Search results

  1. S

    Apps for iPod or phones

    Thanks Swedishstar84 just got the app.
  2. S

    Apps for iPod or phones

    Thanks Swedishstar84 just got the app.
  3. S

    Does your text run off the page in some posts/threads?

    Thank you for sharing!
  4. S

    Does your text run off the page in some posts/threads?

    Thank you for sharing!
  5. S

    Left over goo

    Well hydrated, Mucinex, Hts, and exercise works for me but it is a never ending task. Goo luck!
  6. S

    Left over goo

    Well hydrated, Mucinex, Hts, and exercise works for me but it is a never ending task. Goo luck!
  7. S

    New Cayston Uses and Existing users possible delays and shortage! Read here!

    MsPeleiAmour, Go to Cayston.Com and print form so you Dr. Can fill out the medical necessity form, easy form the nurse can do and explain the situation. Gilead has a record of all your purchases, so changing pharmacy should not be a problem. Good luck. I have talked with Gilead today, it was...
  8. S

    New Cayston Uses and Existing users possible delays and shortage! Read here!

    MsPeleiAmour, Go to Cayston.Com and print form so you Dr. Can fill out the medical necessity form, easy form the nurse can do and explain the situation. Gilead has a record of all your purchases, so changing pharmacy should not be a problem. Good luck. I have talked with Gilead today, it was...
  9. S

    Cayston shortage???

    Hello SicklyhatED, I order from CF Pharmacy also. The told me the same thing. I like you have ordered 2 rounds in the last 6 months. I have emailed, called both pharmacy and manf. Of Cayston, after being busy with them this morning, got call from CF Services Pharmacy; after all the dust cleared...
  10. S

    Cayston shortage???

    Hello SicklyhatED, I order from CF Pharmacy also. The told me the same thing. I like you have ordered 2 rounds in the last 6 months. I have emailed, called both pharmacy and manf. Of Cayston, after being busy with them this morning, got call from CF Services Pharmacy; after all the dust cleared...
  11. S

    Anyone from MS here?

    Hello sunshine39656 I livein Florence, Ms. I use a pulmonologist in Jackson. We have a C F clinic at UMU for peds. And adults. We're do you live and where do get your care.
  12. S

    Anyone from MS here?

    Hello sunshine39656 I livein Florence, Ms. I use a pulmonologist in Jackson. We have a C F clinic at UMU for peds. And adults. We're do you live and where do get your care.
  13. S

    Inhaling NAC aka MUCOMYST

    I have used mucomyst for 51 yrs. still alive at age 63. Used HTS 3% since 2003. Good luck!
  14. S

    Inhaling NAC aka MUCOMYST

    I have used mucomyst for 51 yrs. still alive at age 63. Used HTS 3% since 2003. Good luck!
  15. S

    Can somebody give me some answers, please!

    Keely, sorry you are having a tough time. I use 3% HTS, one thing that I sugget strongly is to be well hydrated before you use it. It takes me about a hour in the A.M drinking plenty of fluids befor I start my neb. rx. Getting the mucous thin so it will come up and out! My fev 1 is 31%; but it...
  16. S

    Can somebody give me some answers, please!

    Keely, sorry you are having a tough time. I use 3% HTS, one thing that I sugget strongly is to be well hydrated before you use it. It takes me about a hour in the A.M drinking plenty of fluids befor I start my neb. rx. Getting the mucous thin so it will come up and out! My fev 1 is 31%; but it...
  17. S

    Is there a way to gain strength back and not need oxygen help wolst exercising?

    My resting sat run 97-98, heart rate 63-66. When I do treadmill, 16 min mile grade of 4.5 for 2 miles, sats drop to 87-89 with out O2 assist. Doc wants me to keep sats above 90, so I use demand flow 4 liters, sats run 90-93. heart rate 125-130with O2 and above exercise. Only use O2 with...
  18. S

    Is there a way to gain strength back and not need oxygen help wolst exercising?

    My resting sat run 97-98, heart rate 63-66. When I do treadmill, 16 min mile grade of 4.5 for 2 miles, sats drop to 87-89 with out O2 assist. Doc wants me to keep sats above 90, so I use demand flow 4 liters, sats run 90-93. heart rate 125-130with O2 and above exercise. Only use O2 with...
  19. S

    who's over 50?

    Gonna be 64 in 21 days. Diagnosed at 12 yrs. of age.
  20. S

    who's over 50?

    Gonna be 64 in 21 days. Diagnosed at 12 yrs. of age.
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