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  1. M

    Anyone see this headline?

    <a target=_blank class=ftalternatingbarlinklarge href="http://news.trendaz.com/index.shtml?show=news&newsid=1165211&lang=EN">Article</a> <i>Experiments in mice sketch new treatment for cystic fibrosis 31.03.08 00:22 ( AFP )- Doctors in Germany working on mice say a drug commonly used for...
  2. M

    DF508 and 1154insTC

    Ambry just came back on my husband, so we know both of his mutations now. Anyone have info on the 1154insTC? Mostly, we're just curious... between J and his brother, we know that the mutations aren't everything.
  3. M

    PGD and Insurance

    Anyone sucessfully petition (or know someone who did) insurance to cover PGD (and IVF) for CF? Looking at PGD prices is making me ill.
  4. M

    Really silly IVF question

    So I have the most evil moster cramps from hell (so I'm worried about endo - joy).. because of that I'm on Seasonale BC pills. Since we're dealing with CBAVD, there's no reason for us to have ever TTCed the normal way and I love my "only 4 periods a year" existance. When the heck do I go off...
  5. M

    G576A and R668C

    Anyone have both of these mutations? I want to pester you for more information. UPDATE: Testing on my parents showed that the mutations are both on the same chromosome, and I am a carrier.
  6. M

    I'm back...

    ...and I'm MARRIED! Our wedding itself was gorgeous (I'll be sure to link pictures when I have them), the reception was lots of fun... The honeymoon was a blast - we had such a great time (it was SO hard to come back). Did you know that 5 miles of backpacking with a 40 pound pack serves as...
  7. M

    Interesting article on hearing loss

    Since so many of those here end up on aminoglycides (Tobra and its friends)... this article should be of interest. <a target=_blank class=ftalternatingbarlinklarge href="http://www.eurekalert.org/pub_releases/2006-04/uomh-asp042506.php">Aspirin shows promise in combating a common...
  8. M

    lilMeggies - Meghan

    Your sister is hacking into your accounts (she knows your password), and trying to get you banned. I strongly recommend that you choose a strong password (mixed case, using letters and numbers, and more than 6 characters in length) that cannot be guessed by people who know you. It is also...
  9. M

    Air Pollution and CF

    <a target=new class=ftalternatingbarlinklarge href="http://www.uwnews.org/article.asp?articleID=3878">An article</a> about fine particulates and adverse efffects on people with CF. Personally, I'm filing this in the "Well, big freakin' duh" category (Otherwise known as the "No s$%#, really?"...
  10. M

    Our CF doc is awesome

    We have the most awesome doctor (Dunitz at the U of MN clinic). He's on hospital rotation, but he made time to see Jeremy in clinic. Jeremy had been in two weeks ago and his numbers were down, so antibiotics, more vest, and a clinic in two weeks (today). Plus, Dunitz made me a printout of his...
  11. M

    Mucomyst (acetylcysteine)

    Anyone use Mucomyst (acetylcysteine)? I was just curious, since I haven't heard it mentioned much around the forums. -Michelle
  12. M

    Hypertonic Saline

    Anybody using hypertonic saline? What percentage? Where do you get it? Does your insurance cover it? How much does it cost? I'm asking because we're having a heck of a time getting any. Insurance is being irritating about it (what a surprise). They won't cover the 10% solution at all, the...
  13. M

    Clinical Studies

    Anyone else participating in a clinical study at the moment? I ask because my boyfriend just started in one that is looking at using Diabetes therapy to improve muscle mass (and of course, lung function) in CFers with abnormal blood glucose but without fasting hyperglycemia (high blood sugar in...
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