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  1. R

    IVF/PGD and pregnant...

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mneville</b></i> We used Dr Mark Hughes from Genesis Genetics in Michigan. He pioneered the CF process and has done hundreds of PGD CF cases. I believe the rate of error is less than 2% esp with our Double Delta case. IVF was covered...
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    Julie, where are you????????????????????????

    You and your husband are an inspiration to me. I hope I am a can experience the joy you have right now. I have been saving up my money since I was 16 for future IVF 23/m
  3. R

    Julie, where are you????????????????????????

    You and your husband are an inspiration to me. I hope I am a can experience the joy you have right now. I have been saving up my money since I was 16 for future IVF 23/m
  4. R

    Julie, where are you????????????????????????

    You and your husband are an inspiration to me. I hope I am a can experience the joy you have right now. I have been saving up my money since I was 16 for future IVF 23/m
  5. R

    trying to empower, and not give limitations of terminal

    There is definitely 2 or 3 or 4 different worlds in the CF community. I read some of these posts and I can't relate to the pain and suffering some people are going through. I was born very fortunate to have only mild Cystic Fibrosis, I have to try to understand where the people with moderate...
  6. R

    trying to empower, and not give limitations of terminal

    There is definitely 2 or 3 or 4 different worlds in the CF community. I read some of these posts and I can't relate to the pain and suffering some people are going through. I was born very fortunate to have only mild Cystic Fibrosis, I have to try to understand where the people with moderate...
  7. R

    trying to empower, and not give limitations of terminal

    There is definitely 2 or 3 or 4 different worlds in the CF community. I read some of these posts and I can't relate to the pain and suffering some people are going through. I was born very fortunate to have only mild Cystic Fibrosis, I have to try to understand where the people with moderate...
  8. R

    End of Life Stuff

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JennifersHope</b></i> I was just wondering what you guys did to make your end of life wishes known. WHo you told what you wanted etc? I know their are health care proxy's and living wills to basically tell the doctor what you want as...
  9. R

    End of Life Stuff

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JennifersHope</b></i> I was just wondering what you guys did to make your end of life wishes known. WHo you told what you wanted etc? I know their are health care proxy's and living wills to basically tell the doctor what you want as...
  10. R

    End of Life Stuff

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JennifersHope</b></i> I was just wondering what you guys did to make your end of life wishes known. WHo you told what you wanted etc? I know their are health care proxy's and living wills to basically tell the doctor what you want as...
  11. R

    Life Without CF

    The last post was me, I always forget to sign in.
  12. R

    Life Without CF

    The last post was me, I always forget to sign in.
  13. R

    Life Without CF

    The last post was me, I always forget to sign in.
  14. R

    Marianne at UPenn

    I called her last week to try to set up an appointment and she has not gotten back to me. Could someone please leave her phone number or her email address. Thank you.
  15. R

    Marianne at UPenn

    I called her last week to try to set up an appointment and she has not gotten back to me. Could someone please leave her phone number or her email address. Thank you.
  16. R

    Marianne at UPenn

    I called her last week to try to set up an appointment and she has not gotten back to me. Could someone please leave her phone number or her email address. Thank you.
  17. R

    Half Marathon

    The above post was me, forgot to sign in. I just took a 3 hour nap.
  18. R

    Half Marathon

    I just finished the Philly Distance Run today. Anyone else take part in this? I have not gotten my official time yet. I had to stop for a couple minutes because I did not eat enough bananas beforehand and I cramped up. (I am still cramping as I type). But other than that, I did not have a...
  19. R

    Excercise instead of CPT

    I do both, Nebulizer 2x daily and Vest once. I also run 2-3 times a week, 4 miles. I lift weights the days I don't run.
  20. R

    the new guy

    RE: the new guy Amy, you were just diagnosed 6 months ago or at 6 months old? I guess you have very mild cf with those pft's?
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