Search results

I usually try to have solidarity and support others living with CF regardless of their personal opinions, but if anyone with CF is dumb enough to base their treatment regimen on the crackpot ramblings of a widely discredited *VETERINARIAN*, they're going to get what's coming to them sooner or later.

As usual, CFJeff is pushing pseudoscience. Here's all anyone needs to know about Wallach: he's a VETERINARIAN who thinks CF can be cured by diet. He's also widely regarded in the legitimate medical community as a quack and a fraud. Even his supporters have to stretch the truth to the breaking...

Fortaz is a great antibiotic. It's generally well-tolerated. If you're nebbing it, the taste/smell can be an issue, but it never bothered me when I've done it that way. For me (your mileage may vary due to your specific bugs and their specific sensitivities), Fortaz is a fantastic drug. Makes my...

No. CF cannot be cured in the prenatal stage. Once your parents DNA has combined to form an embryo (you), you have their genes. Stop pushing this woo on desperate sick people. The man you're quoting is a VETERINARIAN.

For years, I'd cultured Pseudomonas and MRSA. I've now had 3 cultures without Pseudomonas and my last culture didn't have MRSA either, but had "rare yeast" too with no other abnormal airway flora. This is the first time I cultured it. My doctor is not concerned at all and is, in fact, extremely...

The problem you'll run into with nebbed antibiotics is that there's only two that are approved (Tobi and Cayston) and only a few more that have extensive data for off-label use (Colistin, Fortaz, Gentamicin, to a much lesser degree Meropenem); the rest are a total shot in the dark as to 1) if...

The trials were a complete success and Lumacaftor met all its endpoints. It will be to market in 2015. I have a friend who is on the combination of Lumacaftor and Kalydeco. Despite the numbers quoted by Vertex (those ARE just averages, afterall), he experienced a ~10% increase in lung function...

Lots of options for it. Ceftriaxone, Ceftazidime, Cefepime, Ampicilin/Sulbactam, Cipro/Levoquin, clarithromycin or azithromycin, etc.

This is a much more important drug (for those who have mutations it works with) than pulmozyme. This may "only" raise FEV1 by a few points, but it seems to hold it there longterm, rather than with pulmozyme or an antibiotic: a short term increase in FEV1 that, over months or years, starts to...

Update: Drinking more than a gallon of water per day and taking Mucinex in addition to albuteral every 4ish hours and hypersal. Jeez, talk about thinning out the mucous. It's like I'm coughing up slightly thicker water at this point instead of the usual jelly! Feeling much better in general...

Resistances do come and go, though they are a lot more likely to stick around if you're constantly being treated by a certain antibiotic, of course. Bacteria divide really quickly and lots of mutations are introduced into their genome. One time a few years ago, my Pseudomonas was resistant to...

I had an exacerbation recently, too. I have PA and MRSA, so the doctor put me on Levaquin for the PA and Rifampicin for the MRSA. Cleared my mucous right up! Right now (tonight is my last dose of both) I'm spitting up clear mucous with white bits floating in it. When I first wake up in the...

A few weeks ago, I noticed the telltale signs of needing to go on additional antibiotics - brown/yellow/green (it's a color, I swear) mucous, rattles, shortness of breath. Luckily, I caught it just as it became noticeable. Doctor put me on 500mg Levaquin and 300mg Rifampicin for 14 days, then...

"Streaks" of blood are totally normal and just result from irritation more than anything. HTS notoriously causes "steaking" in a lot of people. Even minor hemoptysis isn't cause for concern unless, as others have said, the volume of blood exceeds 4oz. Never had any out-and-out hemoptysis...

Haha, you're welcome! To everyone else, I'm sorry if my rather passionate response to Cfquack73 bordered on the disrespectful, but the absolute fact of that matter is that many, many of us would not even be here to have this conversation if it wasn't for the very science that Cfquack73 rails...

| quack quack quack quack quack

Disclaimer to Jeff Warren's post above: Dr. Joel Wallach is a discredited, notorious quack who is a VETERINARIAN and who has absolutely no formal training in the field of pulmonary medicine, human medicine, Cystic Fibrosis, etc. Anything he has to say about anything beyond spaying and...

edit: double post

I've been posting here for years, but never introduced myself. I'm Seth. I'm 29. I'm a (stuff I get paid for) veterinary technician, web developer, musician, freelance writer, amateur luthier, (stuff I don't get paid for) skeptic, atheist, socialist, geek, gamer, etc. In a very happy...

GOOD DAY, sir! http://www.youtube.com/watch?v=Ii26Iwiqfvs