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  1. M

    Help- Going to Italy. Pari TREK? other traveling advice

    Have a great trip! When I lived in Spain, people wore cute jackets, not fleece or nylon (unless doing a sport), and clothing was fitted, not a big square T-shirt. I'm traveling overseas later this summer and my packing list includes: my favorite jeans, tight black non wrinkle pants, some thin...
  2. M

    CF careers-ultrasound or human resources

    The think the skill set for the two jobs you mention is fairly different, so you can also ask yourself what you are more interested in doing and better suited to do skill and talent-wise. I worked in a hotel's HR dept one summer as a substitute for someone on maternity leave. She was the...
  3. M

    Green smoothies, also bacteria article

    Frank, Thanks for the tips. I like the flavor of red cabbage so that's going in next time. The berries I had were not sweet at all. Maybe some brands add sugar and other don't. I love fresh veggies when I cook or make salads, but frozen is cheap! Also I'd heard that often the produce is frozen...
  4. M

    Green smoothies, also bacteria article

    I made my first ever green smoothie (frozen kale, frozen berries in the blender) yesterday. I had a maybe 12 oz glass of it yesterday and another today. I'm thinking these may not be the right thing for me because I've had liquid #2s last evening and today. No cramping or bad gas though. For...
  5. M

    Asthma doctors

    http://www.paamds.com/pulmonary-allergy-meet-our-doctors I've been pleased with this practice in NJ. I see Dr. Graffino for allergies and like her a lot--you can scroll through the drs in that link. The staff are really nice too. National Jewish in Denver, co is at the forefront of...
  6. M

    pseudomonas

    Oh, wait. There is yeast infection, which is not specific to CF but plagues people who use a lot of antibiotics. It's not a common occurrence and when it does happen, it usually originates from the woman, but then it can go back and forth.
  7. M

    pseudomonas

    I think you need to worry about people with compromised immune systems/defenses: AIDs, chemotherapy, immune-deficiencies, taking immune suppressants, COPD/PCD/bronch, and sometimes the elderly too. I have coughed a variety of bacteria (PA, Steno, Strep...etc.) all over my house, kids and...
  8. M

    exercise fiends plz read

    Those of you who exercise heavily, whether weightlifting or cardio/running etc., can you tell me if your DLCO (a parameter on PFTs) is high? I had PFTs at the drs office yesterday and my DLCO is abnormally high (and higher than last year). This is good news in the sense that DLCO is a marker...
  9. M

    Does anyone else have foul BO?

    I don't have a CF answer for you, but some people in my family (me and sister sometimes, son and niece frequently) smell like onions. Literally, fast food onion ring armpits. It has something to do with sulfur. My son and I use Tom's of Maine lavender deodorant, and it works 100%. Also...
  10. M

    i'm gonna suffer in years too come!!

    SoyaSauce, Thanks for that info and study explanation. I find stuff like that interesting. Anything that contradicts what someone would expect makes me feel less odd. My pfts were well above normal when I was dx with bronchiectasis approx 115-120%. In the years that I've taken to get...
  11. M

    Obesity in CF

    There is something called the BODE index in measuring severity of COPD. In that scale, if your BMI is under 21, you get a point against you, an indication of the severity of the lung disease. So, while 18.6 - 25 are considered "normal," aiming for over 21 is a probably a good idea. On the...
  12. M

    Questions to (Hopefully) Reasure myself.

    While you're waiting for your appt, if you don't already do this stuff, here are some things you can do: neilmed sinus wash with distilled water 2x a day Nebulize albuterol 2x a day, or at least use a ventolin inhaler. Google postural drainage or chest physical therapy and work on clearing...
  13. M

    Questions to (Hopefully) Reasure myself.

    Where I live (NJ) you can call a CF clinic and try to make an appt. BUT in order to actually get an appointment, you have to fax or mail relevant records to the office for the Dr/staff to review and then you get a call several weeks later with an appointment time. Loop, the kinds of things...
  14. M

    Questions to (Hopefully) Reasure myself.

    One positive thing to note, is that knowing what you have or don't have will help you and your doctor treat it smarter. Whether you got diagnosed with CF or something like Primary Ciliary Dyskinesia or an immune-deficiency or non-CF bronchiectasis, preventative care and treatments can actually...
  15. M

    can I take pharmanac with levaquin and doxycycline

    Under "compatibility" in the fine print of your pharmanac package insert, you'll see it says to take certain classes of antibiotics and pharmanac at least two hrs apart due to possible inactivation of the antibiotic. Doxy is listed as having no incompatibility, though. But quinolones aren't...
  16. M

    Need some advice on son's cough

    In those VCD articles, ignore all the anxiety, psychological stuff. It's been deemphasized in more recent literature (and it aggravates me to read it grrr.)
  17. M

    Need some advice on son's cough

    The avenues I think you might explore are vocal cord dysfunction and gerd. VCD can cause stridor and coughing, and it's often triggered by chronic post nasal drip. Here's an article about VCD in athletes and then a general info article. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC164364/...
  18. M

    Coughing alot and some pee ( embarrassed by this title. don't know how to say it)

    LOL & thanks, you made me pee my pants. (Do the kegels, empty frequently, consider wearing Poise pads, search past threads for more info...)
  19. M

    CF and too much Gas

    Thanks for all the info, Epona. I love food and nutrition subjects and you have a lot of knowledge. I tried to find studies backing up the homogenized particle theories, and I got a lot of links to blogs. I did find the info below. (I'm not vested in the subject, but I thought I'd pass it...
  20. M

    new lungs

    Congratulations! I am glad everything worked out and worked fast for you.
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