Who knows?

Solo

New member
I inform everyone that I am in contact with at my job about my condition, especially my bosses. I am not ashamed of my CF at the least, granted I don't broadcast that I am the owner of it, but I don't conceal it either. I recently filed a request for accommodations with the ADA because my boss asked me to do something which if they even bothered to think for a second would know that I am unable to do. (That was at the time before I was hospitalized, so I had a lung inflammation.) I'll tell ya, Wal-Mart sucks. They don't care if you die on the job, just as long as they don't get the negative publicity carting you out.
 

Solo

New member
I inform everyone that I am in contact with at my job about my condition, especially my bosses. I am not ashamed of my CF at the least, granted I don't broadcast that I am the owner of it, but I don't conceal it either. I recently filed a request for accommodations with the ADA because my boss asked me to do something which if they even bothered to think for a second would know that I am unable to do. (That was at the time before I was hospitalized, so I had a lung inflammation.) I'll tell ya, Wal-Mart sucks. They don't care if you die on the job, just as long as they don't get the negative publicity carting you out.
 

Solo

New member
I inform everyone that I am in contact with at my job about my condition, especially my bosses. I am not ashamed of my CF at the least, granted I don't broadcast that I am the owner of it, but I don't conceal it either. I recently filed a request for accommodations with the ADA because my boss asked me to do something which if they even bothered to think for a second would know that I am unable to do. (That was at the time before I was hospitalized, so I had a lung inflammation.) I'll tell ya, Wal-Mart sucks. They don't care if you die on the job, just as long as they don't get the negative publicity carting you out.
 

Solo

New member
I inform everyone that I am in contact with at my job about my condition, especially my bosses. I am not ashamed of my CF at the least, granted I don't broadcast that I am the owner of it, but I don't conceal it either. I recently filed a request for accommodations with the ADA because my boss asked me to do something which if they even bothered to think for a second would know that I am unable to do. (That was at the time before I was hospitalized, so I had a lung inflammation.) I'll tell ya, Wal-Mart sucks. They don't care if you die on the job, just as long as they don't get the negative publicity carting you out.
 

Solo

New member
I inform everyone that I am in contact with at my job about my condition, especially my bosses. I am not ashamed of my CF at the least, granted I don't broadcast that I am the owner of it, but I don't conceal it either. I recently filed a request for accommodations with the ADA because my boss asked me to do something which if they even bothered to think for a second would know that I am unable to do. (That was at the time before I was hospitalized, so I had a lung inflammation.) I'll tell ya, Wal-Mart sucks. They don't care if you die on the job, just as long as they don't get the negative publicity carting you out.
 

Kristen

New member
This is an excellent topic!

I have always been very open about my CF for many reasons: I need to explain my cough, I'm not ashamed of it, I think it's good to educate people etc. There are times when i just don't feel like explaining it so I'll say "oh it's allergies" if someone asks me about my cough. When I do tell someone, I always preface it with "if you google it, you'll think I'm really really sick, which is not the case at all." I don't go around broadcasting it, but I would say that about 1/3 of the people I work with know (I work with about 50 people).

I have always been extremely open with my bosses because I want them to know why I won't work more than 40 hours (need to get enough rest, fit in treatments, and excersize). It did burn me at my last job however. About a month after I started there, I was sent to Houston to work on a project and ended up in the hospital with pneumonia for two days. Mind you, that is the second time in my life I have been in the hospital. But, after that, one of my coworkers overheard my boss say that I was "not a reliable engineer" because I have CF. I was so heartbroken I thought I was going to vomit when she told me this, and I quit not too long after that (for that and several other reasons).

Now I work at a place that is MUCH more understanding, I think in part because so many of my coworkers also have health issues. At first I was much more careful about who I told, but now that I've been there for 2 years and gotten a feel for the place, I've opened up more. I'd just rather people know why I have limitations instead of thinking that I am lazy <img src="i/expressions/face-icon-small-wink.gif" border="0">
 

Kristen

New member
This is an excellent topic!

