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Hi all, I'm writing an essay about being a parent of a kiddo with CF and was wondering if anyone in the CF community remembers what "wonderdrugs" have been introduced as a possible cure, only to be a big disappointment? I remember reading an article when my daughter was first diagnosed that...

Hi all, I'm writing an essay about being a parent of a kiddo with CF and was wondering if anyone in the CF community remembers what "wonderdrugs" have been introduced as a possible cure, only to be a big disappointment? I remember reading an article when my daughter was first diagnosed that...

Liza, Although some girls are VERY proud of their flatulance and poop. I think we both know who I'm talking about. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Sunny: I think all the advice you received was great! Good luck with your new kiddo!

Liza, Although some girls are VERY proud of their flatulance and poop. I think we both know who I'm talking about. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Sunny: I think all the advice you received was great! Good luck with your new kiddo!

Liza, <br /> <br />Although some girls are VERY proud of their flatulance and poop. I think we both know who I'm talking about. <img src="i/expressions/face-icon-small-smile.gif" border="0"> <br /> <br />Sunny: I think all the advice you received was great! Good luck with your new kiddo!

Heather, Congrats on your soon-to-be-here baby! We live in Los Angeles and my daughter was diagnosed and treated at CHLA for five years. However this year we just switched to Miller Childrens. I could not be happier with her care now. They are aggressive and informative, they take the time to...

Heather, Congrats on your soon-to-be-here baby! We live in Los Angeles and my daughter was diagnosed and treated at CHLA for five years. However this year we just switched to Miller Childrens. I could not be happier with her care now. They are aggressive and informative, they take the time to...

Heather, <br /> <br />Congrats on your soon-to-be-here baby! We live in Los Angeles and my daughter was diagnosed and treated at CHLA for five years. However this year we just switched to Miller Childrens. I could not be happier with her care now. They are aggressive and informative, they take...

Hana, Welcome and congratulations on your little girl! Celine is a beautiful name. Everyone on this forum knows how tough the first few months after the diagnosis are, so you're in good company. And know that is does get easier. I promise. Soon you'll look at your daughter and not see CF...

Hana, Welcome and congratulations on your little girl! Celine is a beautiful name. Everyone on this forum knows how tough the first few months after the diagnosis are, so you're in good company. And know that is does get easier. I promise. Soon you'll look at your daughter and not see CF...

Hana, <br /> <br />Welcome and congratulations on your little girl! Celine is a beautiful name. Everyone on this forum knows how tough the first few months after the diagnosis are, so you're in good company. And know that is does get easier. I promise. Soon you'll look at your daughter and not...

Thanks everyone! I so appreciate your help. -Elise

Thanks everyone! I so appreciate your help. -Elise

Thanks everyone! I so appreciate your help. -Elise

My kiddo has a Mic-Key and she always has a little ooze or crust on the sides of her mic-key. I've had her looked at by the docs and they said this is normal and it's not infected. How do you handle the constant crust near the site? We were told not to cover it with gauze to prevent infection...

My kiddo has a Mic-Key and she always has a little ooze or crust on the sides of her mic-key. I've had her looked at by the docs and they said this is normal and it's not infected. How do you handle the constant crust near the site? We were told not to cover it with gauze to prevent infection...

My kiddo has a Mic-Key and she always has a little ooze or crust on the sides of her mic-key. I've had her looked at by the docs and they said this is normal and it's not infected. <br /> <br />How do you handle the constant crust near the site? We were told not to cover it with gauze to...

My daughter just cultured this. It scared the CF crap out of me because it is in the same family as B. Cepacia. Our Pulmonologist said that it is a transient bacteria and has probably already left her body. She also said that it is very receptive to antibiotics, unlike its nasty cousin B...

My daughter just cultured this. It scared the CF crap out of me because it is in the same family as B. Cepacia. Our Pulmonologist said that it is a transient bacteria and has probably already left her body. She also said that it is very receptive to antibiotics, unlike its nasty cousin B...

My daughter just cultured this. It scared the CF crap out of me because it is in the same family as B. Cepacia. Our Pulmonologist said that it is a transient bacteria and has probably already left her body. She also said that it is very receptive to antibiotics, unlike its nasty cousin B...