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  1. H

    When will they learn?

    There are LOTS of misconceptions out there - confusion too. But, although I know it to be true, it is hard to believe that ANYBODY, let alone people in the health care field could NOT even have HEARD of CF. I've been re-re-reading The Womanly Art of Breastfeeding and it even mentions...
  2. H

    warmer climate better?

    It really is a toss-up. I think you have to think of your personal needs. I personally get cold easily, but living in the South (as I do) is hard on me because of the oppressively hot summers and the high humidity much of the year. Humidity can be troublesome because of the mold and flourishing...
  3. H

    Was anyone born with a mild case of CF and still has a mild case as a teenager or adult?????

    RE:Was anyone born with a mild case of CF and still has a mild case as a teenager or adult????? My case actually didn't appear to be mild at my diagnosis, but I did very well after being started on therapies. I've been considered as having amild case for a long time now. I'm 26 and my case is...
  4. H

    Questions for the Females

    Somewhere around 12 I started. I wasn't fully developed until 16 or so. I never got to a full B, sort of an A and 3/4... HA! (That was when my weight was at its peak). Now I'm a good solid A.
  5. H

    homeopathic/ natural remedies

    I have had excellent results with using herbs for specific instances (like urinary tract, sinus and yeast infections). I've also had really good results using Reliv nutritional supplement (my experience with Reliv is recorded on <A...
  6. H

    pregnancy

    Hi! I'm HollyCatheryn, to whom Mockingbird was referring. My site (<A href="http://www.geocities.com/MurrensNatureMama">www.geocities.com/MurrensNatureMama</A>) does have lots of info on it - clinical stuff as well as personal stories. It took my husband and I a while to conceive also, but when...
  7. H

    Alternative healing practices

    The focus topic of the current issue of the CF Roundtable is "Non-Conventional Medicines and Treatments." There are some interesting articles in there about what people with CF have tried and what has worked and how. I recommend subscribing to the CF Roundtable. The focus topics are open to...
  8. H

    Vaccine for Psuedomonas????

    It is my understanding that this vaccine is only useful in preventing or delaying the infection of a person with Pseudomonas, but is not helpful for someone who has already been colonized. I am not positive about this, but that is my understanding. Paula, yes, vaccines have side effects and...
  9. H

    CF and adoption

    I know two parents with CF who adopted - one from China, one from Russia. You can look into CPS, it seems that though they are thorough there are fewer restrictions. China is one of the strictest countries from which to adopt. Much will dpend on your own personal health, rather than a simple...
  10. H

    Trouble conceiving

    My husband and I tried for a year and I was actually diagnosed infertile during that time, but we did conceive without interventions. You can read about my experience, some reasons why you may be having difficulty and some things you can do about it on the website Julie mentioned above (<A...
  11. H

    yeast infections

    Look up <A href="http://www.geocities.com/MurrensNatureMama/wellness">www.geocities.com/MurrensNatureMama/wellness</A> There are several recommendations for yeast infection/overgrowth. In addition to the ones currently listed (I haven't had a chance to add these yet), you can douche with a tea...
  12. H

    does anyone else feel that zithromax doesn't do much?

    My docs have been pressuring me about starting Zithromax. I've been stalling because I don't like the idea of taking an antibiotic I don't need and my PFTs seem to have gone up a bit over the last year without taking it. So, I looked up the research on it.A couple of things didn't impress me...
  13. H

    Vaccine for Psuedomonas????

    I have read about this also. I believe it to be credible. I tend to be pretty cautious when it comes to vaccines, but here is my thought. As a person with CF, if I didn't already have Pseudomonas, I'd probably get the vaccine. BUT, I would cut out some of the other unnecessary vaccines to make...
  14. H

    Weight Gain On Non-Milk Diet

    I went dairy-free for a while. I, too, was having gut problems and I was doing elimination stuff. I already had cut out wheat when I decided to gut out dairy. I've since been able to go back on it on a limited basis (certain amounts of certain kinds). Here's what worked for me:1) Reliv shakes. I...
  15. H

    Just out of curiosity...........

    The three longest stays in my life (that I recall) were my diagnosis (2-3 weeks), my first hospitalization for tune-up (10 days) and "the biggie" when everything went wrong all at once (5 weeks). Other than that they've all been a week or less. Usually 48-72 hours. They start my meds, check...
  16. H

    Acid Reflux

    I now have severe GERD, but I did not as an infant or young child. I did not develop reflux until I was an adolescent. I haven't ever known anyone to be diagnosed with CF because of this, but I certainly wouldn't rule it out. I will say that the pancreas creates three products for the body...
  17. H

    To any mother with CF

    Choices are key. If something isn't working for you, try something else. Because of our trial and error and finding out what works for us, I didn't experience the new-baby exhaustion most mothers experience. Be flexible. Plan ahead. Try not to think just of what works today, but about what will...
  18. H

    Women w/CF delivering Baby

    Here are just a few suggestions. You can find more at <A href="http://www.geocities.com/MurrensNatureMama/childbirth">www.geocities.com/MurrensNatureMama/childbirth</A>.1) stay at home as long as possible - labor tends to slow down once you get to the hospital, usually because you get tense and...
  19. H

    To any mother with CF

    Hi Butterflidust! Now is a really good time to be looking around for information because there is now more available than ever before. Most mothers you will find had good health during and after pregnancy. Some mothers like myself are actually healthier during and after pregnancy than before...
  20. H

    Breastfeeding?

    I know of a couple of moms who didn't post to that thread whose children have done very well on breastmilk. You can email me at <A href="mailto:jaloughlin3@sbcglobal.net">jaloughlin3@sbcglobal.net</A> and I'd be happy to pass on your info to them so you can ask questions - since they have been...
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