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  1. V

    Excersise and weight

    Hi, well I dont know much about excercising without losing weight, I really dont think you can, I would think you would just have to take in extra calories depending how much you excersise.
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    New question about SSI

    Hi, I was wondering if anyone knew ---- If you start working and get cut off of SSI, then you get real sick after so many years, and can't work anymore do you have to go through the whole process of reapplying and waiting to get approved or do they automatically give it to you since youve been...
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    Pregnancy and CF

    Hi Sarah, if you read this, I would really like to talk to you. Seems like you and I have some things in commen. By the way, my baby was 5 weeks early too, and weighed 5 pounds 9 ounces. Ive seen you on here a lot and would really like you to email me, sorry if I sound desperate, dont mean...
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    Wanting to be Pregnant, Just for the Sake of Being Pregnant?

    To the original poster, I used to have the same feelings when I was a teenager, wanting to be pregnant just for the attention, but then the need grew to me actually wanting a child to love and raise for my own, so I went against all odds and 6 months ago had a healthy baby girl.
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    Is it just me?

    I hate it too. But, I think the reason why we hate it so much is cause we do want to think of ourselves as normal. People feel too sorry for us too, and thats why they ask, cause they think the worse, if that makes sence. When I was a kid, what really made me annoyed is when I coughed and...
  6. V

    job

    I dont know about the labor thing, but all my life I have worked with farm animals, some are surprised at that, because of the dander and hair and all, now I am a Kennel Tech training to be a vet tech and never have had a problem with it. I think too, that hard work makes me healthier.
  7. V

    California question

    Does anyone know how the GHPP system works? Do they cut you off if you start working? Is it only for people on SSI?
  8. V

    curious

    One person who can always tell is my stepmom, I guess cause she raised me and knows how I am when Im normal. She can even tell over the phone, for some reason. Sometimes she'll ask me "why are you breathing like that?" and I dont even notice a difference.
  9. V

    Fear and hard choices

    Arthur I'd like to say that I dont blame you for turning to us for support on this issue. I would do the same, cause doctors dont know what we really go through. Id like to tell you about what I experienced as a child with CF. Luckily I was raised by my stepmom who was a Nurse. She kept up on...
  10. V

    I've been waking up very tight and breathless

    Yes it has happened to me a lot but not every morning for a straight month. But I do know excactly how it feels. Its called a "lung spasm" it has to do with the mucus in your lungs, for me (happening just every once in a while) my doctor said that's normal. But if I were you, I would see...
  11. V

    When do you tell....

    I say, tell the girl right away about your CF. Ive always told the guy I have it and since they didnt really know what it was, they didnt care, besides they liked me for my personality. If you tell the girl you have CF and it scares her then she's not worth the trouble in the first place. I...
  12. V

    Just Diagnosed at 36

    The best advice I can give is, when they do give you the daily routine of meds, stick to it. I have reaccurant staph infections, and Im told thats one of the worse infections you can get, you'll probably have to be hospitalized and sometime they put me in isolation because staph is contagious...
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    Clubbing

    a couple of my fingers on each hand have always been slightly clubbed, but never real bad where I have been embarrassed or anything and I havent had anyone notice or make comments. But I do notice a little clubbing and Im used to it, NO BIG THING. :0)
  14. V

    Working full time

    I want to know, for those of you who work full time, how are you dealing with that. Does it make life easier or harder? I just got my first full time job, I start Monday and am kind of nervous, cause Ive been on SSI for years and I know they are going to cut me off. Im worried about getting...
  15. V

    The hardest thing

    You could apply for disabilty even if you've never worked, I did.
  16. V

    Anyone w/cf have children?

    Hello, as you can probably tell by my name I have a beautiful little girl. She's 6 months old now. Anyway, She was planned. I had wanted a baby for years and still want more, but I dont think I'll be having any more any time soon, this one was so hard on me throughout the pregnancy, I gotta...
  17. V

    Terri Schaivo

    Not trying to argue or anything but thats exactly what they are doing, killing her isnt it? They are brudely murdering her in my opinion and its not right, its the same as torture. If I was being tortured I would rather just die
  18. V

    looking for cf pals

    You can email me at anytime until the 5th of April: vickysmommy1@aol.com or otherwise email me at: vickysmommy1@netzero.net
  19. V

    The hardest thing

    Wow, I just got my first full time job, and Im kind of nervous about my health issues too. Im on SSI (disability) now and have been for a few years. Im like you, I wanted to work, because I need something to keep me occupied and I have to contribute to my financial situation cause its not so...
  20. V

    Physical well Being of people with CF

    I dont excersise at all besides lifting my 20 pound baby all the time, somedays are good and some are bad for me though, lately Ive been huffing and puffing walking up and down the stairs.
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