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  1. B

    CFF and fundraising

    This is kind of a wierd question, but I know alot of people on this site do great strides and other fundraising for CFF so I thought I would ask here. This year was the first year we were involved with Great Strides my daughter was diagnosed with CF 10 months ago. Our team did well we raised...
  2. B

    CFF and fundraising

    This is kind of a wierd question, but I know alot of people on this site do great strides and other fundraising for CFF so I thought I would ask here. <br /> <br />This year was the first year we were involved with Great Strides my daughter was diagnosed with CF 10 months ago. Our team did...
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    Going to Disneyworld!!!

    We just got back from Disneyworld 3 days ago. I have 3 kids 6,4,2 and my 2 year old has CF. She is on oxygen. We had no issues traveling with it or the vest or our multitude of medicines and nebulizer. They have a great Children's hospital in Orlando that is used to dealing with CF issues, I...
  4. B

    Going to Disneyworld!!!

    We just got back from Disneyworld 3 days ago. I have 3 kids 6,4,2 and my 2 year old has CF. She is on oxygen. We had no issues traveling with it or the vest or our multitude of medicines and nebulizer. They have a great Children's hospital in Orlando that is used to dealing with CF issues, I...
  5. B

    Going to Disneyworld!!!

    We just got back from Disneyworld 3 days ago. I have 3 kids 6,4,2 and my 2 year old has CF. She is on oxygen. We had no issues traveling with it or the vest or our multitude of medicines and nebulizer. They have a great Children's hospital in Orlando that is used to dealing with CF issues, I...
  6. B

    Going to Disneyworld!!!

    We just got back from Disneyworld 3 days ago. I have 3 kids 6,4,2 and my 2 year old has CF. She is on oxygen. We had no issues traveling with it or the vest or our multitude of medicines and nebulizer. They have a great Children's hospital in Orlando that is used to dealing with CF issues, I...
  7. B

    Going to Disneyworld!!!

    We just got back from Disneyworld 3 days ago. I have 3 kids 6,4,2 and my 2 year old has CF. She is on oxygen. We had no issues traveling with it or the vest or our multitude of medicines and nebulizer. They have a great Children's hospital in Orlando that is used to dealing with CF issues, I...
  8. B

    San Francisco Clinic

    We also go to the peds clinic at Stanford, but the doctor we see Dr. Milla is actually an adult doctor and does the adult clinic. He is really good. He trained at the program in Minnesota that has one of the best reputations in the country. He is pretty cutting edge and was brought to...
  9. B

    San Francisco Clinic

    We also go to the peds clinic at Stanford, but the doctor we see Dr. Milla is actually an adult doctor and does the adult clinic. He is really good. He trained at the program in Minnesota that has one of the best reputations in the country. He is pretty cutting edge and was brought to...
  10. B

    San Francisco Clinic

    We also go to the peds clinic at Stanford, but the doctor we see Dr. Milla is actually an adult doctor and does the adult clinic. He is really good. He trained at the program in Minnesota that has one of the best reputations in the country. He is pretty cutting edge and was brought to...
  11. B

    San Francisco Clinic

    We also go to the peds clinic at Stanford, but the doctor we see Dr. Milla is actually an adult doctor and does the adult clinic. He is really good. He trained at the program in Minnesota that has one of the best reputations in the country. He is pretty cutting edge and was brought to...
  12. B

    San Francisco Clinic

    We also go to the peds clinic at Stanford, but the doctor we see Dr. Milla is actually an adult doctor and does the adult clinic. He is really good. He trained at the program in Minnesota that has one of the best reputations in the country. He is pretty cutting edge and was brought to...
  13. B

    Vest to tight

    My daughter is 2 and for the last few days has been crying that her vest is to tight. She has not grown at all recently, and it does not feel any different to me, but I realized I do not know how it is supposed to fit and how to tell if it is to tight or not. Any ideas?
  14. B

    Vest to tight

    My daughter is 2 and for the last few days has been crying that her vest is to tight. She has not grown at all recently, and it does not feel any different to me, but I realized I do not know how it is supposed to fit and how to tell if it is to tight or not. Any ideas?
  15. B

    Vest to tight

    My daughter is 2 and for the last few days has been crying that her vest is to tight. She has not grown at all recently, and it does not feel any different to me, but I realized I do not know how it is supposed to fit and how to tell if it is to tight or not. Any ideas?
  16. B

    Vest to tight

    My daughter is 2 and for the last few days has been crying that her vest is to tight. She has not grown at all recently, and it does not feel any different to me, but I realized I do not know how it is supposed to fit and how to tell if it is to tight or not. Any ideas?
  17. B

    Vest to tight

    My daughter is 2 and for the last few days has been crying that her vest is to tight. She has not grown at all recently, and it does not feel any different to me, but I realized I do not know how it is supposed to fit and how to tell if it is to tight or not. Any ideas?
  18. B

    What Would You Do?

    My sister and I have chldren born 6 weeks apart. My sister's son is healthy and my daughter has CF. My daughter has been in and out of the hospital her whole life so fare (she is 2), she is on oxygen and has lots of other CF related issues. Our closest CF care center is 3 hours from our house...
  19. B

    What Would You Do?

    My sister and I have chldren born 6 weeks apart. My sister's son is healthy and my daughter has CF. My daughter has been in and out of the hospital her whole life so fare (she is 2), she is on oxygen and has lots of other CF related issues. Our closest CF care center is 3 hours from our house...
  20. B

    What Would You Do?

    My sister and I have chldren born 6 weeks apart. My sister's son is healthy and my daughter has CF. My daughter has been in and out of the hospital her whole life so fare (she is 2), she is on oxygen and has lots of other CF related issues. Our closest CF care center is 3 hours from our house...
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