why me!!!!!!!!!!!

laulau555 · Jul 13, 2008

Hey Dani,
Trust me, we all know what you're going through and its tough. Its hard when you are constantly having to take pills and do treatments and cough and have trouble breathing when you see all these people around you just living their life regularly. Its important not to get yourself down about it because not only are you becoming vulnerable to CF but being depressed about it can contribute to your sickness. Its important to find someone to talk to, ANYONE, even if its someone on this board you've never met, or a journal, or your mom, dad, a friend. Don't bottle it up, you aren't any less of a person because cf is so discouraging, thats part of what we all have to go through when we live with this disease. Take time to cry, to feel bad, but then wake up the next day and enjoy the sunshine and appreciate the fact that you are alive. THAT is why God gave us this disease, cause we appreciate our life 100 times more and if it takes a life-threatening disease to gain that appreciation, then so be it. WE"RE STRONG!

laulau555 · Jul 13, 2008

Hey Dani,
Trust me, we all know what you're going through and its tough. Its hard when you are constantly having to take pills and do treatments and cough and have trouble breathing when you see all these people around you just living their life regularly. Its important not to get yourself down about it because not only are you becoming vulnerable to CF but being depressed about it can contribute to your sickness. Its important to find someone to talk to, ANYONE, even if its someone on this board you've never met, or a journal, or your mom, dad, a friend. Don't bottle it up, you aren't any less of a person because cf is so discouraging, thats part of what we all have to go through when we live with this disease. Take time to cry, to feel bad, but then wake up the next day and enjoy the sunshine and appreciate the fact that you are alive. THAT is why God gave us this disease, cause we appreciate our life 100 times more and if it takes a life-threatening disease to gain that appreciation, then so be it. WE"RE STRONG!

laulau555 · Jul 13, 2008

Hey Dani,
Trust me, we all know what you're going through and its tough. Its hard when you are constantly having to take pills and do treatments and cough and have trouble breathing when you see all these people around you just living their life regularly. Its important not to get yourself down about it because not only are you becoming vulnerable to CF but being depressed about it can contribute to your sickness. Its important to find someone to talk to, ANYONE, even if its someone on this board you've never met, or a journal, or your mom, dad, a friend. Don't bottle it up, you aren't any less of a person because cf is so discouraging, thats part of what we all have to go through when we live with this disease. Take time to cry, to feel bad, but then wake up the next day and enjoy the sunshine and appreciate the fact that you are alive. THAT is why God gave us this disease, cause we appreciate our life 100 times more and if it takes a life-threatening disease to gain that appreciation, then so be it. WE"RE STRONG!

laulau555 · Jul 13, 2008

Hey Dani,
Trust me, we all know what you're going through and its tough. Its hard when you are constantly having to take pills and do treatments and cough and have trouble breathing when you see all these people around you just living their life regularly. Its important not to get yourself down about it because not only are you becoming vulnerable to CF but being depressed about it can contribute to your sickness. Its important to find someone to talk to, ANYONE, even if its someone on this board you've never met, or a journal, or your mom, dad, a friend. Don't bottle it up, you aren't any less of a person because cf is so discouraging, thats part of what we all have to go through when we live with this disease. Take time to cry, to feel bad, but then wake up the next day and enjoy the sunshine and appreciate the fact that you are alive. THAT is why God gave us this disease, cause we appreciate our life 100 times more and if it takes a life-threatening disease to gain that appreciation, then so be it. WE"RE STRONG!

laulau555 · Jul 13, 2008

Hey Dani,
 Trust me, we all know what you're going through and its tough. Its hard when you are constantly having to take pills and do treatments and cough and have trouble breathing when you see all these people around you just living their life regularly. Its important not to get yourself down about it because not only are you becoming vulnerable to CF but being depressed about it can contribute to your sickness. Its important to find someone to talk to, ANYONE, even if its someone on this board you've never met, or a journal, or your mom, dad, a friend. Don't bottle it up, you aren't any less of a person because cf is so discouraging, thats part of what we all have to go through when we live with this disease. Take time to cry, to feel bad, but then wake up the next day and enjoy the sunshine and appreciate the fact that you are alive. THAT is why God gave us this disease, cause we appreciate our life 100 times more and if it takes a life-threatening disease to gain that appreciation, then so be it. WE"RE STRONG!

