Amnio test said my baby is positive for CF

Peanut2008 · Jan 23, 2008

thank u Diane, i need to make a correction my baby will have double df508 me and my finacee carry the df508 mutation. I am happy that u still have your original lungs that is great!!!! but what mutation do u have? Believe me if i could know that my baby will be like the ones here which have lived far longer than what i originally thought possible i would take the chance but i also look at the rememberance and for some horrible reason i see my little baby there at a few months....i dont know what i am going to do...i tried to spk to a specialist today but was told that the one i needed to spk to wont be there until tomorrow which will be too late....i dont think this is meant to be and this is what is driving me crazy!!!

Peanut2008 · Jan 23, 2008

thank u Diane, i need to make a correction my baby will have double df508 me and my finacee carry the df508 mutation. I am happy that u still have your original lungs that is great!!!! but what mutation do u have? Believe me if i could know that my baby will be like the ones here which have lived far longer than what i originally thought possible i would take the chance but i also look at the rememberance and for some horrible reason i see my little baby there at a few months....i dont know what i am going to do...i tried to spk to a specialist today but was told that the one i needed to spk to wont be there until tomorrow which will be too late....i dont think this is meant to be and this is what is driving me crazy!!!

Peanut2008 · Jan 23, 2008

thank u Diane, i need to make a correction my baby will have double df508 me and my finacee carry the df508 mutation. I am happy that u still have your original lungs that is great!!!! but what mutation do u have? Believe me if i could know that my baby will be like the ones here which have lived far longer than what i originally thought possible i would take the chance but i also look at the rememberance and for some horrible reason i see my little baby there at a few months....i dont know what i am going to do...i tried to spk to a specialist today but was told that the one i needed to spk to wont be there until tomorrow which will be too late....i dont think this is meant to be and this is what is driving me crazy!!!

Peanut2008 · Jan 23, 2008

thank u Diane, i need to make a correction my baby will have double df508 me and my finacee carry the df508 mutation. I am happy that u still have your original lungs that is great!!!! but what mutation do u have? Believe me if i could know that my baby will be like the ones here which have lived far longer than what i originally thought possible i would take the chance but i also look at the rememberance and for some horrible reason i see my little baby there at a few months....i dont know what i am going to do...i tried to spk to a specialist today but was told that the one i needed to spk to wont be there until tomorrow which will be too late....i dont think this is meant to be and this is what is driving me crazy!!!

Peanut2008 · Jan 23, 2008

thank u Diane, i need to make a correction my baby will have double df508 me and my finacee carry the df508 mutation. I am happy that u still have your original lungs that is great!!!! but what mutation do u have? Believe me if i could know that my baby will be like the ones here which have lived far longer than what i originally thought possible i would take the chance but i also look at the rememberance and for some horrible reason i see my little baby there at a few months....i dont know what i am going to do...i tried to spk to a specialist today but was told that the one i needed to spk to wont be there until tomorrow which will be too late....i dont think this is meant to be and this is what is driving me crazy!!!

Ratatosk · Jan 23, 2008

We found out shortly after our son was born that he had cystic fibrosis. He had double delta f508. I can't believe that a doctor in this day and age would tell you your child would be sufferering and in pain. We do daily vest treatments, nebulized medications, oral meds; but he's a NORMAL ACTIVE preschooler. Here's a photo of him shortly after he was born and another this past summer. Not in any pain.

Ratatosk · Jan 23, 2008

We found out shortly after our son was born that he had cystic fibrosis. He had double delta f508. I can't believe that a doctor in this day and age would tell you your child would be sufferering and in pain. We do daily vest treatments, nebulized medications, oral meds; but he's a NORMAL ACTIVE preschooler. Here's a photo of him shortly after he was born and another this past summer. Not in any pain.

Ratatosk · Jan 23, 2008

We found out shortly after our son was born that he had cystic fibrosis. He had double delta f508. I can't believe that a doctor in this day and age would tell you your child would be sufferering and in pain. We do daily vest treatments, nebulized medications, oral meds; but he's a NORMAL ACTIVE preschooler. Here's a photo of him shortly after he was born and another this past summer. Not in any pain.

Ratatosk · Jan 23, 2008

We found out shortly after our son was born that he had cystic fibrosis. He had double delta f508. I can't believe that a doctor in this day and age would tell you your child would be sufferering and in pain. We do daily vest treatments, nebulized medications, oral meds; but he's a NORMAL ACTIVE preschooler. Here's a photo of him shortly after he was born and another this past summer. Not in any pain.

