why live?

Alessia2dance

New member
Hi cysticfibrosis girl, Just curious how old you are and how old when you were diagnosed? I'm 23, diagnosed when I was 7 1/2 months old. I love your positive attitude towards your situation. That's great! Sometimes I feel like CF for me is a lesson from god. I appreciate the people I have around me more than I believe others do and I look at life in a whole different way than most people I know. But believe me I do have my days. lol.
 
I was 16 and I have been sick all my life and no one knew I had CF. I am happy that I have lived as long as I have. I have a different kind of CF so I am told, so I am kind of a medical genny pig. LOL! Soon I will be used for testing LOL!

Anyway I do TheVest 2 times a day with Pulozyme and then Hypertonic Sline and then Pulmocourt, Atrovent, UltraseMT 20's, Albuterol, Nasonex, SourceCF softgels, Singulair, Precaid 30mg, Xopenex, ( I keep this in my purse if I need it) And Muconest.

So my room is kind of a little hospital room. I am sure you know what I am talking about. I go to a CF center that is about 4 hours away so my inturnest works over the phone with my center. This helps. I am getting sick so I hope I won't need IV's yet!?

Well talk soon.
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18/f with Cystic Fibrosis in MN<a target=_blank class=ftalternatingbarlinklarge href="http://www.caringbridge.com/visit/karin1">Text</a>
 
I was 16 and I have been sick all my life and no one knew I had CF. I am happy that I have lived as long as I have. I have a different kind of CF so I am told, so I am kind of a medical genny pig. LOL! Soon I will be used for testing LOL!

Anyway I do TheVest 2 times a day with Pulozyme and then Hypertonic Sline and then Pulmocourt, Atrovent, UltraseMT 20's, Albuterol, Nasonex, SourceCF softgels, Singulair, Precaid 30mg, Xopenex, ( I keep this in my purse if I need it) And Muconest.

So my room is kind of a little hospital room. I am sure you know what I am talking about. I go to a CF center that is about 4 hours away so my inturnest works over the phone with my center. This helps. I am getting sick so I hope I won't need IV's yet!?

Well talk soon.
-----------------------------------------------------------------------------------------------
18/f with Cystic Fibrosis in MN<a target=_blank class=ftalternatingbarlinklarge href="http://www.caringbridge.com/visit/karin1">Text</a>
 
I was 16 and I have been sick all my life and no one knew I had CF. I am happy that I have lived as long as I have. I have a different kind of CF so I am told, so I am kind of a medical genny pig. LOL! Soon I will be used for testing LOL!

Anyway I do TheVest 2 times a day with Pulozyme and then Hypertonic Sline and then Pulmocourt, Atrovent, UltraseMT 20's, Albuterol, Nasonex, SourceCF softgels, Singulair, Precaid 30mg, Xopenex, ( I keep this in my purse if I need it) And Muconest.

So my room is kind of a little hospital room. I am sure you know what I am talking about. I go to a CF center that is about 4 hours away so my inturnest works over the phone with my center. This helps. I am getting sick so I hope I won't need IV's yet!?

Well talk soon.
-----------------------------------------------------------------------------------------------
18/f with Cystic Fibrosis in MN<a target=_blank class=ftalternatingbarlinklarge href="http://www.caringbridge.com/visit/karin1">Text</a>
 
I was 16 and I have been sick all my life and no one knew I had CF. I am happy that I have lived as long as I have. I have a different kind of CF so I am told, so I am kind of a medical genny pig. LOL! Soon I will be used for testing LOL!

Anyway I do TheVest 2 times a day with Pulozyme and then Hypertonic Sline and then Pulmocourt, Atrovent, UltraseMT 20's, Albuterol, Nasonex, SourceCF softgels, Singulair, Precaid 30mg, Xopenex, ( I keep this in my purse if I need it) And Muconest.

So my room is kind of a little hospital room. I am sure you know what I am talking about. I go to a CF center that is about 4 hours away so my inturnest works over the phone with my center. This helps. I am getting sick so I hope I won't need IV's yet!?

Well talk soon.
-----------------------------------------------------------------------------------------------
18/f with Cystic Fibrosis in MN<a target=_blank class=ftalternatingbarlinklarge href="http://www.caringbridge.com/visit/karin1">Text</a>
 
I was 16 and I have been sick all my life and no one knew I had CF. I am happy that I have lived as long as I have. I have a different kind of CF so I am told, so I am kind of a medical genny pig. LOL! Soon I will be used for testing LOL!

Anyway I do TheVest 2 times a day with Pulozyme and then Hypertonic Sline and then Pulmocourt, Atrovent, UltraseMT 20's, Albuterol, Nasonex, SourceCF softgels, Singulair, Precaid 30mg, Xopenex, ( I keep this in my purse if I need it) And Muconest.

So my room is kind of a little hospital room. I am sure you know what I am talking about. I go to a CF center that is about 4 hours away so my inturnest works over the phone with my center. This helps. I am getting sick so I hope I won't need IV's yet!?

