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I have Respirtech vest system for sale I just listed on eBay. We don't need it anymore and I can't figure out how to find a new home for it easily. If you are interested or know someone that is here is the link...

I don't know what to say, or even if it should be said; but I & my family are reeling from the realities that are hard to swallow. We were told 2 weeks ago that we were/had run out of options to prolong the life of Micah's liver and we needed to start considering our plans as he is not a...

exactly a month since last discharge and only 12 days since stopping IV's and Micah is back inpatient as of an hour ago. Looks like ammonia levels are climbing again (not as bad as last time, but higher than when we got out). REALLY tired of CF at the moment!

Well, I figured it was time to post an update after several very long weeks and some changes in our plans as a family. In mid-Jan Micah was hospitalized for severe liver complications related to CF. We spent 3 days in the PICU, and then a week in the hospital. There were several scary points...

Micah is being admitted to the PICU. Was acting 'off' and we suspected liver like earlier this fall, but ER got his O2 stats in the mid-80's.Respiration & heart rate both elevated. Even with O2 can't get them up to acceptable levels so did labs & chest x-ray and admitting to PICU until they...

Ok, I have had an idea in mind for some time for a tattoo to get when I get into medical school.<br><br>It is intended to blend medicine w/CF; and while I know what I want I suck as an artist.<br><br>Wondering if anyone on here has an artistic touch and would be interested in collaborating on...

I can't say that I'm ever fond of CF, but today of all days in the last few years I'm just fed up with this d*mn disease.<br><br>For those of you familiar with M's story, he has not had a good progression and went through a lot early in life.  However, things had been stable for some...

<P>M was just inpatient the start of May, and did 2 weeks of IV abx (Fortaz & Merepenem).  Admit was initially for a GI/Liver issue but the started IV's anyways for a lingering cough.</P> <P> </P> <P>He was scheduled for an outpatient GI scope again to follow up from before and his CF Dr wanted...

Ok, just venting for a minute.  I can't believe that everything I've done in the last 18 months to prepare for getting into medical school comes down to tomorrow morning. At 8AM tomorrow I take a single, 5.5hr test, the results of which I won't have for a month and those results will most likely...

Well, to start out if you don't know I have worked for the last 11 years as a manager for a couple large Japanese companies and my wife is a stay-at-home mom to our 8 kids. Over the last few months we have been rethinking where we have ended up and how it compares to both of our dreams and...

Ok, I'm looking to see if anyone else has heard or experienced this. We have a 10mth old with Chicken Pox. When we called the CF center about any risk to M the response was not what I expected. The founder of the CF center in Atlanta stated that while they don't know why normally chicken pox...

From Brad a few minutes ago: <div class="FTQUOTE"><begin quote>I really don't know how to say this, but thought you all should know. Lauren passed away in the hospital yesterday afternoon. </end quote></div>

Well, we are in the hospital and not sure our status. We have been seeing some GI related issues for a couple of weeks, which led to M starting to puke up G-tube feedings yesterday (never has had ANY issues). His GI sent us to the ER and instructed for them to call her partner who was on-call...

I recently asked my friends' little girl what she wanted to be when she grows up. She said she wanted to be President some day. Both of her parents, liberal Democrats, were standing there, so I asked her, 'If you were President what would be the first thing you would do?' She replied, 'I'd...

Ok, so CF'rs use dozens of antibiotics oral & IV. Here is a test: I'll start with the ones my son takes. Each person has to add one or more they have taken NOT already in the list.

ADVICE FROM A RETIRED HUSBAND: It is important for men to remember that, as women grow older, it becomes harder for them to maintain the same quality of housekeeping as when they were younger. When you notice this, try not to yell at them. Some are oversensitive, and there's nothing worse than...

I just have to brag for a minute. My son w/hemophilia must have IV infusions 2x/week to replace the clotting factor that is missing. We normally alternate between his port & perphial depending on his moode. Well last night, at the ripe old age of 8, my son started an IV in his own hand for...

We just returned from a trip to Disney. Here is a link to my trip report with tons of pictures from the trip... <a target=_blank class=ftalternatingbarlinklarge href="http://www.disboards.com/showthread.php?t=2092028&page=3">Wish Trip Report</a>

I just wanted to be the first to post a topic in a new forum <img src="i/expressions/face-icon-small-smile.gif" border="0"> Also, I think this is a great idea, thank you Jeanne!

The following was found posted very low on a refrigerator door. Dear Dogs and Cats: The dishes with the paw prints are yours and contain your food. The other dishes are mine and contain my food. Placing a paw print in the middle of my plate and food does not stake a claim for it becoming...