Ratatosk · Jan 23, 2008

We found out shortly after our son was born that he had cystic fibrosis. He had double delta f508. I can't believe that a doctor in this day and age would tell you your child would be sufferering and in pain. We do daily vest treatments, nebulized medications, oral meds; but he's a NORMAL ACTIVE preschooler. Here's a photo of him shortly after he was born and another this past summer. Not in any pain.

pnhuffman · Jan 23, 2008

Peanut,
My son Austin is also a Double Delta 508. He is not in pain and suffering. Yes he does take daily medictions and treatments. He is a typical little boy. If you looked at him walking down the street or playing you would never know anything was wrong with him.

I agree with Liza. I can not believe that in this day and age a doctor would tell you that your child would be in pain and suffering until the day he dies. That is not true at all.

My son is very active and ornery. LOL! I just wish you would take the time to stop and think things through. Also REMEMBER what everyone else has said on here. Don't always believe what you read due to outdated information.

You said you seen young ones being very sick but also look into the older ones living normally. there are many on this site that weren't even diagnosed til later in life. Lots of people on here are in their 30's, 40's and 50's.

pnhuffman · Jan 23, 2008

Peanut,
My son Austin is also a Double Delta 508. He is not in pain and suffering. Yes he does take daily medictions and treatments. He is a typical little boy. If you looked at him walking down the street or playing you would never know anything was wrong with him.

I agree with Liza. I can not believe that in this day and age a doctor would tell you that your child would be in pain and suffering until the day he dies. That is not true at all.

My son is very active and ornery. LOL! I just wish you would take the time to stop and think things through. Also REMEMBER what everyone else has said on here. Don't always believe what you read due to outdated information.

You said you seen young ones being very sick but also look into the older ones living normally. there are many on this site that weren't even diagnosed til later in life. Lots of people on here are in their 30's, 40's and 50's.

pnhuffman · Jan 23, 2008

Peanut,
My son Austin is also a Double Delta 508. He is not in pain and suffering. Yes he does take daily medictions and treatments. He is a typical little boy. If you looked at him walking down the street or playing you would never know anything was wrong with him.

I agree with Liza. I can not believe that in this day and age a doctor would tell you that your child would be in pain and suffering until the day he dies. That is not true at all.

My son is very active and ornery. LOL! I just wish you would take the time to stop and think things through. Also REMEMBER what everyone else has said on here. Don't always believe what you read due to outdated information.

You said you seen young ones being very sick but also look into the older ones living normally. there are many on this site that weren't even diagnosed til later in life. Lots of people on here are in their 30's, 40's and 50's.

pnhuffman · Jan 23, 2008

Peanut,
My son Austin is also a Double Delta 508. He is not in pain and suffering. Yes he does take daily medictions and treatments. He is a typical little boy. If you looked at him walking down the street or playing you would never know anything was wrong with him.

I agree with Liza. I can not believe that in this day and age a doctor would tell you that your child would be in pain and suffering until the day he dies. That is not true at all.

My son is very active and ornery. LOL! I just wish you would take the time to stop and think things through. Also REMEMBER what everyone else has said on here. Don't always believe what you read due to outdated information.

You said you seen young ones being very sick but also look into the older ones living normally. there are many on this site that weren't even diagnosed til later in life. Lots of people on here are in their 30's, 40's and 50's.

pnhuffman · Jan 23, 2008

Peanut,
My son Austin is also a Double Delta 508. He is not in pain and suffering. Yes he does take daily medictions and treatments. He is a typical little boy. If you looked at him walking down the street or playing you would never know anything was wrong with him.

I agree with Liza. I can not believe that in this day and age a doctor would tell you that your child would be in pain and suffering until the day he dies. That is not true at all.

My son is very active and ornery. LOL! I just wish you would take the time to stop and think things through. Also REMEMBER what everyone else has said on here. Don't always believe what you read due to outdated information.

You said you seen young ones being very sick but also look into the older ones living normally. there are many on this site that weren't even diagnosed til later in life. Lots of people on here are in their 30's, 40's and 50's.

AnD · Jan 23, 2008

Just to let you know, I am a double DF508, 37 years old and have my original lungs. Because of the new treatments, I am in better shape than I was 6 years ago, when my doctor's said I was healthy enough to have a baby.

