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  1. H

    Need an answer ASAP re: coughing blood

    Emily doesn't cough up large quantities of blood (bright red has never been more than streaking in sputum), but she's coughed up small chunks of hardened dark red/blackish blood that I have assumed is 'old' stuff. We usually see this when she's getting over an exacerbation and finally starting...
  2. H

    Need an answer ASAP re: coughing blood

    Emily doesn't cough up large quantities of blood (bright red has never been more than streaking in sputum), but she's coughed up small chunks of hardened dark red/blackish blood that I have assumed is 'old' stuff. We usually see this when she's getting over an exacerbation and finally starting...
  3. H

    Weight gain on Prednisone

    Prednisone can increase appetite dramatically, so if weight gain also comes from hugely increased calorie intake that might stick around. But that sudden increase~ which could never be achieved through normal eating, is not as likely to last. Emily is on prednisone fairly regularly for...
  4. H

    Weight gain on Prednisone

    Prednisone can increase appetite dramatically, so if weight gain also comes from hugely increased calorie intake that might stick around. But that sudden increase~ which could never be achieved through normal eating, is not as likely to last. Emily is on prednisone fairly regularly for...
  5. H

    Weight gain on Prednisone

    Prednisone can increase appetite dramatically, so if weight gain also comes from hugely increased calorie intake that might stick around. But that sudden increase~ which could never be achieved through normal eating, is not as likely to last. <br /> <br />Emily is on prednisone fairly regularly...
  6. H

    Allergic reaction to Augmentin?

    That is quite a severe reaction you describe. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I'm so sorry your son experienced this- how scary! Fortunately Emily has been spared this kind of reaction to any abx, but I've experienced a reaction quite similar (hives/rash, facial...
  7. H

    Allergic reaction to Augmentin?

    That is quite a severe reaction you describe. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I'm so sorry your son experienced this- how scary! Fortunately Emily has been spared this kind of reaction to any abx, but I've experienced a reaction quite similar (hives/rash, facial...
  8. H

    Allergic reaction to Augmentin?

    That is quite a severe reaction you describe. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I'm so sorry your son experienced this- how scary! Fortunately Emily has been spared this kind of reaction to any abx, but I've experienced a reaction quite similar (hives/rash, facial...
  9. H

    Is it possible to have a negative IRT, negative Sweat Test and still have CF?

    I don't blame you for not wanting to go through the same runaround trying to figure out symptoms when a simple genetic test can rule cf in or out. I would call the pediatrician and tell him/her point blank that you want a CF test done to know with 100% certainty whether or not your child has...
  10. H

    Is it possible to have a negative IRT, negative Sweat Test and still have CF?

    I don't blame you for not wanting to go through the same runaround trying to figure out symptoms when a simple genetic test can rule cf in or out. I would call the pediatrician and tell him/her point blank that you want a CF test done to know with 100% certainty whether or not your child has...
  11. H

    Is it possible to have a negative IRT, negative Sweat Test and still have CF?

    I don't blame you for not wanting to go through the same runaround trying to figure out symptoms when a simple genetic test can rule cf in or out. I would call the pediatrician and tell him/her point blank that you want a CF test done to know with 100% certainty whether or not your child has...
  12. H

    Is it possible to have a negative IRT, negative Sweat Test and still have CF?

    With your older child being a double DF508, getting your younger child ruled out genetically is the way to go, I think. Carriers can also exhibit some symptoms (we see this with our son) so finding out either way is important. The Ambry 508 'first' tests for the DF508 gene but upon not finding...
  13. H

    Is it possible to have a negative IRT, negative Sweat Test and still have CF?

    With your older child being a double DF508, getting your younger child ruled out genetically is the way to go, I think. Carriers can also exhibit some symptoms (we see this with our son) so finding out either way is important. The Ambry 508 'first' tests for the DF508 gene but upon not finding...
  14. H

    Is it possible to have a negative IRT, negative Sweat Test and still have CF?

    With your older child being a double DF508, getting your younger child ruled out genetically is the way to go, I think. Carriers can also exhibit some symptoms (we see this with our son) so finding out either way is important. <br /> <br />The Ambry 508 'first' tests for the DF508 gene but upon...
  15. H

    Just wondering if it's i might be able to get out our son out of clinic next month?

    Emily has had to miss a couple special events at school due to clinic and other specialty appts and that was VERY upsetting. The only reason I didn't/couldn't reschedule was because she wasn't doing well enough to put things off for a while~ since he is doing well, I would try as hard as you...
  16. H

    Just wondering if it's i might be able to get out our son out of clinic next month?

    Emily has had to miss a couple special events at school due to clinic and other specialty appts and that was VERY upsetting. The only reason I didn't/couldn't reschedule was because she wasn't doing well enough to put things off for a while~ since he is doing well, I would try as hard as you...
  17. H

    Just wondering if it's i might be able to get out our son out of clinic next month?

    Emily has had to miss a couple special events at school due to clinic and other specialty appts and that was VERY upsetting. The only reason I didn't/couldn't reschedule was because she wasn't doing well enough to put things off for a while~ since he is doing well, I would try as hard as you...
  18. H

    Sinus rinse

    We have used the Ayr and the Neilmed rinses. We tend to use the Ayr refills as well because you get so many more packets for the same price. I think one packet will give you a 3% saline, so adding an extra 1-2 packets will give you a hypertonic rinse.
  19. H

    Sinus rinse

    We have used the Ayr and the Neilmed rinses. We tend to use the Ayr refills as well because you get so many more packets for the same price. I think one packet will give you a 3% saline, so adding an extra 1-2 packets will give you a hypertonic rinse.
  20. H

    Sinus rinse

    We have used the Ayr and the Neilmed rinses. We tend to use the Ayr refills as well because you get so many more packets for the same price. I think one packet will give you a 3% saline, so adding an extra 1-2 packets will give you a hypertonic rinse.
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