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'Hurry Up and Wait' is the hardest game to play as a parent!! Just because something 'makes sense' it doesn't necessarily make it any easier. I'm glad you are down to the last week of waiting as opposed to months... we will be here to help answer any more questions you have before or after the...

Yes, we've had that experience with Emily too- very little evidence of congestion when she blows, but when doing the rinse WOW. Sometimes it will take doing most of the bottle to start getting much out but once it starts a lot will come out, and it will take refilling the bottle a few more...

Yes, we've had that experience with Emily too- very little evidence of congestion when she blows, but when doing the rinse WOW. Sometimes it will take doing most of the bottle to start getting much out but once it starts a lot will come out, and it will take refilling the bottle a few more...

Yes, we've had that experience with Emily too- very little evidence of congestion when she blows, but when doing the rinse WOW. Sometimes it will take doing most of the bottle to start getting much out but once it starts a lot will come out, and it will take refilling the bottle a few more...

Allergic reaction to Augme Was there anything else he could have possibly developed a reaction to during that time other than the abx? Did he try a new food? Combine an otc medication with the Augmentin? (Sometimes giving something like Motrin with an abx can trigger a reaction.) Come in...

Allergic reaction to Augme Was there anything else he could have possibly developed a reaction to during that time other than the abx? Did he try a new food? Combine an otc medication with the Augmentin? (Sometimes giving something like Motrin with an abx can trigger a reaction.) Come in...

Allergic reaction to Augme Was there anything else he could have possibly developed a reaction to during that time other than the abx? Did he try a new food? Combine an otc medication with the Augmentin? (Sometimes giving something like Motrin with an abx can trigger a reaction.) Come in...

I agree that pulling the Xoponex is probably not a good idea. It's important to keep the airways open, especially as she gets over illness. It's possible the HTS could be an issue though. Emily can have significant sinus/nasal congestion without complaining of pain, so we use the saline...

I agree that pulling the Xoponex is probably not a good idea. It's important to keep the airways open, especially as she gets over illness. It's possible the HTS could be an issue though. Emily can have significant sinus/nasal congestion without complaining of pain, so we use the saline...

I agree that pulling the Xoponex is probably not a good idea. It's important to keep the airways open, especially as she gets over illness. It's possible the HTS could be an issue though. <br /> <br />Emily can have significant sinus/nasal congestion without complaining of pain, so we use...

Yes, I wondered if that included homebound instruction through the school system as well as parents that choose on their own to homeschool their children due to health reasons.

Yes, I wondered if that included homebound instruction through the school system as well as parents that choose on their own to homeschool their children due to health reasons.

Yes, I wondered if that included homebound instruction through the school system as well as parents that choose on their own to homeschool their children due to health reasons.

Wishing the very best and for your son to be in the clear! At our clinic it is routine to test siblings (even if they are asymptomatic) once one child is dx'ed. In our case, one son had a negative sweat test, negative Ambry test and no worrisome symptoms... the other had borderline sweat tests...

Wishing the very best and for your son to be in the clear! At our clinic it is routine to test siblings (even if they are asymptomatic) once one child is dx'ed. In our case, one son had a negative sweat test, negative Ambry test and no worrisome symptoms... the other had borderline sweat tests...

Wishing the very best and for your son to be in the clear! At our clinic it is routine to test siblings (even if they are asymptomatic) once one child is dx'ed. In our case, one son had a negative sweat test, negative Ambry test and no worrisome symptoms... the other had borderline sweat tests...

Yes, looks familiar! My daughter gets pruny... but my son and I (carriers) do as well. My feet get especially bad. It only bothers me if I give in to the temptation to pick at/peel the thickened areas of white skin.

Yes, looks familiar! My daughter gets pruny... but my son and I (carriers) do as well. My feet get especially bad. It only bothers me if I give in to the temptation to pick at/peel the thickened areas of white skin.

Yes, looks familiar! My daughter gets pruny... but my son and I (carriers) do as well. My feet get especially bad. It only bothers me if I give in to the temptation to pick at/peel the thickened areas of white skin.

Emily doesn't cough up large quantities of blood (bright red has never been more than streaking in sputum), but she's coughed up small chunks of hardened dark red/blackish blood that I have assumed is 'old' stuff. We usually see this when she's getting over an exacerbation and finally starting...