Search results

Hello, I would love some input..my otherwise awesome and healthy four year old girl has recently started complaining about tummy aches ? clinic says she need more fiber..but she eats a pretty good diet ..is this just a CF thing ? she also threw up the other night and it looked kinda foamy ...

Hello everyone, My sweet girl just turned 3 and just cultured pseudomonas -Putida and Fluorescens for the first time. I am dissappointed but the clinic says there is nothing to be alarmed at and will just watch it ? I should add we are attending a new clinic and they seem to have a more "wait...

looking for a an Air purifer for CF'ers bedroom any suggestions? quiet? effective ? many thanks!

Hello there, We are considering a move to Albuquerque and would love your input on the care center there ( it seems at UNM..are there others?) our daughter is 2 and doing great but we have such a great team now ...however job opportunity calls for husband so we have to consider it.. I guess...

Hello,<br><br>We are about to get a vest for our 2yro.the clinic says we have to commit to one type..i would love your feedback on which one works best for your toddler? <br><br>Thanks so much for your input.<br><br>Best,<br><br>Susan<br>

Hello,<br><br>We are about to get a vest for our 2yro.the clinic says we have to commit to one type..i would love your feedback on which one works best for your toddler? <br><br>Thanks so much for your input.<br><br>Best,<br><br>Susan<br>

Hello, as always thanking you in advance for the great insights on this site.. . so.. my husband and I carry the CF gene..our daughter has CF she is 16 mths and doing great ( knocking on wood) we are thinking about another child and it appears our insurance would cover IVF and PGD given...

Hello, as always thanking you in advance for the great insights on this site.. .. so.. my husband and I carry the CF gene..our daughter has CF she is 16 mths and doing great ( knocking on wood) we are thinking about another child and it appears our insurance would cover IVF and PGD given the...

Greetings, I just got a result from a fecal elastase that was 29 for My 12 mth old? the clinic said " this just shows she needs her enzymes" but as this is so far below 200 i am freaked out ? did anyone else do this test and if so what kind of number did you get ? if it was this low does that...

Hello everyone .. We just moved with our 11 mth old .. The old clinic had us suction her nose ( with a yanker machine..) twice a day .. New clinc says this is not necessary .. Have to say I am relieved as it was becoming really difficult and was always a dreaded task .. Just curious if anyone...

Hello, My husband and I are moving to New Brunswick NJ with our 8mth old.( she is doing great thank goodness !) .We are leaving a wonderful centre in the Dallas Area and would appreciate any input regarding CF centres in this area. many thanks !

Hello everyone, has anyone had an issue with Cigna denying coverage of synagis ( the antigen for prrotection against RSV ... We have 7 week old and they have refused our appeal despite the huge concern of our peditrician and pulmologist. We are baffled and so frustrated As our pulmologist has...