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  1. M

    I used an E Cig today, I'm a bit worried

    E-Cigs are a vapor-based product. Therefore, it is not harmful to your lungs. The taste and nicotine are probably what you tasted/experienced. You are fine.
  2. M

    Dog - Yes or No? Please advise

    I love my dog, and honestly I think she has had a positive impact on my life. I definitely exercise more because of her, and the unconditional love isn't bad either. That said, if I was sicker I imagine it could be hard for me to care for her very well. But if you live with someone, I don't...
  3. M

    Smoking Pot/RSO Oil

    Throwing this out there. Vaporizing marijuana will get the anti-inflammatory stuff to your lungs without the bed stuff like tar that can cause occlusion and cancer.
  4. M

    Vertex

    The two trials I found were the ones for 661 and 770 and another for 809 and 770. http://clinicaltrials.gov/ct2/show/NCT01531673?term=vertex&cond=%22Cystic+Fibrosis%22&rank=1 http://clinicaltrials.gov/ct2/show/NCT01225211?term=vertex&cond=%22Cystic+Fibrosis%22&rank=5
  5. M

    What OTC meds do you take?

    I take Aleve Liqui-Gels (up to 4x a day for pain, doc Ok-ed it), Fish Oil, Calcium, Mirilax (as needed), Melatonin, Krill Oil, and Fulvic Acid Colloidal Minerals.
  6. M

    Meropenem & Ceftazidime

    My joints and back always are killing me when I'm on antibiotics. I have no idea why though. (I use meropenem and imipenem on and off)
  7. M

    colloidal Silver?

    Plus, overexposure to colloidal silver has been known to cause Argyria.
  8. M

    Xylosoxidan

    Although I said it before, Ticarcillin aka Timentin worked great for me for many years. They could just never outright kill it. Supposedly there is a good synergistic effect between penicillin antibiotics and aminoglycosides. (aka Zosyn/Timentin and Tobramycin)
  9. M

    Xylosoxidan

    For me the cocktail I use when I'm not too sick is Cipro + Doxycycline. IVs are Meropenem and Tobramycin. Inhaled antibiotics are Cayston alternating with TOBI. Why does it seem like USC is kicking people off the TX list for some common bugs. I know achromobacter isn't too common, but someone...
  10. M

    Xylosoxidan

    I have Achromobacter (Alcalignes xylosoxidans). Interestingly enough, all the sensitivities that they run show that it is resistant. But we have tried combo medications with better results. I am allergic to Zosyn and Fortaz and built up resistance to Ticarcillin. Becasue of this I am now taking...
  11. M

    Have you ever received PT in a hospital?

    I get it from a PT when I'm in the hospital. Side note: most of them suck at it because they have to do so many and their arms get tired.
  12. M

    Looking for a CF Center in Northern NJ or NYC

    I used to go to Columbia Presbyterian when I lived in NY.
  13. M

    Voice

    This isn't really a problem, but more of a question/intersting observation. I have always heard that people deepen thier voice by yelling, coughing, etc. So wouldn't you think that people with CF would have really deep voices? I was wondering about this after getting mistaken for a woman on the...
  14. M

    Cayston users

    1. Yes 2. Yes (but now we are switching to Colistin) 3. No idea honestly.
  15. M

    Cayston users

    1. Yes 2. Yes (but now we are switching to Colistin) 3. No idea honestly.
  16. M

    Creon capsules with microspheres not working

    I used to take the Creon in applesauce.
  17. M

    Creon capsules with microspheres not working

    I used to take the Creon in applesauce.
  18. M

    Acid reflux and hemoptysis?

    Why did you have to go off the reflux meds? I have been on oral vancomycin for C-diff and I never went off my Nexium.
  19. M

    Acid reflux and hemoptysis?

    Why did you have to go off the reflux meds? I have been on oral vancomycin for C-diff and I never went off my Nexium.
  20. M

    IV side effects

    Side effects range from drug to drug. I usually get nausea, vomiting, diarrhea, pain in my joints and back and general fatigue. You do have to watch out for allergic reactions though. Some even take awhile to present themselves. When I was on Zosyn I initially got a fever and pain that went...
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