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joanne thats amazing, 17 years? whoa from info i have gathered i was told 10 years is about the longest post tx, but 17 sounds amazing, maybe 10 was lobar, i dont rememeber, so im curious most the tx i have known the cfers of were usually lobar, some cataveric but higher percent were lobar...

i had hi levels of aspergillus back when i was 19, added prednisone for 3-6 months cant remember but levels went way down, havent had trouble with it since and its been 14 years...dunno what caused the spike, but i know its treatable and for the most part nothing to be overly worried about...gl

great site diane thanks ill take time and read through it...

Hello, I have been asked to thikn about getting listed for transplant since i was 24, i am now 33 and just started the process of being listed. I have known many cystics in my life, both as good friends and some as just in house friends (hospital that is). I have seen roughly 3 good friends and...

i never went myself was to worried about "getting something" ...lol..anyway i believe it was stopped here back in 89-91 somewhere in there when sepatia, and MCA ? or something like that started to transfer around, was about the same time they stopped rooming us with other cf'er as impatients...

from my experience the smell is worse when infection is spreading or your sick, and yeah the best thing to do is just keep mints onhand and take them regularly, i use the strips as well as they are very powerful, if im in public i might take 1 every hour or so, reall depends on how much im...

rob that was a very well written statement, wish i had continued college like i wanted, unforntunately at that time i was going in and out of the hospital to much to worry about finals, and papers and such. anyway yeah my friends treat me the same way, they see me eat alot and never gain weight...

im older 33 but aim name is ELXSpeedWagon and i love to drift <img src="i/expressions/face-icon-small-smile.gif" border="0"> although i have fwd <img src="i/expressions/face-icon-small-sad.gif" border="0"> lol...

btw i love your quote in your sig, evanescence rocks <img src="i/expressions/face-icon-small-wink.gif" border="0">

eek i just replyed to this in another post <img src="i/expressions/face-icon-small-smile.gif" border="0"> read the other 1 please...lolpaul

kate, the coughing is good for us cfers, we need to clear our lungs as best we can, if she just started doing tobi or pulmazyme then she will be coughing more then normal due to the thinner then normal mucus, again this is a good thing. Its great to hear your concern and about the eating thing...

i had acne bad when i was 16 but never took treatment for it, then it slowed down some but i would still get acne from chocolate or oily foods, about 5 years ago or so doctor put me on doxycline, been on it ever since and now at 33 im pretty much acne free although i can still get it every once...

Emily, from your first statement you didnt seem like the type of person that would quit going to church simply because someone judged you. Yeah i know you were young and im sure it was your mothers decision, but normallly you learn how to be who you are from your parents. Anyway don't let that 1...

All i can say is its great to see you on this site, already involved in your childs health. Researching and learning is the best way to give your child a happy life. I'm 32 and when i was diagnosed my parents decided to not have ny more children, if this is your first dont let this stop you from...

just some 411 from an older cf'er, i, 32 and have had so much trouble with my teeth these last 5 or so years, so if you decide to goto the junkfood diet like i did from 12-22 or so be suure to stay on those dentist appointments and make sure you are taking all the necessary vitamins, dentist...

Happy Birthday !!!!!

Emily you are outstanding. At near 33 ive been through quit alot ups and down, and ive been the person hiding it, and the person not hiding it. Ive had roughly 50+ hospitalizations for antibiotics, and never once did my friends not know where I was. But, being judged by strangers that are...

christine i too miss some of my cf friends, being hospitalized twice a year from 12-21 at childrens hospital of losangeles, I gained many close cf friends. But after transfering to usc it wasnt the same atmosphere, and was hard to build relationships with the other cfers. Im about to have my...