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I am sure this has been asked a hundred times, but I could not find an old thread, so sorry for those who have probably answered a similiar question a hundred times! I have a picky toddler who I need to get more protein into! He does not like meat--will eat hot dogs and bologna and that is about...

So we had our clinic appt. today and after finally achieving our "green" level for BMI (Luke is actually at the 69th percentile!!), now they are concerned that he is too short. He is very tiny, but proportionate. I am short and my husband is average height. Our dr. is refering us to an...

Our 2 1/2 year old has just recently learned to climb out of his crib. We are thinking about moving to a big boy bed, but he has a feeding tube and we are a little worried about that. Anybody made the switch and can give any advice on that. Thanks!

I am sure this has come up before, but I searched the old posts and could not find anything. Our son currently gets SSI/disability and a medical card. We have managed to make the income criteria by the skin of our teeth and we do get a small check. I really don't worry about losing his check. It...

So it is that time of year again here in the West Virginian hills--fall allergy season. I have always felt that Luke is largely affected by this, but he has been so small and I have just now had adequate time to really track his symptoms. He has been perfectly clear for months and has just now...

I am on the search for some good general cleaning products without harsh fumes/smells but that will still work to kill bacteria. I am willing to "make" it or buy it. I just feel like the traditional cleaners (especially bathroom cleaners) have too strong of a scent--I know they make me cough...

Ok, I have two really bizarre and unrelated questions but I did not want to post two different times. So here it goes. 1. Our son Luke (he is two) is extremely "bow-legged". He was an early walker (he walked at 9 months, but was about the size of a 6 month old) and everyone assumed it would just...

My husband and I are thinking about changing CF clinics. Our son has been at this clinic since he was diagnosed at 3 months and he is now 2 years old. I have been hesitant to change because we have history there, but we have been unhappy with the follow up and consistency of care there. We have...

Ok, so we leave in 3 days for Walt Disney World. We are flying out of BWI and I am completely going crazy now because of this swine flu thing. I was already nervous about flying with Luke, and now I am a total basket case. I called our clinic and the nurse coordinator kinda hinted that we...

Ok, so I only get to come on the site every so often and when I do I go on this marathon of posting--sorry about that!!! But when I start to read the other posts I learn so much and realize how much I really don't know. I guess I am confused now because I read about these different meds. that...

I am sure this has been a topic before, but I could not find it.... When did your kids begin to swallow their enzymes and how did you teach them to do that? Luke is 19 months old and I have read that some kids are swallowing their enzymes by now. We are still doing the applesause thing and it is...

I think this is probably along the subject of when to call, when to go in, etc. but I am not sure what to ask when I do call. Luke has had two double ear infections this winter. He always has increased congestion/junkiness along with them. He has been on oral antibiotics twice-amox. the first...

I was just wondering, could anyone suggest a good book or some other reading material that I can refer to? They gave us some info. at clinic and I have been on several websites. I keep reading about cultures and fecal fat analysis and mutations and I don't understand what it all means. I would...

So we had our firts clinic visit for Luke yesterday. He weighs 8 lbs. 2/12 oz. He gained 3 1/2 oz in 4 days. The nutrition said that it was good, but now we have to make his formula high calorie. His oxygen saturations were 99!!!! And his cultures were negative--normal flora, it said. I was...

I am new to all of this--posted a message as a reply, but not sure I am doing this right. I guess I will get the hang of it. I have to, because I really need the support. Our three month old son was diagnosed this week with CF via a sweat test. I don't know the exact mutations yet; we see the...