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A care coordinator is usually with a non-government agency who basically orchestrates care for patients with all different levels of care. We first learned of a ours when our son was diagnosed. We knew right away that it would be impossible to even pay for the co-pays on meds so started...

A care coordinator is usually with a non-government agency who basically orchestrates care for patients with all different levels of care. We first learned of a ours when our son was diagnosed. We knew right away that it would be impossible to even pay for the co-pays on meds so started...

A care coordinator is usually with a non-government agency who basically orchestrates care for patients with all different levels of care. We first learned of a ours when our son was diagnosed. We knew right away that it would be impossible to even pay for the co-pays on meds so started...

A care coordinator is usually with a non-government agency who basically orchestrates care for patients with all different levels of care. We first learned of a ours when our son was diagnosed. We knew right away that it would be impossible to even pay for the co-pays on meds so started...

I think it depends on what state you live in. Although Medicaid is federally funded, it's up to each state to determine how to administer their funds, within certain guidelines. Ask your case manager or, even better, if you have a care coordinator, ask them about 'catastrophic' coverage or any...

I think it depends on what state you live in. Although Medicaid is federally funded, it's up to each state to determine how to administer their funds, within certain guidelines. Ask your case manager or, even better, if you have a care coordinator, ask them about 'catastrophic' coverage or any...

I think it depends on what state you live in. Although Medicaid is federally funded, it's up to each state to determine how to administer their funds, within certain guidelines. Ask your case manager or, even better, if you have a care coordinator, ask them about 'catastrophic' coverage or any...

I think it depends on what state you live in. Although Medicaid is federally funded, it's up to each state to determine how to administer their funds, within certain guidelines. Ask your case manager or, even better, if you have a care coordinator, ask them about 'catastrophic' coverage or any...

I think it depends on what state you live in. Although Medicaid is federally funded, it's up to each state to determine how to administer their funds, within certain guidelines. Ask your case manager or, even better, if you have a care coordinator, ask them about 'catastrophic' coverage or any...

Thanks for the encouragement! I hadn't considered being able to stay in there with him. I will call ahead for sure. And, I just want to say to Paula, your son is AMAZING for going through an MRI without sedation! I just recently had one done on my brain and needed enough meds to put an...

Thanks for the encouragement! I hadn't considered being able to stay in there with him. I will call ahead for sure. And, I just want to say to Paula, your son is AMAZING for going through an MRI without sedation! I just recently had one done on my brain and needed enough meds to put an...

Thanks for the encouragement! I hadn't considered being able to stay in there with him. I will call ahead for sure. And, I just want to say to Paula, your son is AMAZING for going through an MRI without sedation! I just recently had one done on my brain and needed enough meds to put an...

Thanks for the encouragement! I hadn't considered being able to stay in there with him. I will call ahead for sure. And, I just want to say to Paula, your son is AMAZING for going through an MRI without sedation! I just recently had one done on my brain and needed enough meds to put an...

Thanks for the encouragement! I hadn't considered being able to stay in there with him. I will call ahead for sure. And, I just want to say to Paula, your son is AMAZING for going through an MRI without sedation! I just recently had one done on my brain and needed enough meds to put an...

L's scheduled for a CT Scan in 3 weeks and I've really gotten it in my head tht it should be without sedation. Am I crazy? Part of me thinks that he would be better off not ever knowing what's coming or what just happened. But I also know that he's been "sensitive" towards anesthesia before...

L's scheduled for a CT Scan in 3 weeks and I've really gotten it in my head tht it should be without sedation. Am I crazy? Part of me thinks that he would be better off not ever knowing what's coming or what just happened. But I also know that he's been "sensitive" towards anesthesia before...

L's scheduled for a CT Scan in 3 weeks and I've really gotten it in my head tht it should be without sedation. Am I crazy? Part of me thinks that he would be better off not ever knowing what's coming or what just happened. But I also know that he's been "sensitive" towards anesthesia before...

L's scheduled for a CT Scan in 3 weeks and I've really gotten it in my head tht it should be without sedation. Am I crazy? Part of me thinks that he would be better off not ever knowing what's coming or what just happened. But I also know that he's been "sensitive" towards anesthesia before...

L's scheduled for a CT Scan in 3 weeks and I've really gotten it in my head tht it should be without sedation. Am I crazy? Part of me thinks that he would be better off not ever knowing what's coming or what just happened. But I also know that he's been "sensitive" towards anesthesia before...

Each year around the anniversary of our son's diagnosis, I seem to spend even more time reflecting on the sheer enormity of effort his clnic team puts in to keeping him healthy. Humbling, inspiring, generous, overwhelmed, greatful: the list of words used to describe how we feel in relation to...