I have always been very open about my CF for many reasons: I need to explain my cough, I'm not ashamed of it, I think it's good to educate people etc. There are times when i just don't feel like explaining it so I'll say "oh it's allergies" if someone asks me about my cough. When I do tell someone, I always preface it with "if you google it, you'll think I'm really really sick, which is not the case at all." I don't go around broadcasting it, but I would say that about 1/3 of the people I work with know (I work with about 50 people).

I have always been extremely open with my bosses because I want them to know why I won't work more than 40 hours (need to get enough rest, fit in treatments, and excersize). It did burn me at my last job however. About a month after I started there, I was sent to Houston to work on a project and ended up in the hospital with pneumonia for two days. Mind you, that is the second time in my life I have been in the hospital. But, after that, one of my coworkers overheard my boss say that I was "not a reliable engineer" because I have CF. I was so heartbroken I thought I was going to vomit when she told me this, and I quit not too long after that (for that and several other reasons).

Now I work at a place that is MUCH more understanding, I think in part because so many of my coworkers also have health issues. At first I was much more careful about who I told, but now that I've been there for 2 years and gotten a feel for the place, I've opened up more. I'd just rather people know why I have limitations instead of thinking that I am lazy <img src="i/expressions/face-icon-small-wink.gif" border="0">
 

Kristen

New member
This is an excellent topic!

I have always been very open about my CF for many reasons: I need to explain my cough, I'm not ashamed of it, I think it's good to educate people etc. There are times when i just don't feel like explaining it so I'll say "oh it's allergies" if someone asks me about my cough. When I do tell someone, I always preface it with "if you google it, you'll think I'm really really sick, which is not the case at all." I don't go around broadcasting it, but I would say that about 1/3 of the people I work with know (I work with about 50 people).

I have always been extremely open with my bosses because I want them to know why I won't work more than 40 hours (need to get enough rest, fit in treatments, and excersize). It did burn me at my last job however. About a month after I started there, I was sent to Houston to work on a project and ended up in the hospital with pneumonia for two days. Mind you, that is the second time in my life I have been in the hospital. But, after that, one of my coworkers overheard my boss say that I was "not a reliable engineer" because I have CF. I was so heartbroken I thought I was going to vomit when she told me this, and I quit not too long after that (for that and several other reasons).

Now I work at a place that is MUCH more understanding, I think in part because so many of my coworkers also have health issues. At first I was much more careful about who I told, but now that I've been there for 2 years and gotten a feel for the place, I've opened up more. I'd just rather people know why I have limitations instead of thinking that I am lazy <img src="i/expressions/face-icon-small-wink.gif" border="0">
 

Kristen

New member
This is an excellent topic!

I have always been very open about my CF for many reasons: I need to explain my cough, I'm not ashamed of it, I think it's good to educate people etc. There are times when i just don't feel like explaining it so I'll say "oh it's allergies" if someone asks me about my cough. When I do tell someone, I always preface it with "if you google it, you'll think I'm really really sick, which is not the case at all." I don't go around broadcasting it, but I would say that about 1/3 of the people I work with know (I work with about 50 people).

I have always been extremely open with my bosses because I want them to know why I won't work more than 40 hours (need to get enough rest, fit in treatments, and excersize). It did burn me at my last job however. About a month after I started there, I was sent to Houston to work on a project and ended up in the hospital with pneumonia for two days. Mind you, that is the second time in my life I have been in the hospital. But, after that, one of my coworkers overheard my boss say that I was "not a reliable engineer" because I have CF. I was so heartbroken I thought I was going to vomit when she told me this, and I quit not too long after that (for that and several other reasons).

