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  1. H

    Bad news about denufosol trials :-(

    Dana, I want to thank you and your daughter for participating in the clinical trial process for so long (and your dd for hanging in there through so much testing despite disliking it so much!) It's so important and the only way we ultimately WILL get successful drugs out there to market.
  2. H

    Bad news about denufosol trials :-(

    Dana, I want to thank you and your daughter for participating in the clinical trial process for so long (and your dd for hanging in there through so much testing despite disliking it so much!) It's so important and the only way we ultimately WILL get successful drugs out there to market.
  3. H

    Bad news about denufosol trials :-(

    Dana, I want to thank you and your daughter for participating in the clinical trial process for so long (and your dd for hanging in there through so much testing despite disliking it so much!) It's so important and the only way we ultimately WILL get successful drugs out there to market.
  4. H

    Heterozygous Df508?

    As you know, you need two mutations to have CF. Homozygous Df508= both mutations are DF508. Heterozygous Df508= one mutation is DF508 and the other is any of the other 1,500+ other mutations, known or unknown. The other possibility, in the case of someone who is asymptomatic and has negative...
  5. H

    Heterozygous Df508?

    As you know, you need two mutations to have CF. Homozygous Df508= both mutations are DF508. Heterozygous Df508= one mutation is DF508 and the other is any of the other 1,500+ other mutations, known or unknown. The other possibility, in the case of someone who is asymptomatic and has negative...
  6. H

    Heterozygous Df508?

    As you know, you need two mutations to have CF. <br />Homozygous Df508= both mutations are DF508. <br />Heterozygous Df508= one mutation is DF508 and the other is any of the other 1,500+ other mutations, known or unknown. <br />The other possibility, in the case of someone who is asymptomatic...
  7. H

    Bad news about denufosol trials :-(

    %$#@#$%#$ Oh how disappointing!! <img src="i/expressions/face-icon-small-sad.gif" border="0"> Stay hopeful... but since stuff like this happens to so many of the things in development even very late in the trial process, we need to be sure we are tempering hope with reality.
  8. H

    Bad news about denufosol trials :-(

    %$#@#$%#$ Oh how disappointing!! <img src="i/expressions/face-icon-small-sad.gif" border="0"> Stay hopeful... but since stuff like this happens to so many of the things in development even very late in the trial process, we need to be sure we are tempering hope with reality.
  9. H

    Bad news about denufosol trials :-(

    %$#@#$%#$ Oh how disappointing!! <img src="i/expressions/face-icon-small-sad.gif" border="0"> <br /> <br />Stay hopeful... but since stuff like this happens to so many of the things in development even very late in the trial process, we need to be sure we are tempering hope with reality.
  10. H

    No News Good News?

    That one can go either way, with only one dr being there and the craziness of the holidays vs. the fact that drs don't place a priority on speaking to patients about normal test results. I would wait until actually speaking to someone there before assuming anything. It took us about 5wks to...
  11. H

    No News Good News?

    That one can go either way, with only one dr being there and the craziness of the holidays vs. the fact that drs don't place a priority on speaking to patients about normal test results. I would wait until actually speaking to someone there before assuming anything. It took us about 5wks to...
  12. H

    No News Good News?

    That one can go either way, with only one dr being there and the craziness of the holidays vs. the fact that drs don't place a priority on speaking to patients about normal test results. I would wait until actually speaking to someone there before assuming anything. <br /> <br />It took us...
  13. H

    head colds and coughing

    From how you describe it, it does sound like it could be a sinus infection. Checking in with his cf dr sounds like a good idea; it sounds like he needs something to help clear it up before it has a chance to spread to his lungs. He's too young for the sinus rinses, but have you tried using the...
  14. H

    head colds and coughing

    From how you describe it, it does sound like it could be a sinus infection. Checking in with his cf dr sounds like a good idea; it sounds like he needs something to help clear it up before it has a chance to spread to his lungs. He's too young for the sinus rinses, but have you tried using the...
  15. H

    head colds and coughing

    From how you describe it, it does sound like it could be a sinus infection. Checking in with his cf dr sounds like a good idea; it sounds like he needs something to help clear it up before it has a chance to spread to his lungs. He's too young for the sinus rinses, but have you tried using the...
  16. H

    what happened to advanced search?

    In thinking about it, we DO need a search to find information that is not part of the forums (and the 'google' search is the only option for that), but it's confusing having message board replies mixed up now in hits from other parts of the website, especially since it's not comprehensive enough...
  17. H

    what happened to advanced search?

    In thinking about it, we DO need a search to find information that is not part of the forums (and the 'google' search is the only option for that), but it's confusing having message board replies mixed up now in hits from other parts of the website, especially since it's not comprehensive enough...
  18. H

    what happened to advanced search?

    In thinking about it, we DO need a search to find information that is not part of the forums (and the 'google' search is the only option for that), but it's confusing having message board replies mixed up now in hits from other parts of the website, especially since it's not comprehensive enough...
  19. H

    How to get your CF Child to gain Weight

    Emily was doing the Carnation, Scandishakes, etc and it was just not enough. Esp with the puberty growth spurt just a few years away... we knew we had to do something. Even having just one- occasionally two- supplements a day was dramatically cutting into her food intake, rather than ADDING to...
  20. H

    How to get your CF Child to gain Weight

    Emily was doing the Carnation, Scandishakes, etc and it was just not enough. Esp with the puberty growth spurt just a few years away... we knew we had to do something. Even having just one- occasionally two- supplements a day was dramatically cutting into her food intake, rather than ADDING to...
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