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Sorry, I forgot to mention that my son uses Hypertonic in his peri nebulizer. Bill

Hi: I can't give you everything you need, but offer this. My son, 46 with CF was not doing well this past October. I flew from VA to TX as soon as I could get a flight. Arrived on Sat. 10/22, was met at the airport by my son, who was using an IV while he was waiting for me. The next day, I...

Hi: I can't give you everything you need, but offer this. My son, 46 with CF was not doing well this past October. I flew from VA to TX as soon as I could get a flight. Arrived on Sat. 10/22, was met at the airport by my son, who was using an IV while he was waiting for me. The next day, I...

I'm a father of a 46year old male with CF. I heard about airborne last fall, before I had to fly to Texas to be with my son who was having problems. I bought it and used it for my flight down (from VA). I personnaly didn't have any problems. Help???? I mentioned it to my wife and my son and...

I'm a father of a 46year old male with CF. I heard about airborne last fall, before I had to fly to Texas to be with my son who was having problems. I bought it and used it for my flight down (from VA). I personnaly didn't have any problems. Help???? I mentioned it to my wife and my son and...

Babyjaden2004, My wife and I had 2 children with CF. Before, during and after they were growing up, my wife and I both smoked. I personnally smoked for 40 years. My wife very close to the same amount of years. I cannot begin to tell you what we might have done to their lungs. In our house...

Barbara: My son (46) has CF and I have spent the last 6 weeks in TX trying to help him get throuh a tough time. He was admitted to the hospital 10/23 and the very first night his respiratory person and I got talking. One of the subjects was the use of a percusser massager (?). She was very...

Emily I'm an old man, who happened to have 2 children with CF. When they were diagnosed (aged 3 & 1), we were told they would never live to enter public school. My son (the 1 yr old), supposedly had the worst case. My daughter died at age 18. My son is still alive at age 46. Who knows when...

When she was very young (I think between 1 & 3 yrs), my daughter started having rectal prolapse fairly frequently. After having numerous problems, she had, as I recall, what was termed minor surgery. The surgery did not take long, did not seem to bother her emotionally, and most important, the...

<img src="i/expressions/face-icon-small-happy.gif" border="0"> Jen I'm a father of a 46 year old male w/cf. 12 hours after he was born, he had major surgery involving some large bowel removal and a colostomy. The colostomy lasted 6 months before it was reversed (end to end). During this 6...

Rick I am a father to a 46 year old male w/cf. Over the years, I occassionally find some things I believe my son should try/look into. However, since parents never know anything, he has yet tried any item. Try going to www.glyco-facts.com. I recently read something there, that I found...

RE:Living or Dying with Cystic Fibrosis, The Parents Fight for Life, The State Enforces Death. Hi, I'm Bill, father of a "young man" with CF. When I started reading your message, I found a number of similarities to my son's birth. Immediately after his birth, the doctors noted some type of...

My son w/cf (age 46) has used Spiriva for close to a year now. As far as I know, he continues to use it, but (1) Does not think it has helped much, if at all. (2) Has had NO side affects at all. Me, is another story. I have bad COPD and was on a nebulizer, with 2 meds, 4 times a day. I...

<img src="i/expressions/face-icon-small-confused.gif" border="0"> Re: number change. While reading a PTC Therapeutics press release recently, there was a brief mention "About CF". They mentioned that it was a genetic disease affecting approximately 60,000 people worldwide. This is the...

When our children were first diagnosed, we were told that they would never enter public school. As you said the times have changed quite frequently. I think the last I heard it was 33. My son will be 46 November 1st and is still hanging on. Trys to play golf once a week and has a full time...

Morgan, My wife and I had 2 children, a daughter, Diane and a son, Bill Jr. They were both diagnosed with CF when Diane was about 3 and Bill about 1. At the time they were diagnosed, we were told that Bill had the worst case. Bill hardly had any problems at all for a long, long time. Played...

<img src="i/expressions/face-icon-small-happy.gif" border="0">Shelly, Received a phone call from my son a couple hours ago. NO rain, max winds approximately 40MPH, lost power - not sure when they will get it back. Neighbor has generator and is sharring it with my son, for fridge and nebulizer...

<img src="i/expressions/face-icon-small-confused.gif" border="0">I'm in Virginia, but my son (with CF) lives in Houston (Spring). He elected to ride it out, against my wife and my desires. His aunt lives in San Antonio and he could have gone there. In fact, he is going to a "Hurricane party"...

<img src="i/expressions/face-icon-small-confused.gif" border="0">I'm in Virginia, but my son (with CF) lives in Houston (Spring). He elected to ride it out, against my wife and my desires. His aunt lives in San Antonio and he could have gone there. In fact, he is going to a "Hurricane party"...

My wife and I had 2 children with CF, who were diagnosed aroung 1960. At that time we were told that there were approximately 30,000 people with CF. My daughter died at age 18, however my son is still living at age 45 (almost 46). Over the years there have been great strides in medication and...