Now I work at a place that is MUCH more understanding, I think in part because so many of my coworkers also have health issues. At first I was much more careful about who I told, but now that I've been there for 2 years and gotten a feel for the place, I've opened up more. I'd just rather people know why I have limitations instead of thinking that I am lazy <img src="i/expressions/face-icon-small-wink.gif" border="0">
 

Kristen

New member
This is an excellent topic!
<br />
<br />I have always been very open about my CF for many reasons: I need to explain my cough, I'm not ashamed of it, I think it's good to educate people etc. There are times when i just don't feel like explaining it so I'll say "oh it's allergies" if someone asks me about my cough. When I do tell someone, I always preface it with "if you google it, you'll think I'm really really sick, which is not the case at all." I don't go around broadcasting it, but I would say that about 1/3 of the people I work with know (I work with about 50 people).
<br />
<br />I have always been extremely open with my bosses because I want them to know why I won't work more than 40 hours (need to get enough rest, fit in treatments, and excersize). It did burn me at my last job however. About a month after I started there, I was sent to Houston to work on a project and ended up in the hospital with pneumonia for two days. Mind you, that is the second time in my life I have been in the hospital. But, after that, one of my coworkers overheard my boss say that I was "not a reliable engineer" because I have CF. I was so heartbroken I thought I was going to vomit when she told me this, and I quit not too long after that (for that and several other reasons).
<br />
<br />Now I work at a place that is MUCH more understanding, I think in part because so many of my coworkers also have health issues. At first I was much more careful about who I told, but now that I've been there for 2 years and gotten a feel for the place, I've opened up more. I'd just rather people know why I have limitations instead of thinking that I am lazy <img src="i/expressions/face-icon-small-wink.gif" border="0">
 
For 2 years into my job, I did not tell a soul that I had CF. I was not ashamed, I wanted to prove myself as a hard worker. I felt horrible for lying to my boss about leaving early for a drs appt, or calling in sick so I can catch up on sleep so I didn't get sick. My boss was a great guy, and when I told him he was very understanding, and compassionate.

The first time I went on IV and needed a few weeks off, I told HR. I became close with 2 woman at the job and told them.

When I was getting ready to retire,( afew years later)It seemed like the whole school knew! I was okay with people knowing at that point and I was really surprised at the warmth, care and concern that was rallied around me. I stopped working in 2005 for health reasons, and I look foward to working one day again!

Kris
31NY'er with CF/rD
 
For 2 years into my job, I did not tell a soul that I had CF. I was not ashamed, I wanted to prove myself as a hard worker. I felt horrible for lying to my boss about leaving early for a drs appt, or calling in sick so I can catch up on sleep so I didn't get sick. My boss was a great guy, and when I told him he was very understanding, and compassionate.

The first time I went on IV and needed a few weeks off, I told HR. I became close with 2 woman at the job and told them.

When I was getting ready to retire,( afew years later)It seemed like the whole school knew! I was okay with people knowing at that point and I was really surprised at the warmth, care and concern that was rallied around me. I stopped working in 2005 for health reasons, and I look foward to working one day again!

Kris
31NY'er with CF/rD
 
For 2 years into my job, I did not tell a soul that I had CF. I was not ashamed, I wanted to prove myself as a hard worker. I felt horrible for lying to my boss about leaving early for a drs appt, or calling in sick so I can catch up on sleep so I didn't get sick. My boss was a great guy, and when I told him he was very understanding, and compassionate.

The first time I went on IV and needed a few weeks off, I told HR. I became close with 2 woman at the job and told them.

When I was getting ready to retire,( afew years later)It seemed like the whole school knew! I was okay with people knowing at that point and I was really surprised at the warmth, care and concern that was rallied around me. I stopped working in 2005 for health reasons, and I look foward to working one day again!

Kris
31NY'er with CF/rD
 
For 2 years into my job, I did not tell a soul that I had CF. I was not ashamed, I wanted to prove myself as a hard worker. I felt horrible for lying to my boss about leaving early for a drs appt, or calling in sick so I can catch up on sleep so I didn't get sick. My boss was a great guy, and when I told him he was very understanding, and compassionate.

The first time I went on IV and needed a few weeks off, I told HR. I became close with 2 woman at the job and told them.

