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What did you guys take as far as the dosage and how often? I see that there are 1200 mg, 600 mg and 400 mg tablets and wasn't sure what I should be taking and how often?

I'm sure this answer is here somewhere but what drugs are allowed and not allowed during pregnancy. I am currently on TOBI Podhaler and alternating that with cayston. I also take Pulmozyme, albuterol and hypertonic saline, as well as azithromycin (500 mg 3x/week), symbicort, flonase. Any info...

Does anyone know if there's a way to order/buy an extra hand set for Cayston? Or do I have to have my doctor put in a script? It would make life so much easier to have one at work instead of lugging it back and forth.

edited for privacy

I am 26 years old, very healthy and have been married for 2 years now to a wonderful man. I lost my brother to cystic fibrosis when he was 17 and I was 14. I have CF as well, but it has been mild and I'm able to maintain very good weight and lung function. Growing up, I was always told I'd never...

Does anyone else just feel like you have sandpaper for an esophagus when your on TOBI? I feel like my throat is just constantly irritated. DOes anyone have any solutions? I've tried cough drops, but they don't work and that seems counterproductive as well...

Every time I go to my appointments, my doctor brings up using hyper tonic saline-- she isn't pushy but just asks if I wanted to start using it. I always say that I feel that I dont need it at this point b/c I'm already on albuterol and pulmozyme once daily and TOBI every other month along with...

I've been on TOBI for a few years now, and this has happened within the last few months, but I notice that my voice cracks ( i sound like a ten year old boy) or I'll be really raspy... and i wasn't sure if this was related to doing TOBI or something else. Anyone else have this problem?

For those of you that either have CF or partner with CF, did you get genetic testing done. Did you only do the CF panel that tests for the most common type of mutations or did you do the one where they just keep testing for mutations. My fiance just got his results back and he is negative but we...

how do you deal with the issue of pregnancy with your partner? If you have CF, does your partner want kids? Are you willing to try? How you ever dealt with possibly breaking up because he/she wants kids but you are not sure if you'll be healthy enough or up to the task?