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  1. R

    Pressure Cooker and boiling nebs

    I use a pressure cooker for Maggie's nebs. The Pari nebs and masks are ok to be autoclaved so if they can tolerate that high temperature, the can go in a pressure cooker. First I bought one you use for the stove, it does heat up alot faster BUT be careful...Releasing the steam on it is nerve...
  2. R

    Turning off "caregiver"

    Turning off I am so sorry you are going through this. I have a hard time , as well, doing nothing. I always feel like I have to fix the problem. Maybe this will be a time for Andrew's body to get a rest from the antibiotics and what can be done is pumping up his immune system with things...
  3. R

    Turning off "caregiver"

    Turning off I am so sorry you are going through this. I have a hard time , as well, doing nothing. I always feel like I have to fix the problem. Maybe this will be a time for Andrew's body to get a rest from the antibiotics and what can be done is pumping up his immune system with things...
  4. R

    Turning off "caregiver"

    Turning off I am so sorry you are going through this. I have a hard time , as well, doing nothing. I always feel like I have to fix the problem. Maybe this will be a time for Andrew's body to get a rest from the antibiotics and what can be done is pumping up his immune system with things...
  5. R

    would you consider lack of appetite a symptom of concern?

    I agree with the others. Is she pooping? Does her belly look distended? Hopefully, it's nothing or maybe she is getting a little stomach bug? My daughter haas gone through phases where she needs to be encouraged to eat, then for no reason she is eating everything in sight. It waxes and...
  6. R

    would you consider lack of appetite a symptom of concern?

    I agree with the others. Is she pooping? Does her belly look distended? Hopefully, it's nothing or maybe she is getting a little stomach bug? My daughter haas gone through phases where she needs to be encouraged to eat, then for no reason she is eating everything in sight. It waxes and...
  7. R

    would you consider lack of appetite a symptom of concern?

    I agree with the others. Is she pooping? Does her belly look distended? Hopefully, it's nothing or maybe she is getting a little stomach bug? <br /> <br />My daughter haas gone through phases where she needs to be encouraged to eat, then for no reason she is eating everything in sight. It...
  8. R

    hospital job

    I am a nurse and I also work in a hospital. This is what I do..I wear scrubs and when I get home I have a separate laundry basket for my scrubs. I take a shower right after work and put regular clothes on. I do my nurse scrubs in a separate laundry load and throw a cup full of bleach in the...
  9. R

    hospital job

    I am a nurse and I also work in a hospital. This is what I do..I wear scrubs and when I get home I have a separate laundry basket for my scrubs. I take a shower right after work and put regular clothes on. I do my nurse scrubs in a separate laundry load and throw a cup full of bleach in the...
  10. R

    hospital job

    I am a nurse and I also work in a hospital. This is what I do..I wear scrubs and when I get home I have a separate laundry basket for my scrubs. I take a shower right after work and put regular clothes on. I do my nurse scrubs in a separate laundry load and throw a cup full of bleach in the...
  11. R

    DD is going to start Hypertonic Saline

    My daughter uses 7%. When I questioned my daughter's CF doctor about starting at 3%, he said no; 7% was the strength they used in the research study twice a day. I am sure other CF docs may have a different opinion but that is what he said. We gave my daughter her first dose in the CF...
  12. R

    DD is going to start Hypertonic Saline

    My daughter uses 7%. When I questioned my daughter's CF doctor about starting at 3%, he said no; 7% was the strength they used in the research study twice a day. I am sure other CF docs may have a different opinion but that is what he said. We gave my daughter her first dose in the CF...
  13. R

    DD is going to start Hypertonic Saline

    My daughter uses 7%. When I questioned my daughter's CF doctor about starting at 3%, he said no; 7% was the strength they used in the research study twice a day. I am sure other CF docs may have a different opinion but that is what he said. We gave my daughter her first dose in the CF...
  14. R

    Enzymes and the oil slick

    Do you see a nutritionist at CF clinic. We see our every 3 months and she is the enzyme expert..I always go to her to help with enzyme adjustment according to weight and poops. Does your daughter take an acid blocker like Zantac or Prevacid? It works to help the enzymes work better. Also...
  15. R

    Enzymes and the oil slick

    Do you see a nutritionist at CF clinic. We see our every 3 months and she is the enzyme expert..I always go to her to help with enzyme adjustment according to weight and poops. Does your daughter take an acid blocker like Zantac or Prevacid? It works to help the enzymes work better. Also...
  16. R

    Enzymes and the oil slick

    Do you see a nutritionist at CF clinic. We see our every 3 months and she is the enzyme expert..I always go to her to help with enzyme adjustment according to weight and poops. <br /> <br />Does your daughter take an acid blocker like Zantac or Prevacid? It works to help the enzymes work...
  17. R

    Friends on antibiotics

    Nancy, It's really hard isn't it? Often I have had people say "it's only allergies", and they really do have a cold. You should do what you feel is best for your child. I think the antibitotic question is a good one. How long do you need to be on antibiotics til you are not contagious? 24...
  18. R

    Friends on antibiotics

    Nancy, It's really hard isn't it? Often I have had people say "it's only allergies", and they really do have a cold. You should do what you feel is best for your child. I think the antibitotic question is a good one. How long do you need to be on antibiotics til you are not contagious? 24...
  19. R

    Friends on antibiotics

    Nancy, <br /> <br />It's really hard isn't it? Often I have had people say "it's only allergies", and they really do have a cold. You should do what you feel is best for your child. I think the antibitotic question is a good one. How long do you need to be on antibiotics til you are not...
  20. R

    Pulmozyme or Hypertonic Saline

    My daughter uses both Pulmozyme and HTS. They do work differently. Pulmozyme works to break up strands of mucous. HTS works to liquify the mucous, to make it easier to cough up and out. I noticed a huge difference when we started my daughter on the HTS, she had already been on Pulmozyme...
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