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    Hospital Stories/Rude People Stories

    Definitely. They almost always blow if I STOP continuous drip IVs. If they get an IV started and my nurse is slow to get on the case about hanging a fluids bag, I'm on her case- I'm not losing an IV if I can help it! Haha.
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    Hospital Stories/Rude People Stories

    On another note, I hate hospital staff who act like I'm a weirdo/baby because my mom still stays with me every single night I'm in the hospital. I don't care that I'm almost 16! At home, it's just me and my mom, so I can't imagine a night without her! Also, since it's just us, she has her...
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    Hospital Stories/Rude People Stories

    Lindsey- In terms of IVs and PICCs you sound just like me! They tell me I have rolling veins also. I refuse to get PICCs anywhere but IR-- even there now though, they are having more trouble placing them. I also have to get peripherals before PICCs-- I'm lucky if they last a day! I remember...
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    How does cf spread?

    Thanks for the compliment Julie. I think CF tends to mature people emotionally in a way. Something about growing up with it. Here's a semi random thought, but since you mentioned always signing your name- why not register? You certainly contribute a lot to the forum, and it seems to be...
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    Hospital Stories/Rude People Stories

    I was just talking with Emily, and we were comparing stories about various hospitalizations, which led to how sometimes people can make rude comments about your cough, size, etc. in relation to CF. It was a pretty good laugh to reminisce and compare our stories (even if they were infinitely...
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    How does cf spread?

    Julie, While I agree the only way to learn is to ask questions, this question borders on ridiculous. With 5 seconds of effort it takes to type the words 'cystic fibrosis' on google, and the other minute or so to read the basic blurb about CF, you would see that it is 'genetic'. I think it is...
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    Clinical Studies

    Colleen-- That's an awful story! I've had a few enemas, and lets just say they weren't plesant- I can't imagine multiple enemas in a short time frame, PLUS everything else you mentioned! How old you have to be to participate in a study varies between studies. I was in the Tobi study at around...
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    SMOKING in Public Places

    In New York City, we have ozone alert days, primarily in the summer.
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    After Reading This, I Wondered...

    I read this today in a book of presidential facts I have (it was actually a Uncle John's Bathroom Reader Plunges Into the Presidency book, but its listed as a nonfiction/historical book), and after I read it, I wondered if Teddy Roosevelt could have possibly had a mild case of CF. That would be...
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    Diagnosis, I want your details!

    Colleen! Another Colleen! I go by Coll though-- I don't know anyone else named Colleen in my area and age range- there is one Coleen at my school, but the one L spelling doesn't count <img src="i/expressions/face-icon-small-wink.gif" border="0">
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    SMOKING in Public Places

    I live in New Jersey, where all pretty much all restaurants have a no smoking section. Smoking on the street doesn't matter much here because we drive everywhere anyway. In New York City, where I go very often, smoking is banned in all restaurants and bars, so now my main problem is in the...
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    What to eat to gain weight

    I just wanted to second what Emily said. I have struggled desperately with my weight for a few years now. I have a G-Tube, and it has been somewhat helpful but frankly I've been fairly dissapointed in it (if I am healthy, I gain weight very easily, it slips off even with tube feedings as I begin...
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    Med alert bracelets

    Did you find them online? If so, do you mind posting a link to the site? Thanks!
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    I'm doing a school project on CF

    Physical limitations vary greatly within the disease. Some people can do everything a non-CFer can; others can't function without oxygen-- this is a progressive disease after all. Treatmens also vary, but generally consist of inhaled bronchodilators, antibiotics, physical therapy to loosen...
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    feeding through a tube,,, need some info please

    I place my tube myself, its painless. In addition to what Maria said about NG Tubes, I heard that they can sometimes cause excess mucus production and inflammation-- two things CFers do NOT need LOL.
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    Diagnosis, I want your details!

    Yep, Mom you didn't even get to hold me before I went off to surgery <img src="i/expressions/face-icon-small-sad.gif" border="0">. I think you made up for lost time when you finally could hold me though <img src="i/expressions/face-icon-small-smile.gif" border="0">
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    G Tube?

    You are certainly not ignorant- and besides the only way to learn is to ask! I'm not sure what the percentage is, but I'd say a decent amount of CF children get G-Tubes at some point (I also believe they are becoming more commonplace). Some kids get them because they have so much trouble...
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    Lazy or unfit?

    I just wanted to second what Emily said. I've tried my hardest my whole life to keep lung functions up, but they've invariably fallen, and I'm now not sure if I could run a few laps without stopping for rest.
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    Cf and mints!

    I hate Big Red gum! It makes my eyes all watery-- I just don't like it.
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    Cf and mints!

    I'm the opposite. I thoroughly enjoy spicy food (chased with tons of milk), and mints (except altoids). The only thing I have trouble tolerating is cinnamon.
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