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  1. R

    Sinus Cough

    I know you are probably about ready to lose your mind about now, especially if she is doing the constant coughing. I have been there more times than I care to admit. My daughter has had about 6 sinus surgeries and she is now 8 years old. Most of her problems were between the ages of 2-6...
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    symptoms

    I just wanted to get some feedback from everyone. My daughter has been on IV antibiotics 5 weeks out of the last 8. She has grown over 100,000 stenotrophomonas. The first two weeks of antibiotics she was on Tobra, Ceftazadime?? and Timentin. She got better and her PFTS were back over 100%...
  3. R

    symptoms

    I just wanted to get some feedback from everyone. My daughter has been on IV antibiotics 5 weeks out of the last 8. She has grown over 100,000 stenotrophomonas. The first two weeks of antibiotics she was on Tobra, Ceftazadime?? and Timentin. She got better and her PFTS were back over 100%...
  4. R

    SYMPTOMS

    I just wanted to get some feedback from everyone. My daughter has been on IV antibiotics 5 weeks out of the last 8. She has grown over 100,000 stenotrophomonas. The first two weeks of antibiotics she was on Tobra, Ceftazadime?? and Timentin. She got better and her PFTS were back over 100%...
  5. R

    SYMPTOMS

    I just wanted to get some feedback from everyone. My daughter has been on IV antibiotics 5 weeks out of the last 8. She has grown over 100,000 stenotrophomonas. The first two weeks of antibiotics she was on Tobra, Ceftazadime?? and Timentin. She got better and her PFTS were back over 100%...
  6. R

    Cystic Fibrosis Research

    Moriah, My name is Teri and I have an 8 year old daughter diagnosed at 6 weeks old. Feel free to email me, I will be glad to answer your questions. My email is Tdim5@aol.com. Teri
  7. R

    Cystic Fibrosis Research

    Moriah, My name is Teri and I have an 8 year old daughter diagnosed at 6 weeks old. Feel free to email me, I will be glad to answer your questions. My email is Tdim5@aol.com. Teri
  8. R

    New

    I know this is a little off the subject but I am a mother. My daughter is 8 and has CF. I have been on this sight for about one month and I cannot tell you how much it has helped me to just listen to other people and respond where appropriate. I hope soooooo much that my daughter will have...
  9. R

    New

    I know this is a little off the subject but I am a mother. My daughter is 8 and has CF. I have been on this sight for about one month and I cannot tell you how much it has helped me to just listen to other people and respond where appropriate. I hope soooooo much that my daughter will have...
  10. R

    School setting - para pro needs help

    Shel, I am a parent. My daughter is 8 and has CF. I just want to say how refreshing it is to hear how concerned you are and how you would like to be educated. Our school is very understanding and accomodating with her CF. I agree with Jarrod. I would talk to the student to see how they...
  11. R

    School setting - para pro needs help

    Shel, I am a parent. My daughter is 8 and has CF. I just want to say how refreshing it is to hear how concerned you are and how you would like to be educated. Our school is very understanding and accomodating with her CF. I agree with Jarrod. I would talk to the student to see how they...
  12. R

    cf

    CRISTA, YOU MAY WANT TO POSE YOUR QUESTION ON THE ADULT OR FAMILY SIGHT. I AM SURE YOU WILL GET PLENTY OF FEEDBACK REGARDING G TUBE PLACEMENT. TERI 8YO DAUGHTER WCF
  13. R

    cf

    CRISTA, YOU MAY WANT TO POSE YOUR QUESTION ON THE ADULT OR FAMILY SIGHT. I AM SURE YOU WILL GET PLENTY OF FEEDBACK REGARDING G TUBE PLACEMENT. TERI 8YO DAUGHTER WCF
  14. R

    question...

    I just have to tell you that I love your attitude about CF. Keep this up and you are going to have a very wonderful life. I love it when people tell it like it is. My daughter has CF and is 8 years old. She has the same type of attitude. She sat in a chair in front of her whole second grade...
  15. R

    question...

    I just have to tell you that I love your attitude about CF. Keep this up and you are going to have a very wonderful life. I love it when people tell it like it is. My daughter has CF and is 8 years old. She has the same type of attitude. She sat in a chair in front of her whole second grade...
  16. R

    A mom feeling alone and isolated

    wow, what a story! That is about the sweetest thing I have ever heard. I guess there is hope although sometimes it is hard to remember. Our children really are blessings. Thanks for the pep talk. I will be in touch. Teri
  17. R

    A mom feeling alone and isolated

    wow, what a story! That is about the sweetest thing I have ever heard. I guess there is hope although sometimes it is hard to remember. Our children really are blessings. Thanks for the pep talk. I will be in touch. Teri
  18. R

    hi new to this forum

    My daughter Rachel will be 9 in January and would love to have a CF pen pal especially from Australia. She is coming off of 4 out of the last 6 weeks of being in the hospital for IV antibiotics. I have often thought it would be nice for her to have other CF kids to talk to. Her email is...
  19. R

    hi new to this forum

    My daughter Rachel will be 9 in January and would love to have a CF pen pal especially from Australia. She is coming off of 4 out of the last 6 weeks of being in the hospital for IV antibiotics. I have often thought it would be nice for her to have other CF kids to talk to. Her email is...
  20. R

    Daycares vs staying home--

    My daughter is 8 years old and she was in daycare from the time she was 2 until she started kindergarten. I am a single mom so I had no choice. I eventually got a job at her daycare which was the best of both worlds. I saved on daycare costs, made money and was able to keep an eye on her and...
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