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Thanks everyone! We were supposed to get the mic-key in June, but there are no appointments available with our GI doc before July to do the peg pull, which is why it's taking so long. And I don't want a Fellow doing her peg pull, so I guess we'll just have to wait for our doc. <br /> <br />

I thought it was a very long time too! I'll give them a call tomorrow. We're really sick of the long tube. Thanks everyone! Elise

I thought it was a very long time too! I'll give them a call tomorrow. We're really sick of the long tube. Thanks everyone! Elise

I thought it was a very long time too! I'll give them a call tomorrow. We're really sick of the long tube. Thanks everyone! Elise

My daughter still has the long tube after getting a g-tube placement in March. Our GI doc said that Addie shouldn't swim until she gets the mic-key button because the salt water or chlorine might sting. She won't be getting her button til August, which means an entire summer of no swimming...

My daughter still has the long tube after getting a g-tube placement in March. Our GI doc said that Addie shouldn't swim until she gets the mic-key button because the salt water or chlorine might sting. She won't be getting her button til August, which means an entire summer of no swimming...

My daughter still has the long tube after getting a g-tube placement in March. Our GI doc said that Addie shouldn't swim until she gets the mic-key button because the salt water or chlorine might sting. <br /> <br />She won't be getting her button til August, which means an entire summer of no...

My daughter has cultured it twice (she's four) and we got rid of it both times. She's super healthy, has an incredible immune system and even though the TOBI and CIPRO aren't pleasant, they are incredible at conquering pseudomonas. Don't worry mama, we all go through this. And there are new...

My daughter has cultured it twice (she's four) and we got rid of it both times. She's super healthy, has an incredible immune system and even though the TOBI and CIPRO aren't pleasant, they are incredible at conquering pseudomonas. Don't worry mama, we all go through this. And there are new...

My daughter has cultured it twice (she's four) and we got rid of it both times. She's super healthy, has an incredible immune system and even though the TOBI and CIPRO aren't pleasant, they are incredible at conquering pseudomonas. Don't worry mama, we all go through this. And there are new...

My daughter has cultured it twice (she's four) and we got rid of it both times. She's super healthy, has an incredible immune system and even though the TOBI and CIPRO aren't pleasant, they are incredible at conquering pseudomonas. Don't worry mama, we all go through this. And there are new...

My daughter has cultured it twice (she's four) and we got rid of it both times. She's super healthy, has an incredible immune system and even though the TOBI and CIPRO aren't pleasant, they are incredible at conquering pseudomonas. Don't worry mama, we all go through this. And there are new...

Oh, my heart is broken for this family. What an incredible child.

Oh, my heart is broken for this family. What an incredible child.

Oh, my heart is broken for this family. What an incredible child.

Oh, my heart is broken for this family. What an incredible child.

Oh, my heart is broken for this family. What an incredible child.

My daughter received her g-tube placement March 18th. The first week, she had very little appetite, which I assume is common after having surgery, plus hospital food is not the greatest. The next few weeks, her appetite picked up. She ate than she ever has in the past. We thought, "This is...

My daughter received her g-tube placement March 18th. The first week, she had very little appetite, which I assume is common after having surgery, plus hospital food is not the greatest. The next few weeks, her appetite picked up. She ate than she ever has in the past. We thought, "This is...

My daughter received her g-tube placement March 18th. The first week, she had very little appetite, which I assume is common after having surgery, plus hospital food is not the greatest. The next few weeks, her appetite picked up. She ate than she ever has in the past. We thought, "This is...