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Wow...I had hoped to type out this post Tuesday night, but we were so incredibly tired from our journey to Atlanta (mostly because we had to leave Warner Robins at 6 AM for her 9:30 appt) that I couldn't force my fingers to type. Here's the gist of the day: 1. We met with the Respriatory...

Hey you all! We are getting ready for our first CF clinic appointment on Tuesday and at Abby's 1 month check-up on Friday, her pediatrician suggested that they have her retested on Tuesday. His thought is that the amnio/genetic testing could have been wrong and there is no point treating her...

Hey y'all! Finally have news... Abby has a little fat in her stool, but they don't see the amount as a problem. Was explained to me that everybody has some fat in their stool. The Pancreatic Elastace (sp.) test that looks at the enzymes came back over 500 which means that she won't need...

Hey y'all... Abby and I are struggling. She turns into an narcoleptic (sp) when she nurses. I know she's getting enough food because she is gaining weight, however, I am getting increasingly frustrated. She nurses for 5-10 minutes and then falls asleep. I'm nursing all of the time because she...

As if Dave and I don't have enough to worry about with Abby, her pediatrician's office called us this afternoon and said that her PKU test came back inconclusive and that we'd need to have her retested on Monday. Are there any cases out there that have CF AND PKU? Does anyone have experience...

Still haven't heard from the enzyme test. Apparently, they had to send the BM to a new lab because of our insurance and I was told that if I didn't hear by Monday, to call. Not a problem. Can handle that. I'm getting the run-around while trying to make an initial appointment for Abby at the...

Dear All, Please be thinking about us. Dave is going to Atlanta to drop off Abby's BM collection tomorrow morning (2-3 hour drive from Warner Robins depending on traffic). Just looking at her BMs, they look very normal and smell very normal for a breastfed baby. We'll be glad to hear what they...

Hey all! This is Emily's husband, Dave. I just wanted to give y'all an update of where we are at right now. Emily went in Sunday night (Aug 6) to the hospital to have IV antibiotics adminstered prior to the scheduled c-section on Monday, August 7. The morning of the event got off to an early...

Hey you all! Wow...it has been an incredibly busy two weeks with our move to Warner Robins and our trip to the mountains....but it has been worth it. We are getting settled-in in our townhouse and we are are adjusting to having only 1/2 the space. We are a little on top of each other, but there...

Ok, here is my very STUPID and very Off Topic question... If you have moved recently or ever...does it seem that no matter how much you box up, you don't make ANY headway? I'm drowning in junk and we've already had a moving sale and taken three minivan loads to Goodwill! I don't know what to...

Hey Y'all! Ok, now that I have recovered from my drive up to Atlanta and back, I can sit down and put all of my thoughts together. First I want to say THANK YOU to all of you who gave me suggestions for questions to ask and who also made other suggestions like have two copies of your...

We are heading to our prenatal CF Clinic Consultation visit in Atlanta at Emory's Children's Center tomorrow morning. I am armed with my list of questions for Abby...THANK YOU ALL!!! I feel more prepared than I would have otherwise!!! My mom is going with me and Lucy...to keep Lucy entertained...

Dear Abby connected folk: We are just getting into Sesame Street in the Wiegert household with Lucy, but I have just learned that SS will be adding a new female character in season 37 (makes me feel old) named...ABBY! Here is the link with more information. The new season begins August 14 on...

I'm sorry I'm not responding personally to each and every response I received for my research. I am overwhelmed by everyone's help!!! I needed at least 30 responses for this to work...and I counted 72 this evening! A HUGE THANK YOU TO ALL WHO RESPONDED, and another HUGE THANK YOU for those who...

Originally posted in the Family portion of the forum, it was suggested that I post this in the adults section to see if any of you could/would pass it on to your parents to help me out! I'm now needing about 10-15 responses. Anything you could do to help me would be GREATLY appreciated!!! I...

I have had LOTS of response to my graduate school research request, but I need about 15-20 more responses to make my research well-rounded. If you have already responded, you have my sincerest THANK YOU!! I appreciate everything you all are doing in this community to help me with coping with...

We have an appointment on June 26 to meet with a nurse practitioner at the Emory/Egleston clinic in Atlanta. She is going to meet with us to answer our questions about Abby and what to expect after she is born. AND they will do the genetic test for Lucy to see if she is a carrier, has CF or is...

Our sweet, sweet 22 month old, Lucy (as of now not diagnosed with CF), is not handling all of the chaos and change very well in our home. I know she is quickly approaching two, but she's enduring a lot of change right now and my heart aches for her. She has started really acting out...

Any suggestions for books for siblings to introduce them to CF? I know I can explain it to my step-daughter, however, like most 7 year olds, it will be easier to hold her attention if I have a book. Thoughts, ideas, suggestions? Emily...again! :-( Sorry!

Dear All: Thank you so much for answering my questions and your continued support of me and my husband as we go through this journey waiting on our precious Abby to get here in August. All of the information you have provided has been of tremendous benefit and has helped us gain some...