Search results

  1. H

    Frustrated with School

    Yes, you should have all those things (time to understand what the program is, the chance to talk to the teacher, etc.) When something like this has been recommended you SHOULD have that information because otherwise how can you help Max?? I'd have been sitting by the phone too after getting...
  2. H

    Frustrated with School

    Yes, you should have all those things (time to understand what the program is, the chance to talk to the teacher, etc.) When something like this has been recommended you SHOULD have that information because otherwise how can you help Max?? I'd have been sitting by the phone too after getting...
  3. H

    Frustrated with School

    Yes, you should have all those things (time to understand what the program is, the chance to talk to the teacher, etc.) When something like this has been recommended you SHOULD have that information because otherwise how can you help Max?? I'd have been sitting by the phone too after getting...
  4. H

    Frustrated with School

    Oh how frustrating. <img src="i/expressions/face-icon-small-frown.gif" border="0"> That was wrong to start him in that program without letting the 5 days elapse. Legally, they CAN implement changes they feel are in your child's best interest if you don't respond to communication from them, but...
  5. H

    Frustrated with School

    Oh how frustrating. <img src="i/expressions/face-icon-small-frown.gif" border="0"> That was wrong to start him in that program without letting the 5 days elapse. Legally, they CAN implement changes they feel are in your child's best interest if you don't respond to communication from them, but...
  6. H

    Frustrated with School

    Oh how frustrating. <img src="i/expressions/face-icon-small-frown.gif" border="0"> <br /> <br />That was wrong to start him in that program without letting the 5 days elapse. Legally, they CAN implement changes they feel are in your child's best interest if you don't respond to communication...
  7. H

    G-tube ooze

    Thanks for the post re. the saline soaks- that sounds like a great idea to try when Emily gets these! She was getting a LOT of ooze and crusting in the weeks before her tube broke and needed to be replaced- I think it was leaking and therefore allowing leakage of stomach contents. She had a...
  8. H

    G-tube ooze

    Thanks for the post re. the saline soaks- that sounds like a great idea to try when Emily gets these! She was getting a LOT of ooze and crusting in the weeks before her tube broke and needed to be replaced- I think it was leaking and therefore allowing leakage of stomach contents. She had a...
  9. H

    G-tube ooze

    Thanks for the post re. the saline soaks- that sounds like a great idea to try when Emily gets these! She was getting a LOT of ooze and crusting in the weeks before her tube broke and needed to be replaced- I think it was leaking and therefore allowing leakage of stomach contents. <br /> <br...
  10. H

    New here, get sweat test results on tues

    <div class="FTQUOTE"><begin quote>"I have the results right here, hang on a sec, Oh you have to come in and speak to the Dr I'm sorry"</end quote></div> Oh how infuriating!! I DO understand that the secretary cannot give certain types of info over the phone, and neither can the nurse unless...
  11. H

    New here, get sweat test results on tues

    <div class="FTQUOTE"><begin quote>"I have the results right here, hang on a sec, Oh you have to come in and speak to the Dr I'm sorry"</end quote> Oh how infuriating!! I DO understand that the secretary cannot give certain types of info over the phone, and neither can the nurse unless given...
  12. H

    New here, get sweat test results on tues

    <div class="FTQUOTE"><begin quote>"I have the results right here, hang on a sec, Oh you have to come in and speak to the Dr I'm sorry"</end quote> <br />Oh how infuriating!! I DO understand that the secretary cannot give certain types of info over the phone, and neither can the nurse unless...
  13. H

    Carrier issues...

    My dh is the carrier of the unidentified mutation and I carry the df508 mutation, as does my oldest son. My middle son at most carries the unknown mutation. As a child/teenager I had fairly frequent sinus infections and allergy & exercise induced asthma. I outgrew the asthma and now only need...
  14. H

    Carrier issues...

    My dh is the carrier of the unidentified mutation and I carry the df508 mutation, as does my oldest son. My middle son at most carries the unknown mutation. As a child/teenager I had fairly frequent sinus infections and allergy & exercise induced asthma. I outgrew the asthma and now only need...
  15. H

    Carrier issues...

    My dh is the carrier of the unidentified mutation and I carry the df508 mutation, as does my oldest son. My middle son at most carries the unknown mutation. <br /> <br />As a child/teenager I had fairly frequent sinus infections and allergy & exercise induced asthma. I outgrew the asthma and...
  16. H

    Chest Xrays: How often?

    Liza when you refer to lung scan what do you mean? CT scan? Emily has only had xrays to date and is due for her first ct scan later this year but those will only be done on a routine basis every 2yrs with xrays inbetween on an as-needed basis. Lauren, do you know if those are the most recent...
  17. H

    Chest Xrays: How often?

    Liza when you refer to lung scan what do you mean? CT scan? Emily has only had xrays to date and is due for her first ct scan later this year but those will only be done on a routine basis every 2yrs with xrays inbetween on an as-needed basis. Lauren, do you know if those are the most recent...
  18. H

    Chest Xrays: How often?

    Liza when you refer to lung scan what do you mean? CT scan? Emily has only had xrays to date and is due for her first ct scan later this year but those will only be done on a routine basis every 2yrs with xrays inbetween on an as-needed basis. <br /> <br />Lauren, do you know if those are the...
  19. H

    Throat Cultures

    I would call before your next clinic appt and ask about getting the sputum culture taken first thing next time- just to get it over with and see if the rest of the appt goes smoother that way. It needs to be done, but the anticipation is worse than the deed. <img...
  20. H

    Throat Cultures

    I would call before your next clinic appt and ask about getting the sputum culture taken first thing next time- just to get it over with and see if the rest of the appt goes smoother that way. It needs to be done, but the anticipation is worse than the deed. <img...
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