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Hi everyone, I was curious if and who is on Bethkis (one generic form of Tobi). What your experiences are? Good, bad, if it is works for you? Thanks - Tessa

I learn so many different things from this site; remind me of old techniques; learn and re-learn things! That's all . . . (FART2)

Hi everyone,I have had a bit of a set back, first time in my life to this degree. I have done the IV antibiotics, etc. I have worked out my whole life. Had a couple bad infections, coupled with a flu/viral thing that settled in my chest for a month.I am on my way up, but I need to pick it up...

This really isn't a subject/thread; but my partner made me a twisty, curly, with pretty lavender beads, medal/wire nebulizer cup holder that sits on my desk for it doesn't spill. I think this is the best gift I have ever gotten, because I have wanted SOMETHING to hold the darn thing up for...

hey- I met with Cindy through CFF yesterday, and she is organizing "Climb for Life" in Boston Oct 23, 2011. I am trying to reach out and see if people would be interesting in climbing at One International Place this year: families, friends, etc. CFF.org is trying to get 200 climbers. Just...

Wondering if any of you have had to go through disability to get an accommodation one way or the other and I am sure have, and you have gotten resistance through your work place? If so, is Beth Sufian the best person to bounce these things off of? Or would any recommend just a employer type...

This is a bit off topic, but I think it is a good topic overall in life; be it any challenges: illness, life, relationships. Sometimes I remember this and then sometimes I just don't. Picking the conscientious minds of the CF community. What is the first step, or steps to forgiveness?

Wondering if anyone can help me find what the percentage of CF patients work full-time? I am having a hard time. From the CF Foundation they say 45% of CFers are over 18 years. Just trying to pin down a more accurate amount. Thanks-

I was reading on the CF Foundation website that Canadian CFer's live an average of 47.7 years vs. 37.4 for US residents. Ideas? Thoughts? I am exceptionally curious.

Hello, I live in the US, and I am getting extremely tired and frustrated in which people with previous health conditions are treated. Actually, I get more frustrated and even depressed thinking and dealing with the insurance companies in this country. I am beginning to look at becoming a...

Hey guys, I was debating on sending out this info, but I thought some people may be really intersted. There is a new vest that will be available very soon. Dr. Warwick and Dr. Milla, have been working on this new vest for years. Dr. Warwick has been talking about this new vest for years...

Does anyone ever feel like you are more the parent and the doc is the child. Meaning; you tell them basically in some ways or another how to do there job. I just moved from MN to MA in the last 6 months, and my new doc she's alright, but sometimes I don't think she knows her stuff. Granted, I...

I developed some crazy cold last week, which is very normal for me to get one in the summertime. But, the problem is coughing. I so tired of coughing, and now I starting the barfing reflex, which hurts really bad. I am coughing so hard I am almost barfing, that is just wrong somewhere. I...

Hey...I am just curious. A long time ago I was told to clean the neb stuff daily with dreft, and weekly with white vinegar I believe. Then I was told it's better not to rinse the neb water because the water has chemicals and other bad bacteria or whatever in it that you don't want to get on...

I have a question...hopefully people have some ideas for solutions, etc... I had a huge fiasco with getting my enzymes yesterday. I called two days ago to refill my enzymes ( just want to say that I am planning on having the enzymes to be on a mail order basis, but somehow, of course the form...

How does one develop a PE? Is it because of a really bad lung infection that could lead to a PE? Excuse my ignorance re: this subject matter, but I really don't understand the orgin of it. Tessa 27/cf

I am currently residing in MA, and my hometown is MN. I have to be with my therapy vest, i can only go about 2-3 days with just doing strong neb treatments. I have the 103 model. Traveling advice? Anyone try the luggage equipment? thanks.. Tessa