Well talk soon.
-----------------------------------------------------------------------------------------------
18/f with Cystic Fibrosis in MN<a target=_blank class=ftalternatingbarlinklarge href="http://www.caringbridge.com/visit/karin1">Text</a>
 
I was 16 and I have been sick all my life and no one knew I had CF. I am happy that I have lived as long as I have. I have a different kind of CF so I am told, so I am kind of a medical genny pig. LOL! Soon I will be used for testing LOL!

Anyway I do TheVest 2 times a day with Pulozyme and then Hypertonic Sline and then Pulmocourt, Atrovent, UltraseMT 20's, Albuterol, Nasonex, SourceCF softgels, Singulair, Precaid 30mg, Xopenex, ( I keep this in my purse if I need it) And Muconest.

So my room is kind of a little hospital room. I am sure you know what I am talking about. I go to a CF center that is about 4 hours away so my inturnest works over the phone with my center. This helps. I am getting sick so I hope I won't need IV's yet!?

Well talk soon.
-----------------------------------------------------------------------------------------------
18/f with Cystic Fibrosis in MN<a target=_blank class=ftalternatingbarlinklarge href="http://www.caringbridge.com/visit/karin1">Text</a>
 

Alessia2dance

New member
Hi Anika, I'm glad you wrote me back. My name is Alessia just for your reference I know what you mean about your room being a hospital room...lol. I hate all the meds we have to take and carry around with us, pain in our butts. I do my vest once a day, pulmozyme, duo neb, albuterol, pancrease mt-16, tobi, advair, allegra d, adeks, & flonase.

When you said you've been told you have a different kind of cf, what do you mean?? what have you been told? And the part about you being a genny pig, was that your choice? Sorry about all the questions I'm just curious. If there's anything you want to know about me feel free to ask.
 

Alessia2dance

New member
Hi Anika, I'm glad you wrote me back. My name is Alessia just for your reference I know what you mean about your room being a hospital room...lol. I hate all the meds we have to take and carry around with us, pain in our butts. I do my vest once a day, pulmozyme, duo neb, albuterol, pancrease mt-16, tobi, advair, allegra d, adeks, & flonase.

When you said you've been told you have a different kind of cf, what do you mean?? what have you been told? And the part about you being a genny pig, was that your choice? Sorry about all the questions I'm just curious. If there's anything you want to know about me feel free to ask.
 

Alessia2dance

New member
Hi Anika, I'm glad you wrote me back. My name is Alessia just for your reference I know what you mean about your room being a hospital room...lol. I hate all the meds we have to take and carry around with us, pain in our butts. I do my vest once a day, pulmozyme, duo neb, albuterol, pancrease mt-16, tobi, advair, allegra d, adeks, & flonase.

When you said you've been told you have a different kind of cf, what do you mean?? what have you been told? And the part about you being a genny pig, was that your choice? Sorry about all the questions I'm just curious. If there's anything you want to know about me feel free to ask.
 

jay

New member
my name is jay and i am 23. i have cf too.. i feel like you do. so far i have been okay. my body has fought infections on its own but i am feeling this disease progress. i watched my brother suffer with cf until his death
 

jay

New member
my name is jay and i am 23. i have cf too.. i feel like you do. so far i have been okay. my body has fought infections on its own but i am feeling this disease progress. i watched my brother suffer with cf until his death
 

jay

New member
my name is jay and i am 23. i have cf too.. i feel like you do. so far i have been okay. my body has fought infections on its own but i am feeling this disease progress. i watched my brother suffer with cf until his death
 

jay

New member
to the question you asked about killing myself if i knew i would get into heaven anyway........?????? hell yeah before i suffer or make anyone else suffer too. in reality i would never kill myself cause i believe that is the one and only sin that is not forgiven... i want heaven for my eternal home..
 

jay

New member
to the question you asked about killing myself if i knew i would get into heaven anyway........?????? hell yeah before i suffer or make anyone else suffer too. in reality i would never kill myself cause i believe that is the one and only sin that is not forgiven... i want heaven for my eternal home..
 

jay

New member
to the question you asked about killing myself if i knew i would get into heaven anyway........?????? hell yeah before i suffer or make anyone else suffer too. in reality i would never kill myself cause i believe that is the one and only sin that is not forgiven... i want heaven for my eternal home..
 

carebear18

New member
hi everyone!

After reading everyone's posts I was thinking about it and felt I had to reply. CF does definately stink and can be overwhelming to deal with at times. I always had it in my mind as I was growing up that when I hit 18 i was a gone-er but I am still here. We don't know when we are going to get very sick..I know we can tell when we are progressing but we shouldn't spend o much time focusing on when and what we are going to lose, but on what we have left!

I was very depressed for a bit after graduation when everyone was planning futures and choosing schools or jobs. I had applied and been accpeted to a lot of universities but I just felt there was no point in spending so much time getting an education. I figured by the time I finish the program I wanted to take ( 6 years of university to be a teacher) that I will most likely be too sick to do so.

