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I know of atleast one person on this site who is currently doing pulmonary rehab. Does anyone (post transplant even) have any information about this? The idea of starting it was tossed around at my last clinic appointment and I need to decide by this upcoming Wednesday if I want to start or...

Right this very moment I am having a hankerin' for some gas station nachos. You know, those dried out corn chips that sit under the heat lamp until 11 or 12 at night when you roll in and drench them in that disgusting cheese with the fat separating from it. Mmm. Get this post rolling and...

I would like to better understand self injury. If someone has experienced this problem in the past (I would prefer speaking to someone who no longer self-injures, and perhaps has gone to treatment for it) I would be really interested in privately discussing it. Private message me with your...

I very rarely check the families section so I wanted to give those of you who rarely check as well a heads up that one of our community members needs some cheerin' up! Check out the thread, titled "REECES' ADDRESS" in the families section. Copied from MOME2RT's post: <i>I dont want yall to...

I woke up this morning with the ache in my throat indicating I am getting a cold. Either that or I had a lot of post-nasal drip over night. Let's hope for the latter. Colds are inevitable for me, it happens atleast twice a year, but the worst part about it is instead of being a week or two it...

...get one. That is all.

It's been a few years since I've really buckled down at home and done my vest and nebs twice a day. I am so proud to say that I haven't missed a treatment in almost six weeks! I have just added HTS to my routine and was curious about the nebulizer order I should use. The RTs at the hospital...

Though CF is not a common disease among Pacific Islanders, Hawai'i has now implemented newborn screening to test for cystic fibrosis as well as other common hereditary diseases. Early diagnosis can sometimes make such a huge difference! I was one of the first babies diagnosed on the Colorado...

I am doing Tobi right now and was just thinking about how the prolongued use of antibiotics basically rots your teeth out of your head. Does anyone know if we should be rinsing our mouths out after we inhale Tobi? I was just curious. I guess I do anyway simply because of the nasty after taste...

Umm... the WEIRDEST thing just happened. We are watching my I's and O's (intake and output, how much I drink and how much I pee) because of my kidneys, which means I get the joy of collecting pee in a hat. Anyway, I just buzzed my nurse because my hat is full and told him when he came in that...

During the Q&A portion South Carolina was asked why she thought "1/5th of Americans cannot locate the United States on a map". Her answer was... terrifying. "I personally believe the U.S. Americans are unable to do so because, uh, some...people out there in our nation don't have maps, and, uh...

What are the browser/software requirements for the chat server? I can't get it to work and am no computer savvy enough to even troubleshoot.

So, as a few of you who check the off topic board know, this time last week I was freaking out about my failing health and my admission into a hospital I had never been to before. I need to brag about how great my new hospital is. I am encouraging anyone with time to make a list of things...

Anyone go to either of these clinics/hospitals? I'm wondering more because I recently moved to downtown San Francisco. Just curious, I guess. Thanks!

As my kidney function fails faster than my lungs, I am wondering how many of you have experienced problems with your kidneys. I have nephropathy related problems, but also extensive damage from years of antibiotic use. Today I was informed that my kidneys have permanently loss over 90% of...

Hey guys. I didn't feel right posting this in the Adults section. I am a semi-active member of this board, I check about twice a week and post occasionally. I am not a pillar of information like some other users here, but I do sometimes put in my two cents if I feel I have something important...

Age: 24 CF - yes/no: Yes. Listening to: Miss Kittin! Last thing I did: Dishes, there is no dishwasher in our apartment. What I should be doing instead of this: Showering. Last food I ate: A kosher hot dog with yellow mustard and sweet relish. As always I only ate about half of the bun...

First off, I'm sorry if bringing this up is like beating a dead horse. Several months ago I had enough of the flame wars and made a public post stating that I'd never long onto this site again. I did today, for the first time since, and I just wanted to thank the two of you (kayleesgrandma...

I just did a super high burst of steroids and among all of the wonderful things that come along with it, my back and chest completely broke out. They aren't small pimples either, they're more like small cysts and they are everywhere. It's painful, not to mention totally gross. Does anyone...

I was curious about what guidelines those of you who are post-transplant were asked to abide by. What were the absolute do's and don'ts (besides a strict regimen of medication)? How many of you who have been transplanted had tattoos before transplant? Did that seem to be an issue? 10+...