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  1. F

    I'm so sad

    Sarah, I know how you feel. We all know how you feel. When our doc called us about a year ago with the news that Addie cultured pseudomonas, it was like Liza said, proof that she had CF. Up until that point we were in a little bit of denial. We kept beating ourselves up about how she got it, the...
  2. F

    I'm so sad

    Sarah, I know how you feel. We all know how you feel. When our doc called us about a year ago with the news that Addie cultured pseudomonas, it was like Liza said, proof that she had CF. Up until that point we were in a little bit of denial. We kept beating ourselves up about how she got it, the...
  3. F

    My Child Resemble a Salt Lick

    My daughter takes the salt shaker, licks her hand and pours it on. When she was an infant, our doctor prescribed salt for her in liquid form. We had to go to a compounding pharmacist and they mixed it for her. My doc felt this was safer than us trying to measure a specific amount of table...
  4. F

    My Child Resemble a Salt Lick

    My daughter takes the salt shaker, licks her hand and pours it on. When she was an infant, our doctor prescribed salt for her in liquid form. We had to go to a compounding pharmacist and they mixed it for her. My doc felt this was safer than us trying to measure a specific amount of table...
  5. F

    My Child Resemble a Salt Lick

    My daughter takes the salt shaker, licks her hand and pours it on. When she was an infant, our doctor prescribed salt for her in liquid form. We had to go to a compounding pharmacist and they mixed it for her. My doc felt this was safer than us trying to measure a specific amount of table...
  6. F

    My Child Resemble a Salt Lick

    My daughter takes the salt shaker, licks her hand and pours it on. When she was an infant, our doctor prescribed salt for her in liquid form. We had to go to a compounding pharmacist and they mixed it for her. My doc felt this was safer than us trying to measure a specific amount of table...
  7. F

    My Child Resemble a Salt Lick

    My daughter takes the salt shaker, licks her hand and pours it on. <br /> <br />When she was an infant, our doctor prescribed salt for her in liquid form. We had to go to a compounding pharmacist and they mixed it for her. My doc felt this was safer than us trying to measure a specific amount...
  8. F

    How old was your child when they got the Vest?

    We got ours at 2 years. But I think we could have gotten it before. I brought it up at our clinic appt, they measured her and said, "Oh yeah, she's more than big enough." It was a tough transition, but after a week of struggle, it just became her daily routine. Some good ways to transition...
  9. F

    How old was your child when they got the Vest?

    We got ours at 2 years. But I think we could have gotten it before. I brought it up at our clinic appt, they measured her and said, "Oh yeah, she's more than big enough." It was a tough transition, but after a week of struggle, it just became her daily routine. Some good ways to transition...
  10. F

    How old was your child when they got the Vest?

    We got ours at 2 years. But I think we could have gotten it before. I brought it up at our clinic appt, they measured her and said, "Oh yeah, she's more than big enough." It was a tough transition, but after a week of struggle, it just became her daily routine. Some good ways to transition...
  11. F

    How old was your child when they got the Vest?

    We got ours at 2 years. But I think we could have gotten it before. I brought it up at our clinic appt, they measured her and said, "Oh yeah, she's more than big enough." It was a tough transition, but after a week of struggle, it just became her daily routine. Some good ways to transition...
  12. F

    How old was your child when they got the Vest?

    We got ours at 2 years. But I think we could have gotten it before. I brought it up at our clinic appt, they measured her and said, "Oh yeah, she's more than big enough." It was a tough transition, but after a week of struggle, it just became her daily routine. <br /> <br />Some good ways to...
  13. F

    Tummy Troubles and Los Angeles

    My question is a two parter: Our daughter Adelaide (2.5w/CF) is severely pancreatic insufficient. She's on the highest dose of enzymes (mixture of Creon and Pancrecarb) and Miralax, and she's still having problems. She was up all night with gas pains and when she does have a bowel movement...
  14. F

    Tummy Troubles and Los Angeles

    My question is a two parter: Our daughter Adelaide (2.5w/CF) is severely pancreatic insufficient. She's on the highest dose of enzymes (mixture of Creon and Pancrecarb) and Miralax, and she's still having problems. She was up all night with gas pains and when she does have a bowel movement...
  15. F

    Tummy Troubles and Los Angeles

    My question is a two parter: Our daughter Adelaide (2.5w/CF) is severely pancreatic insufficient. She's on the highest dose of enzymes (mixture of Creon and Pancrecarb) and Miralax, and she's still having problems. She was up all night with gas pains and when she does have a bowel movement...
  16. F

    Tummy Troubles and Los Angeles

    My question is a two parter: Our daughter Adelaide (2.5w/CF) is severely pancreatic insufficient. She's on the highest dose of enzymes (mixture of Creon and Pancrecarb) and Miralax, and she's still having problems. She was up all night with gas pains and when she does have a bowel movement...
  17. F

    Tummy Troubles and Los Angeles

    My question is a two parter: <br /> <br />Our daughter Adelaide (2.5w/CF) is severely pancreatic insufficient. She's on the highest dose of enzymes (mixture of Creon and Pancrecarb) and Miralax, and she's still having problems. She was up all night with gas pains and when she does have a bowel...
  18. F

    feeding my CF toddler

    Liza, Our kids could snack together. Froggy loves brocolli with lemon. She won't let me put butter or cheese on it, only lemon - so no calories there. She prefers water over juice, and would be thrilled with a meal of salt, brocolli, some dried fruit and maybe a cracker. Ahhh, most parents...
  19. F

    feeding my CF toddler

    Liza, Our kids could snack together. Froggy loves brocolli with lemon. She won't let me put butter or cheese on it, only lemon - so no calories there. She prefers water over juice, and would be thrilled with a meal of salt, brocolli, some dried fruit and maybe a cracker. Ahhh, most parents...
  20. F

    feeding my CF toddler

    Liza, Our kids could snack together. Froggy loves brocolli with lemon. She won't let me put butter or cheese on it, only lemon - so no calories there. She prefers water over juice, and would be thrilled with a meal of salt, brocolli, some dried fruit and maybe a cracker. Ahhh, most parents...
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