Kuzimm09 · Jul 18, 2008

Well this is a pretty old topic, but I felt compelled to respond anyway as I am sure that this is something that many are dealing with, I know I do very often.

I certainly go through my ups and downs with God, my times of disbelief even. I have spent many sleepless unhappy nights wandering the streets outside UCLA literally yelling at God (though not to loud, many of the houses there in Bel Air and Beverly Hills have security signs that say "armed response" and I certainly didn't want to deal with that on top of everything else <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

I reject the notion that a loving god would give us this disease to "make us appreciate life more," or so we can "appreciate breathing" more than the average Joe. A loving parent wouldn't deprive their child of food for a few days so they would appreciate the food that they have. How could opposite logic be applied to a loving god?

Anyway I know I still struggle with the idea of a loving god in this world, where I feel so much hurt and I see so much hurt in everyone else around me.

One thing that has helped immensely is a book written by a man named Bill Williams. He was a fairly well known video game designer when those were just starting to come into homes, think Atari. He eventually decided to get a masters of divinity and write a book, he died shortly after is publication because of his CF. The book is called "Naked Before God: The Return of a Broken Disciple."

He deals with a lot of the ideas and issues people have brought up here. Its basically quasi fictional, the main character is based a good deal on Bill, and is a fictional disciple of Jesus. It takes place in the modern day. It will really get you thinking, and because Bill had CF it really helped me to relate and understand his frustration and venting.

I recommend that book for everyone, it has a lot of ideas in it and you may disagree with some, but it will definitely speak to you in one way or another.

In the mean time I highly recommend yelling, I have found it very therapeutic. <img src="i/expressions/face-icon-small-happy.gif" border="0">

Kuzimm09 · Jul 18, 2008

Well this is a pretty old topic, but I felt compelled to respond anyway as I am sure that this is something that many are dealing with, I know I do very often.

I certainly go through my ups and downs with God, my times of disbelief even. I have spent many sleepless unhappy nights wandering the streets outside UCLA literally yelling at God (though not to loud, many of the houses there in Bel Air and Beverly Hills have security signs that say "armed response" and I certainly didn't want to deal with that on top of everything else <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

I reject the notion that a loving god would give us this disease to "make us appreciate life more," or so we can "appreciate breathing" more than the average Joe. A loving parent wouldn't deprive their child of food for a few days so they would appreciate the food that they have. How could opposite logic be applied to a loving god?

Anyway I know I still struggle with the idea of a loving god in this world, where I feel so much hurt and I see so much hurt in everyone else around me.

One thing that has helped immensely is a book written by a man named Bill Williams. He was a fairly well known video game designer when those were just starting to come into homes, think Atari. He eventually decided to get a masters of divinity and write a book, he died shortly after is publication because of his CF. The book is called "Naked Before God: The Return of a Broken Disciple."

He deals with a lot of the ideas and issues people have brought up here. Its basically quasi fictional, the main character is based a good deal on Bill, and is a fictional disciple of Jesus. It takes place in the modern day. It will really get you thinking, and because Bill had CF it really helped me to relate and understand his frustration and venting.

I recommend that book for everyone, it has a lot of ideas in it and you may disagree with some, but it will definitely speak to you in one way or another.

In the mean time I highly recommend yelling, I have found it very therapeutic. <img src="i/expressions/face-icon-small-happy.gif" border="0">

Kuzimm09 · Jul 18, 2008

Well this is a pretty old topic, but I felt compelled to respond anyway as I am sure that this is something that many are dealing with, I know I do very often.

