Search results

  1. J

    How do you know you need antibiotics

    It can go one of two ways with me...Either I gradually decline with increased low grade temps, increased phlegm and color change, change of appetite, more aches and pains and sheer exhaustion and then IV's are started, or it can all hit me fast and furious with high temps (often near 103), rapid...
  2. J

    Never had a tune up

    I hope you have many more years sans tune ups!! Awesome :) I have had several tune ups since my dx at 33, this year, I have been on IV"s 5 times since November, busy year for me! Keep doing what you are doing! Jenn 40 wCF
  3. J

    Charging for DAFCF...

    Absolutely reasonable Jenn 40 wCF
  4. J

    Lisa worthington Brown updates

    This is just so sad and and makes me want to scream how life is so unfair sometimes. I have been praying for peace and comfort for Lisa, as well as for her circle of family and friends during her final journey home. Jenn 40 wCF
  5. J

    Late diagnosis due to child's testing

    No, but I just want to say I hope things are better for you now that you have a proper diagnosis. It must have floored you! I have been following your quest to get a diagnosis for your daughter and it turns out this way. I do know there are a few people on this forum who did get a diagnosis as...
  6. J

    Charging for DAFCF...

    I don't think it is bad to ask for a fee, your services undoubtedly have helped so many. Even better that it would be a tax deduction, so it is a win win situation. I wish I had the $ to donate to your organization. Jenn 40 wCF
  7. J

    Changing port needle during iv

    Oh, and make sure that he puts end caps on (ideally, this should be done at the priming stage before the needle is inserted, put the endcaps on the line, flush it and then access the port) Jenn 40 wCF
  8. J

    Changing port needle during iv

    No, not really any difference. The technique is the same, he just needs to flush the line before he inserts the needle with saline.. Once the needle is in, draw back to see if there is a blood return, if he does, then he is in the right place and he can just flush the line through, put the...
  9. J

    What do you Call this type of test?

    Oh they still do them, I get an ABG nearly every time I am admitted to the hospital.. Thankfully, the RT injects some lidocaine just under the surface near the artery so I don't feel it much. They are usually looking to see if I am retaining CO2, which can't be detected with a simple pulse ox...
  10. J

    Asthma or pneumonia???

    They should do an xray to see if there is a pneumonia....it sure sounds like it could be if he has the achiness, etc.. How is his sputum? Has it changed in any way? Also, if he has fevers then it would definitely sound more to me like an infection than asthma, but infection can also make...
  11. J

    Cf and kidney stones

    I have had two kidney stones, both a good size, my last one I think was 8 mm, right on the border for it to be removed rather than passed.. Thankfully it did pass, but not without pain. I will not lie, it hurt more than childbirth itself. You will know if you start to pass it, you will get dull...
  12. J

    Those in Pain Management

    Hopefully they will be compassionate enough to order them, comfort is important too. While in the hospital, I get IV boluses of dilaudid because my joint pain so much worse and the coughing causes severe chest pain. Luckily, my team is on board with comfort.. If I am not feeling as much pain, I...
  13. J

    What do you Call this type of test?

    Geez, it's terrible that you have to do the foot work to get the services you need. I too have Medicare and you can use any place that accepts it so I don't understand the nurse's rationale.. I have had this test in the past, it's an overnight oximetry test and sounds just like what Janelle's...
  14. J

    Rude Hospital Nurses

    I was a nurse before I went out on disability, even if I had a bad day, I NEVER took it out on my patients! Ever! It's just not something any nurse should do... A patient should feel comfortable with their caregivers from dietary, to the CNA, to the nurse.....the whole team. They are sick, and...
  15. J

    Rude Hospital Nurses

    Oohh I would be steaming too! You can refuse certain nurses, that is your right. You also have the right to have a chat with the supervisor and vent your concerns to him/her. That nurse has a terrible bedside manner, she really is out of line saying those things. I hope things get better for you...
  16. J

    Unclear situation with cf diagnostic

    I echo the others.....definitely seek another opinion elsewhere. I am praying for you and your son! Jenn 40 wCF
  17. J

    Going home

    So happy! There's no place like home, most importantly, you got the care you deserved.. I hope all goes well, enjoy your new found health <img src="i/expressions/face-icon-small-smile.gif" border="0"> Jenn 40 wCF
  18. J

    Those in Pain Management

    I too have chronic pain and am on pain management. I have Ehlers-Danlos syndrome III which causes my joints to dislocate easily and unfortunately, causes chronic pain. I also have lung pain from coughing, all of this gets exponentially worse whenever I am ill. I am on the Fentanyl patch, but...
  19. J

    Praying for Micah

    I am just so sorry Tom, this is something that no parent should ever have to experience. Keeping all of you in my thoughts and prayers.. RIP Micah Jenn 40 wCF
  20. J

    Bronchoscopy Question?

    I have had slight fevers and achiness in my lungs after a bronch, as well as heavy sputum (probably because the bronch loosened everything up). My symptoms usually resolved within a day or so. If your symptoms continue, then I would call the doctor to at least make him aware of what is going...
Top