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Haha, Strawberry, a large group of people on here apparantely thought I was a boy named Colin for my first few months on here. For the record, I'm a girl named Coll, short for Colleen

Let me count... 1,2,3,4, 5, 6, 7, 8, 9, 10, 11, 12, 13, 14, 15 times. Yeah 15.

Anyone want to come into the chat now?

Nicole- I love the Clash too... Anyway my username comes from the play "Rent". I don't know if anyone here has seen it or heard the music. It's about bohemian/artist-type people with AIDS (sounds like a downer I know, but its amazing-- if you ever have the oppurtunity to, see it!), and some of...

Hmm... at the moment, Vienna by Billy Joel, Sunday Morning by Maroon 5, Winding Road by Bonnie Somerville, and Out Loud by Dispatch are my favorite. All time faves include Bruce Springsteen, Rent, Everclear, Red Hot Chilli Peppers. I basically like all types of music, with the exception of rap.

A mass is the Catholic equivalent to a 'service' in a non-Catholic Church. It is basically what Catholics call worship.

I suggested this awhile ago to someone else, and I don't know if it would work for you too (your son may be a little young), but maybe you could go to the store with your son and choose a special video that he can watch only while doing treatments. It would make them see less like a restrictive...

Thank you everyone. *smiles, slightly embarassed* <img src="i/expressions/face-icon-small-smile.gif" border="0">. Indeed I am 15, almost 16. I am pretty mature for my age, which I partially attribute to being an only child (around adults as company since I was pretty young) and also to CF, which...

Ahh that random naked man is so scary! How traumatizing. For the record, when I'm in the hospital I am BYOE- bring your own enzymes. I always bring my own, since sometimes the pharmacy doesn't carry my brand, and also because I nosh all day, and take more than they usually write a prescription...

I realize I'm not in my 20s or Jarod or Emily, but I've definitely had my fair share of tune ups (I lost count awhile ago :frown<img src="i/expressions/face-icon-small-wink.gif" border="0">. I've done IVs both ways- at home and what they call 'in house' (in the hospital). When I do them at home...

Standing up for yourself is so important, and there is a way to do it while still being polite. One time, they drew bloods off my PICC for a non-essential test. As you may or may not know, each time you draw blood of a PICC there is a risk of infection in the line, or clotting etc., but my...

Being prompt about overnight IVs and knowing when it will beep is great-- if you come in right before it beeps it's great. I had a nurse once who had a watch with multiple alarm-type things and she'd set them for each kids meds so no beeping happened unless there was an emergency- it was great...

I had my first tune up at 5. Mine too consist of what everyone else mentioned, though I did not get a PICC until a hospitalization when I was 8, when my veins got worse. My hospital is pretty good about having fun events. I was in around the holidays (though not for Christmas, I got out just...

Also, even if the state includes CF in its newborn screening, the blood tests they run likely do not check for all mutations. There are over 1000 CF mutations, testing for all wouldn't be cost effective for the state (although in an ideal world, the health of babies would be more important...

Maybe we could chose a set time to all meet in the chat room. I don't know with everyone's time differences what would be best for everyone, how about we post ideal times/days of the week? Include your time zone so we can figure that out too.

Lindsey- that's bizarre that they woke you up then to be weighed! Sometimes I don't get why they do vitals in the middle of the night. Brandi- Once I got to high school, they let me take my enzymes on my own, since our lunch is 22 minutes long (including time to get to class from lunch!), I'd...

I think CFers are more prone to infection post TX because of the sinuses, which can sometimes drip into the lungs and cause trouble. I may be wrong, but this is the impression I've gotten. Joanne is much more knowledgable on this than me though, so I defer to her!

As far as numbers go, I'm pretty sure between 40-60 is what's called 'borderline', above 60 is considered positive, and below 40 is negative. If a test is in the borderline area, or very close to it, the doctors will likely want to do it again (as they should, and if for some reason they don't...

Jenny, I hate that! I'm like, must the trash be emptied during sleeping hours? They're actually pretty good about it at my hospital now. One thing I also find annoying are the overzealous breakfast tray people. They'll come in at 8am with your tray announcing "Breakfast!" while you are clearly...