I certainly go through my ups and downs with God, my times of disbelief even. I have spent many sleepless unhappy nights wandering the streets outside UCLA literally yelling at God (though not to loud, many of the houses there in Bel Air and Beverly Hills have security signs that say "armed response" and I certainly didn't want to deal with that on top of everything else <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

I reject the notion that a loving god would give us this disease to "make us appreciate life more," or so we can "appreciate breathing" more than the average Joe. A loving parent wouldn't deprive their child of food for a few days so they would appreciate the food that they have. How could opposite logic be applied to a loving god?

Anyway I know I still struggle with the idea of a loving god in this world, where I feel so much hurt and I see so much hurt in everyone else around me.

One thing that has helped immensely is a book written by a man named Bill Williams. He was a fairly well known video game designer when those were just starting to come into homes, think Atari. He eventually decided to get a masters of divinity and write a book, he died shortly after is publication because of his CF. The book is called "Naked Before God: The Return of a Broken Disciple."

He deals with a lot of the ideas and issues people have brought up here. Its basically quasi fictional, the main character is based a good deal on Bill, and is a fictional disciple of Jesus. It takes place in the modern day. It will really get you thinking, and because Bill had CF it really helped me to relate and understand his frustration and venting.

I recommend that book for everyone, it has a lot of ideas in it and you may disagree with some, but it will definitely speak to you in one way or another.

In the mean time I highly recommend yelling, I have found it very therapeutic. <img src="i/expressions/face-icon-small-happy.gif" border="0">

Kuzimm09 · Jul 18, 2008

Well this is a pretty old topic, but I felt compelled to respond anyway as I am sure that this is something that many are dealing with, I know I do very often.

I certainly go through my ups and downs with God, my times of disbelief even. I have spent many sleepless unhappy nights wandering the streets outside UCLA literally yelling at God (though not to loud, many of the houses there in Bel Air and Beverly Hills have security signs that say "armed response" and I certainly didn't want to deal with that on top of everything else <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

I reject the notion that a loving god would give us this disease to "make us appreciate life more," or so we can "appreciate breathing" more than the average Joe. A loving parent wouldn't deprive their child of food for a few days so they would appreciate the food that they have. How could opposite logic be applied to a loving god?

Anyway I know I still struggle with the idea of a loving god in this world, where I feel so much hurt and I see so much hurt in everyone else around me.

One thing that has helped immensely is a book written by a man named Bill Williams. He was a fairly well known video game designer when those were just starting to come into homes, think Atari. He eventually decided to get a masters of divinity and write a book, he died shortly after is publication because of his CF. The book is called "Naked Before God: The Return of a Broken Disciple."

He deals with a lot of the ideas and issues people have brought up here. Its basically quasi fictional, the main character is based a good deal on Bill, and is a fictional disciple of Jesus. It takes place in the modern day. It will really get you thinking, and because Bill had CF it really helped me to relate and understand his frustration and venting.

I recommend that book for everyone, it has a lot of ideas in it and you may disagree with some, but it will definitely speak to you in one way or another.

In the mean time I highly recommend yelling, I have found it very therapeutic. <img src="i/expressions/face-icon-small-happy.gif" border="0">

Kuzimm09 · Jul 18, 2008

Well this is a pretty old topic, but I felt compelled to respond anyway as I am sure that this is something that many are dealing with, I know I do very often.
 
 I certainly go through my ups and downs with God, my times of disbelief even. I have spent many sleepless unhappy nights wandering the streets outside UCLA literally yelling at God (though not to loud, many of the houses there in Bel Air and Beverly Hills have security signs that say "armed response" and I certainly didn't want to deal with that on top of everything else <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).
 
 I reject the notion that a loving god would give us this disease to "make us appreciate life more," or so we can "appreciate breathing" more than the average Joe. A loving parent wouldn't deprive their child of food for a few days so they would appreciate the food that they have. How could opposite logic be applied to a loving god?
 