When I was getting ready to retire,( afew years later)It seemed like the whole school knew! I was okay with people knowing at that point and I was really surprised at the warmth, care and concern that was rallied around me. I stopped working in 2005 for health reasons, and I look foward to working one day again!

Kris
31NY'er with CF/rD
 
For 2 years into my job, I did not tell a soul that I had CF. I was not ashamed, I wanted to prove myself as a hard worker. I felt horrible for lying to my boss about leaving early for a drs appt, or calling in sick so I can catch up on sleep so I didn't get sick. My boss was a great guy, and when I told him he was very understanding, and compassionate.
<br />
<br />The first time I went on IV and needed a few weeks off, I told HR. I became close with 2 woman at the job and told them.
<br />
<br />When I was getting ready to retire,( afew years later)It seemed like the whole school knew! I was okay with people knowing at that point and I was really surprised at the warmth, care and concern that was rallied around me. I stopped working in 2005 for health reasons, and I look foward to working one day again!
<br />
<br />Kris
<br />31NY'er with CF/rD
 

mabusincarnate

New member
i was coordinating the design of a major piece of software as my health declined. people could easily tell things were not right. long story short, i went to the ER the night before the release. i coordinated training, data population, user access, and security from my hospital bed. the operations manager for my company called my hospital room to tell me about a significant promotion and 38% raise. with this promotion i was also given the ability to work from home whenever i want.

however, i get the impression my coworkers blame me for our high insurance premium. i've heard people make comments about some of our coworkers with cancer costing us money.

my direct superior makes jokes about knowing where i am based on my cough. that doesn't bother me because we have a very open and direct line of communication.
 

mabusincarnate

New member
i was coordinating the design of a major piece of software as my health declined. people could easily tell things were not right. long story short, i went to the ER the night before the release. i coordinated training, data population, user access, and security from my hospital bed. the operations manager for my company called my hospital room to tell me about a significant promotion and 38% raise. with this promotion i was also given the ability to work from home whenever i want.

however, i get the impression my coworkers blame me for our high insurance premium. i've heard people make comments about some of our coworkers with cancer costing us money.

my direct superior makes jokes about knowing where i am based on my cough. that doesn't bother me because we have a very open and direct line of communication.
 

mabusincarnate

New member
i was coordinating the design of a major piece of software as my health declined. people could easily tell things were not right. long story short, i went to the ER the night before the release. i coordinated training, data population, user access, and security from my hospital bed. the operations manager for my company called my hospital room to tell me about a significant promotion and 38% raise. with this promotion i was also given the ability to work from home whenever i want.

however, i get the impression my coworkers blame me for our high insurance premium. i've heard people make comments about some of our coworkers with cancer costing us money.

my direct superior makes jokes about knowing where i am based on my cough. that doesn't bother me because we have a very open and direct line of communication.
 

mabusincarnate

New member
i was coordinating the design of a major piece of software as my health declined. people could easily tell things were not right. long story short, i went to the ER the night before the release. i coordinated training, data population, user access, and security from my hospital bed. the operations manager for my company called my hospital room to tell me about a significant promotion and 38% raise. with this promotion i was also given the ability to work from home whenever i want.

however, i get the impression my coworkers blame me for our high insurance premium. i've heard people make comments about some of our coworkers with cancer costing us money.

my direct superior makes jokes about knowing where i am based on my cough. that doesn't bother me because we have a very open and direct line of communication.
 

mabusincarnate

New member
i was coordinating the design of a major piece of software as my health declined. people could easily tell things were not right. long story short, i went to the ER the night before the release. i coordinated training, data population, user access, and security from my hospital bed. the operations manager for my company called my hospital room to tell me about a significant promotion and 38% raise. with this promotion i was also given the ability to work from home whenever i want.
<br />
<br />however, i get the impression my coworkers blame me for our high insurance premium. i've heard people make comments about some of our coworkers with cancer costing us money.
<br />
<br />my direct superior makes jokes about knowing where i am based on my cough. that doesn't bother me because we have a very open and direct line of communication.
 
Top