definitely have my moments. i suppose because I already have two grown up children with cf it makes a big difference. We wouldnt have had any more children but they were so healthy when they were teenagers.
The thing that really hit me was when we found out our third child had type 1 diabetes on top of the cf. That gutted me for months. As long as things are going well I'm okay, but when S gets sick I do have difficulty coping.
I am pretty positive most of the time though, and S is a fantastic kid who takes everything in his stride. I can relate to you to Lety, people are pretty ignorant of the issues others have with all kinds of disabilities...it's all hidden, so people dont know how hard and isolating the whole thing can be at times...
edited to say...not that I really think of Cf as a disability. Ofcourse it can be when people are really sick..I was generalising but refering to the reality for us of constant treatments and stress, hospitals etc. People dont really understand how that is.
I remember when my older brother's daughter was diagnosed with a type of bone cancer (she recovered and is fine now), and he said to me that he understood how I felt when we found out oour kids had cf.
