of the most obvious signs of CF (that, and the coughing, the mucous...) I mean, I am 5'2" and I weigh that much! Good luck finding out what's wrong, even if it's not CF, and welcome to the site.

And welcome everyone else too.

 

[Kristen]

who are you

Hi Everyone! This is my first post here
I'm Kristen
I live in Texas
I am 31
I was diagnosed as a baby because I had salty skin
I'm 5'5" and weigh 125 lbs
PFT's are over 100%
Pancreatic sufficient
1 sinus surgery
1 possible episode of pancreatitis
2 hospitalizations
Many episodes of bronchitis
I'm an environmental engineer
Love the outdoors
I'm obsessed with working out
I love wine and cheese!
Married 1 year and hoping to get pregnant soon!

 

[laurabay17]

who are you in a nut shell

My name is Laura
I'm a girl
I'm 29
I'm in Halifax, Nova Scotia
Diagnosed with CF at 7 months of age-wasn't gaining weight, cried after I ate anything
I have a sister with Asthma, and a brother with CF
I'm a massage therapist and I'm the healthiest I've ever been since starting this career
I'm 5'3" and usually weigh somewhere in the 130 range..less if I don't eat so much dairy..used to be addicted to Chocolate milk big time
I'm married, still on the fence about having kids because afraid of my health going downhill
I love the lake and the beach, and wish it was warm here year round because swimming is the best exercise ever and pools are generally gross

 

[sunshine5637]

who are you

Hi...I'm new to this forum so I'll introduce myself...

My name is Melissa. I'm 28, married, no kids-but a dog-and I live in Oakvale, Mississippi. Trying to figure out what I'm supposed to be doing SINCE I have no kids..lol..I have a younger brother & sister and neither have CF. My parents took extra special care of me (so I always thought CF was no big deal) and it's only been in the last year that I've had to pay extra special care to my health and I admit I've gotten a little scared from time to time. I came to this forum in hopes of finding others that could relate to me, who could understand what I'm going through ... let's see, my problems: I developed CFRD at 17 (which my Hemoglobin A1C levels are great!); I do have a liver problem which I take meds for; my biggest problem has always been digestion; ever since Hurricane Katrina came through I have had allergy problems which keep me on antibiotics (I, along with others, think that Katrina brought up some new "species"...); my PFTs have always been really good, I'm due to take a new set in a couple of weeks so my fingers are crossed...

Nice to meet everyone

 

[rmotion]

who are you in a nut shell

Interesting post.
Here goes.
Rob
male
37 y/o 38 in 2 months
Live in Los Angeles (lived in East coast 1978-1991) Boston and New Hampshire.
Diagnosed when 3 (Failure to thrive)
no one else in family has cf
Liver Biopsy - to see what else
Prior to CF diagnosis - doc thought I was celiac, went gluten free, then they found CF
36 the celic issue cam back up coupled with CFRD, been gluten free since.
Had some hemoptsys last year, kinda bad, lost some weight and FEV( currently about 55- 60% FEV1. Doing ok now,mostly.
I live in Los Angeles, married, Wife's name Kristy, we hav one dog child, Dixie
Current regiment and problems
CF - Go to the USC clinic in LA
Celiac - wheat free is for me
CFRD - Insulin - Under control most of the time, except when I over dose and go hypo
PA and MRSA - always there to keep me company.
I take creon like Skittles
I do my vest, tobi, hypertonic saline 2 x day
Health is stable had some hemoptosis that is problematic but dealing with it.
I own a real estate company. RE Market is in chaos but keeps it interesting.
I really want to have an invention company or a jet ski job
Wife works in medical field
Our dog just plays, eats and sleeps - barks at 2 am quite regularlly
Former favorite food - greasy thin sliced new york style pizza, current favorite gluten free food - corn tortillas and grape jelly.
We like hang out with friends and family, camping and used to go boating, we walk the dog to the park. want to get back to working out.
Ok thats it

 

[luv2run]

who are you in a nut shell

New to this!!!
I'm a wife,full time mom, awesome cook, great friend,
marathon runner,gardner,food fanatic (love food), 29, cf
FEV/FVC 112/111
5'4/105lbs
my passion is running
have a sister with cf -she is 27
I'm very private about my cf - none of my friends know
I use Tobi - 1x/day (28/28 plan)/no other meds
no enzymes
dx'ed at 2years, when my sis was dx'd.
I hate doctors
never been hospitalized for cf related stuff, but I am clumsy - for accidents, yes.
I love red wine
I love animals, cats(my favorite), little dogs, reptiles - love them all!!!
Have a thing for tattoos, but only have 2(no more for me!)
I plan on living a REALLY LONG time

 

[LGMClark]

who are you in a nut shell

Welcome everyone! I just know you'll love this site..and yes, it's addicting, so get ready!

Rob, my doc thought I was celiac too! Turned out IBS in conjunction with some hormone issues (not that this would work for you) but my doc changed my birth control and BOOM...Celiac symptoms were gone!

Newbies, holla if you have those rare liver issues! I love to chat and share similarities!

