My window clings came yesterday and they are so cute! My family has seen them and they all asked me to get them for them for Christmas. Just wanted you to know that they are a legit company and the product is great, just incase anyone else was thinking about getting anything from her. Enjoy...
Wow! Can I please imagine that Ry also beckoned for friends and family of CFers to visit that wine seller, and if so, is there any chance there is some yummy grape juice tucked away down there? I myself cannot indulge in the wine while the ship sinks. I've been sober 10 years but a nice cold...
I forgot to log in again. That was me asking for this topic to be locked. I didn't want you to think I was hiding behind an anonymous name. Again, I beg, lock this topic and support one another on the subject of CYSTIC FIBROSIS. I guess I shall prepare for any "back lash" this post may sling...
Did you want pictures of something we have drawn or created, or a picture we took of something such as for a photography class? I'm not sure if you meant pictures of us or our family.
Have you tried symethicone (simethicone)? It is for gas and they make it in infant drops so you can just use the dropper to squeeze some into the side of her mouth and she should swallow it right down. They have it at every store near the other gas aide products. Raquel used to get like that...
Austin had his polyp surgery about 4 years ago. I remember one of the doctors saying that they happen more often in males with CF. We were just talking about it and Austin doesn't remember much about the surgery. He does remember that he had horrible migraines and was scared to death when his...
I've been reading these posts and trying to understand the mutations. I have a friend I went to highschool with that works for Quest Diagnostics and I wrote him a quick email to ask him for some information. He's a bio chemist. I'm so confused about this...and very curious. If I hear...
Umm....Austin wanted me to ask if he can use a glass bowl and water and microwave it? If he can...how long, long enough to boil it? He usually washes it with VERY hot water and lets it air dry.
There is a 5 year difference between Austin & Raquel. Raquel adores her big brother and he would do anything to keep her safe. I've been very blessed. I know that she is scared for her brother. I'm sure there are times when she has felt that he is getting more things because he is terminally...
I don't know...Austin was really sick a lot when we lived near the Monterey Bay in Pacific Grove, CA. I don't remember ever having to take him to the hospital for pneumonia or ear infections after we moved up here to Redding, CA. Pacific Grove was wet all the time and up here, the summers are...
I've been exactly where you are. *hugs* Hang in there and you really have found a great source of honest and to the point help here at this forum.
13 years ago when Austin was diagnosed, the sweat test was fairly simple. They just put a solution (I have no idea what it was) on his upper arm...
OMG! I love it! I bought one of those and a ribbon window cling. I can't wait to get them! I showed it to Austin and he loves it. I also emailed Sue and asked her if I could shrink the picture of the little boy window cling and add it to my signature with a link to her site beside it. I...
Well, I had no idea I was a carrier and no idea that my son's father was a carrier. I had never even heard of CF. Ray, Austin's dad, swears that there is no one with CF on his side of the family and there are no family members on my side that have CF either. I'm sure there is someone among...
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