Then I realized, CF has already taken so much from me ( and all of us) physically and I cannot let it steal my dreams. I know it sounds corney but hey something had to get me out of my 'funk'! <img src="i/expressions/face-icon-small-tongue.gif" border="0">

It is very possible that I may get too sick to even finish the program or when I do I may not be well enough to teach but there is no point just sitting around waiting to die. Our lifespan is pretty good now (32?) so I am gonna give it my best shot and just let time tell what will happen. My case is kinda bad and my brother was losing his battle in his young twenties, until he had a tx so maybe my case will be similar but it is so encouraging though to see that people on here have happy full lives, with children and husbands and the whole nine yards!

Coping isn't 100% mind set..i know we need to be realistic and care for ourselves, however, if we do not have a somewhat positive outlook it will only make matters worse..it can affect the way you treat yourself and your body, and face it we need to do whatever we can for these "old rigs", even though our lil ol' lungs ( and other guts) let us down sometimes.

Anyways Thanks For Listening to Me Blab on,

kari <img src="i/expressions/heart.gif" border="0">
 

carebear18

New member
hi everyone!

After reading everyone's posts I was thinking about it and felt I had to reply. CF does definately stink and can be overwhelming to deal with at times. I always had it in my mind as I was growing up that when I hit 18 i was a gone-er but I am still here. We don't know when we are going to get very sick..I know we can tell when we are progressing but we shouldn't spend o much time focusing on when and what we are going to lose, but on what we have left!

I was very depressed for a bit after graduation when everyone was planning futures and choosing schools or jobs. I had applied and been accpeted to a lot of universities but I just felt there was no point in spending so much time getting an education. I figured by the time I finish the program I wanted to take ( 6 years of university to be a teacher) that I will most likely be too sick to do so.

Then I realized, CF has already taken so much from me ( and all of us) physically and I cannot let it steal my dreams. I know it sounds corney but hey something had to get me out of my 'funk'! <img src="i/expressions/face-icon-small-tongue.gif" border="0">

It is very possible that I may get too sick to even finish the program or when I do I may not be well enough to teach but there is no point just sitting around waiting to die. Our lifespan is pretty good now (32?) so I am gonna give it my best shot and just let time tell what will happen. My case is kinda bad and my brother was losing his battle in his young twenties, until he had a tx so maybe my case will be similar but it is so encouraging though to see that people on here have happy full lives, with children and husbands and the whole nine yards!

Coping isn't 100% mind set..i know we need to be realistic and care for ourselves, however, if we do not have a somewhat positive outlook it will only make matters worse..it can affect the way you treat yourself and your body, and face it we need to do whatever we can for these "old rigs", even though our lil ol' lungs ( and other guts) let us down sometimes.

Anyways Thanks For Listening to Me Blab on,

kari <img src="i/expressions/heart.gif" border="0">
 

carebear18

New member
hi everyone!

After reading everyone's posts I was thinking about it and felt I had to reply. CF does definately stink and can be overwhelming to deal with at times. I always had it in my mind as I was growing up that when I hit 18 i was a gone-er but I am still here. We don't know when we are going to get very sick..I know we can tell when we are progressing but we shouldn't spend o much time focusing on when and what we are going to lose, but on what we have left!

I was very depressed for a bit after graduation when everyone was planning futures and choosing schools or jobs. I had applied and been accpeted to a lot of universities but I just felt there was no point in spending so much time getting an education. I figured by the time I finish the program I wanted to take ( 6 years of university to be a teacher) that I will most likely be too sick to do so.

Then I realized, CF has already taken so much from me ( and all of us) physically and I cannot let it steal my dreams. I know it sounds corney but hey something had to get me out of my 'funk'! <img src="i/expressions/face-icon-small-tongue.gif" border="0">

It is very possible that I may get too sick to even finish the program or when I do I may not be well enough to teach but there is no point just sitting around waiting to die. Our lifespan is pretty good now (32?) so I am gonna give it my best shot and just let time tell what will happen. My case is kinda bad and my brother was losing his battle in his young twenties, until he had a tx so maybe my case will be similar but it is so encouraging though to see that people on here have happy full lives, with children and husbands and the whole nine yards!

Coping isn't 100% mind set..i know we need to be realistic and care for ourselves, however, if we do not have a somewhat positive outlook it will only make matters worse..it can affect the way you treat yourself and your body, and face it we need to do whatever we can for these "old rigs", even though our lil ol' lungs ( and other guts) let us down sometimes.

Anyways Thanks For Listening to Me Blab on,

kari <img src="i/expressions/heart.gif" border="0">
 
OMG! There are so many reasons to live! <b>GOD</b> loves you! I know for a fact! Whenever you get down, read the Bible! Also, remember that there is ALWAYS a reason to live, if you think about it! Like...
1. Your best friend
2. your girl friend or the girl you like
3. GOD
4. your family
5. your friends
and so many more! God put you on this Earth for a reason. Maybe so you can be an actor, singer, scientest, teacher, astronaut, writer... anything you dream of! So go out there, catch your dream and run with it! GOD LOVES YOU!

*The struggles make you stronger, and the changes make you wise*
"I love this crzy tragic, sometimes almost magic awful <i>beautiful</i> life*
~Mary Lindsey 12 years w/ CF~
 
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