Welcome again!

 

[sunshine5637]

who are you in a nut shell

what kind of liver issues are you talking about?

I take medicine for mine but I'm not sure I have issues. YET.

 

[JORDYSMOM]

who are you in a nut shell

Wow! I can't believe how many new people have posted here since I last checked. I'm so happy to meet all of you. I hope you will all jump in and let us get to know you better.

Stacey

 

[JenWren]

who are you in a nut shell

Welcome all you new people. It just makes me smile to read your stories. We seem to all have so much in common. Daaahhh.

Looking forward to getting to know you and it is great to be back .

Im starving so Im going to go have my snack like a good girl.

JenWren<img src="i/expressions/rose.gif" border="0"> CF CFRD 48

 

[joaniemusic]

who are you in a nut shell

<img src="i/expressions/musicnote.gif" border="0">
Hi my name is Joanne
I have CF
I was diagnosed at 13years of age. Was sick ALL the time (my poor mom)
I am newly married March 8,2008
I am also divorced, I was married for almost three years, he thought it was going to go away
I don't have kids, I been trying for years
I have a dog name Ladee, she is my everything
I live in Sudbury, Ontario Canada
I LOVE music and to sing
I am very new to this site and wanted to talk with others that have what i have.
My strain of CF is on two different genes.
My PFT's blow. Really low
I'm a xray tech and i'm still working and work when i'm on IV's, i'm stubborn
I have a sports car that i love, it's the only splurge i've ever boughten
Well I guess that's it. I'm very new to this and would love to just speak with other CF'ers to know how they are doing and how they are coping with getting older and dealing with this crap
thanks
Joanne

 

[DarceyMaysey]

who are you in a nut shell

I'm Darcey- 37 F w/CF dx@30
I live in OK
Single mom to a 7 year old son
5'6" weigh ~140
I work as an administrative assistant for a state agency.
I enjoy spending time with my son, music, reading, surfing the net and riding my bike around the lake.
I am a vegetarian.
I have a twin brother,(DarbSkull), also w/CF dx@30.

 

[Shine]

who are you in a nut shell

Hi there
My name is sarah,
I'm 27
Live in New Zealand.
Was diagnosed at 2 1/2 yrs of age w C.F
C.F Mutation: DF508
Fev1 is 50 - 55% predicted
Been Married to my husban since 2006
Am pancreatic insufficient
I have had (Dios) a number of times in 2007 and have recently been dignosed with irritable bowel syndrome)
Also under went Endoscopic sinus surgery many many years ago.

I am currently writing a children's fantasy novel and am painting the illustrations for my book. (character's in my story)and making a fantasy map to go with it all
I'm also a singer/song writer too.
I also enjoy attending hip hop dance classes (with friends) which keep me on my toes lol

I am a very bubbly outgoing person who likes to live life to the fullest! lol
My Favourite movies are the ones that make you laugh... Comedies oh course!
I'd love to travel to Europe one day with my Hubby.
Favourite food of all time: Creamy MASHED POTATOES hmmm yum!

Feel free to post me a line

 

[LuraGirl26]

who are you

Hi I am Lura
I am 20
5,4 and 136
I was Dx with Cystic Fibrosis when I was 15
I love ice cream
and dogs
My PFT's 55%
I would to meet some new people with CF.

 

[dbtoo]

who are you in a nut shell

Originally posted by: DarceyMaysey

I have a twin brother,(DarbSkull), also w/CF dx@30.

You poor poor thing! So sad to hear of this!

WELCOME, and just kidding about your brother!

 

[MissAlexsBP]

who are you in a nut shell

Hello! I've been a member for a while, but I don't think that I've ever really introduced myself! XD

I'm Alex
I'm 19
I'm a girl
I have CF; I was Dx at birth
4'11"
I am a psychology major in college, going into my sophmore year this fall
I have a wonderful boyfriend of 2 1/2 years
I have a port
I have some weird mutation of CF, I honestly don't know what exactly it's called
I have a poodle
I LOVE the band My Chemical Romance
I love tattoos
I'm an only child
I recently cultured B.Cepacia : /
That's pretty much me! It's nice to be able to talk with some other people with CF seeing how I don't know many!

 

[ckcleeb2]

who are you in a nut shell

Hi
My name is Carol. I am a student in NYC at The Swedish Institute for Health Sciences. I study Massage Therapy, Eastern and Western techniques. I also work in a laboratory which tests for CF mutations. I'm researching CF to understand what I can do as a MT to reduce pain, increase activity levels and support a CF person. Would you like to talk with me?

 

[luckycharm]

who are you in a nut shell

Hi
My name is Leeanne
I'm from just outside of Boston, Mass.
I am 28
I have a 7 year old son
I've been married for almost a year but we've been together for 9 (in November).
I have a degree in cosmetology/esthetics
My PFT's are horrible and I'm hospitalized at least 3 to 4 times a year.
I'm very sarcastic and quick-witted
I love talking with people about CF. I do a lot of speaking during pallative care and cf conferences.