Search results

What are some of the most difficult situations everyone has had to deal with in their life because of CF, whether it be being picked on in school, or self esteem issues, ect.... I think the hardest thing that Ive ever had to deal with is the way people treat me when I was in school, mostly High...

My father once told me, while I was in the hospital, after having my baby, "It's easier to for you to die then for me to watch you die." Something to think about, I guess

I agree with the fact that Terri's wishes as to not living the way she is should be honored, but why in the world would they do it this way, she is or was dying a slow aginizing death, being starved to death is no way for anyone to die, like I said before, they needed to just kill her quick if...

Think if you were in Terri's situation, which some of us may someday be, would you want to be starved to death or just die on your own. Sure, Terri may have said that she wouldnt want to live like that BEFORE she got in the accident but who knows what she thinks now. I think its wrong for her...

Ive been on here for a couple months now and there are topics on here that start off interesting then an argument breaks out. I mean it defeats the whole purpose of what the original poster posted and wanted to talk about and it just makes people mad, right? Like we dont have enough problems...

Have you tried Scandi shakes. They are shakes especially made for CF patients. All you have to do is write to the company and request the shakes and if you take Ultrase which is a requirement you have to include proof of prescription. They are really good and 600 calories each. Hope this...

The truth is, I think I would rather die of CF then anything else cause I dont want anything to take me sooner then Im suppost to go, you know what I mean?

it helps with the mucus, decreases it which in turn helps with your breathing. It helps me a lot, but I just cant get off it cause once you take it for a while, its like a drug your sytem is addicted and cant function without it

last thing i heard as of finding a cure that they found the gene that causes CF and that they would find a cure within 10 years and that was back in the early 90s. If they did find a cure I think I would throw a very big party and make everyone I know come, including all of you! He He But I...

well i think its too late for me to get off, because my doctors have been trying to taper it off since i've been on it and every time i get off it completly, i have respiratory problems bad! I would like to be off it cause it seems i depend on it now to keep me going. it sucks

I have been on prednizone for 10 years now, daily. It's great! just wondering if Im the only one, cause my new CF specialist was surprised to find that Ive been on it for so long

How will everyone react when they find a cure???!!!! Honestly, I dont know what I would do.

Im sure many of you, like me worry about when were gonna die and we all get scared thinking about it. I'd like to know how you all deal with these thoughts. When I think about when I am going to die, I think of the people Im leaving behind, mainly my daughter. But then again I also have...

I think there's bad things about both piccs and regular IVs. The Piccs kind of make my arm sore and I hate that, for the first few days you cant really bend your arm cause its uncomfortable. But with regular IVs they get sore after a while if you dont change them at the right time, and Im...

Thanks everyone, I'll try talking to my doctor about just putting me on Miralax or something, Ive also been told I dont drink enough water but I feel like I drink a lot so its all confusing. And its not constipation really. I go, but I just have cramps like I have to go all the time, and I am...

Hi everyone I have a concern, Lately I have had a lot of gas and problems with going to the bathroom. I have never had THIS much trouble before. Im wondering if you all have any suggestions, because I know if I tell my doc all he's gonna do is refer me to another doctor who will just examine...

I have always had crooked teeth as a kid and had to have braces. Now as an adult I my front bottom teeth are really small, like they have been eaten away or something. I never really thought that maybe it has to do with CF but now it makes me wonder hmmmm!

What's Battens disease anyway, Never heard of it. And to you people that are lashing out at the person who originally posted, that is just wrong, maybe this person just wants someone to talk to who has a life threatening illness like her child. Ever thought of that? Besides CF is not all we...

Have you thought about Government help, like Home Care so you wont have to do it alone. Just a suggestion

I was having a lot of disscomfort in my intestines, and my doctor said to drink more fluids like water. I did drink like 5-6 glasses of kool aide with salt and sugar added (tastes just like gatoraid if you add just the right amount of salt) for a couple days straight and Im a lot better now...