 Anyway I know I still struggle with the idea of a loving god in this world, where I feel so much hurt and I see so much hurt in everyone else around me.
 
 One thing that has helped immensely is a book written by a man named Bill Williams. He was a fairly well known video game designer when those were just starting to come into homes, think Atari. He eventually decided to get a masters of divinity and write a book, he died shortly after is publication because of his CF. The book is called "Naked Before God: The Return of a Broken Disciple."
 
 He deals with a lot of the ideas and issues people have brought up here. Its basically quasi fictional, the main character is based a good deal on Bill, and is a fictional disciple of Jesus. It takes place in the modern day. It will really get you thinking, and because Bill had CF it really helped me to relate and understand his frustration and venting.
 
 I recommend that book for everyone, it has a lot of ideas in it and you may disagree with some, but it will definitely speak to you in one way or another.
 
 In the mean time I highly recommend yelling, I have found it very therapeutic. <img src="i/expressions/face-icon-small-happy.gif" border="0">

tarheel · Jul 23, 2008

hey- yea. I'm going through that now too. like Ive pretty much stopped going to church, but not JUST because of cf but a whole bunch of other stuff too. I ask all the same questions- and more. I started questioning god when I was five. But I was always made to understand CF wasn't going away and there were a lot of things I had to do because of it. My mom says questioning makes our faith stronger. As for me- I dont really know. But what I do know is never questioning god, like anything else, would be blind obediance, which isnt a good thing either. I agree with a quote I've come across from a holocaust survivor on his faith
"I know I'm going to heaven because I've already been through hell."

tarheel · Jul 23, 2008

hey- yea. I'm going through that now too. like Ive pretty much stopped going to church, but not JUST because of cf but a whole bunch of other stuff too. I ask all the same questions- and more. I started questioning god when I was five. But I was always made to understand CF wasn't going away and there were a lot of things I had to do because of it. My mom says questioning makes our faith stronger. As for me- I dont really know. But what I do know is never questioning god, like anything else, would be blind obediance, which isnt a good thing either. I agree with a quote I've come across from a holocaust survivor on his faith
"I know I'm going to heaven because I've already been through hell."

tarheel · Jul 23, 2008

hey- yea. I'm going through that now too. like Ive pretty much stopped going to church, but not JUST because of cf but a whole bunch of other stuff too. I ask all the same questions- and more. I started questioning god when I was five. But I was always made to understand CF wasn't going away and there were a lot of things I had to do because of it. My mom says questioning makes our faith stronger. As for me- I dont really know. But what I do know is never questioning god, like anything else, would be blind obediance, which isnt a good thing either. I agree with a quote I've come across from a holocaust survivor on his faith
"I know I'm going to heaven because I've already been through hell."

tarheel · Jul 23, 2008

hey- yea. I'm going through that now too. like Ive pretty much stopped going to church, but not JUST because of cf but a whole bunch of other stuff too. I ask all the same questions- and more. I started questioning god when I was five. But I was always made to understand CF wasn't going away and there were a lot of things I had to do because of it. My mom says questioning makes our faith stronger. As for me- I dont really know. But what I do know is never questioning god, like anything else, would be blind obediance, which isnt a good thing either. I agree with a quote I've come across from a holocaust survivor on his faith
"I know I'm going to heaven because I've already been through hell."

tarheel · Jul 23, 2008

hey- yea. I'm going through that now too. like Ive pretty much stopped going to church, but not JUST because of cf but a whole bunch of other stuff too. I ask all the same questions- and more. I started questioning god when I was five. But I was always made to understand CF wasn't going away and there were a lot of things I had to do because of it. My mom says questioning makes our faith stronger. As for me- I dont really know. But what I do know is never questioning god, like anything else, would be blind obediance, which isnt a good thing either. I agree with a quote I've come across from a holocaust survivor on his faith
 "I know I'm going to heaven because I've already been through hell."

tarheel · Jul 23, 2008