I have a normal life. Yes, there are treatments to be done, yes, sometimes I have to go in the hospital, yes, it is hard sometimes, but heck, so is life for anybody else too. But it is worth it. IMHO, of course. Seems alot of other people here think so too, who have been where you are, and are living what you are considering.

We, the adults and children who have cf, and parents and family of cf patients who are here, living and enjoying life's big and little joys, managing through and supporting each other through the hard times, are the reality, not some doctor who obviously doesn't know what he is talking about.

If we all here didn't have something in life that we enjoy, or something to strive for, goals we enjoy accomplishing, basically, if we weren't glad to be alive, this site would not be here, and so full of adults living with cf.

The median age of survival for cf patients now is 37 years old. This means, that even those of us who didn't have the new medicines and treatments when we were younger (when there was practically nothing!) are still living well into adulthood now.

The chances that your child will be just as healthy (or healthier, with the new medications and treatments that are going through testing right now) as any other child or adult here are good. At least you will be giving him a chance.

As someone said, there is always adoption if you don't think you can handle it, though as many people here have said, it is doable, and certainly worth it to give your child a chance. There are members here who have adopted children with cf.

Just reschedule, give yourself more time to gather more information, talk to the specialist (I am assuming here that the specialist is a doctor who treats cf patients? That is who you need to talk to) and don't let yourself be rushed or pushed into something you can't undo, only to find out later that you didn't have all the facts and might have decided differently. That would be a horrible regret to live with.

AnD · Jan 23, 2008

Just to let you know, I am a double DF508, 37 years old and have my original lungs. Because of the new treatments, I am in better shape than I was 6 years ago, when my doctor's said I was healthy enough to have a baby.

I have a normal life. Yes, there are treatments to be done, yes, sometimes I have to go in the hospital, yes, it is hard sometimes, but heck, so is life for anybody else too. But it is worth it. IMHO, of course. Seems alot of other people here think so too, who have been where you are, and are living what you are considering.

We, the adults and children who have cf, and parents and family of cf patients who are here, living and enjoying life's big and little joys, managing through and supporting each other through the hard times, are the reality, not some doctor who obviously doesn't know what he is talking about.

If we all here didn't have something in life that we enjoy, or something to strive for, goals we enjoy accomplishing, basically, if we weren't glad to be alive, this site would not be here, and so full of adults living with cf.

The median age of survival for cf patients now is 37 years old. This means, that even those of us who didn't have the new medicines and treatments when we were younger (when there was practically nothing!) are still living well into adulthood now.

The chances that your child will be just as healthy (or healthier, with the new medications and treatments that are going through testing right now) as any other child or adult here are good. At least you will be giving him a chance.

As someone said, there is always adoption if you don't think you can handle it, though as many people here have said, it is doable, and certainly worth it to give your child a chance. There are members here who have adopted children with cf.

Just reschedule, give yourself more time to gather more information, talk to the specialist (I am assuming here that the specialist is a doctor who treats cf patients? That is who you need to talk to) and don't let yourself be rushed or pushed into something you can't undo, only to find out later that you didn't have all the facts and might have decided differently. That would be a horrible regret to live with.

AnD · Jan 23, 2008

Just to let you know, I am a double DF508, 37 years old and have my original lungs. Because of the new treatments, I am in better shape than I was 6 years ago, when my doctor's said I was healthy enough to have a baby.

I have a normal life. Yes, there are treatments to be done, yes, sometimes I have to go in the hospital, yes, it is hard sometimes, but heck, so is life for anybody else too. But it is worth it. IMHO, of course. Seems alot of other people here think so too, who have been where you are, and are living what you are considering.

We, the adults and children who have cf, and parents and family of cf patients who are here, living and enjoying life's big and little joys, managing through and supporting each other through the hard times, are the reality, not some doctor who obviously doesn't know what he is talking about.

If we all here didn't have something in life that we enjoy, or something to strive for, goals we enjoy accomplishing, basically, if we weren't glad to be alive, this site would not be here, and so full of adults living with cf.

The median age of survival for cf patients now is 37 years old. This means, that even those of us who didn't have the new medicines and treatments when we were younger (when there was practically nothing!) are still living well into adulthood now.

The chances that your child will be just as healthy (or healthier, with the new medications and treatments that are going through testing right now) as any other child or adult here are good. At least you will be giving him a chance.

As someone said, there is always adoption if you don't think you can handle it, though as many people here have said, it is doable, and certainly worth it to give your child a chance. There are members here who have adopted children with cf.

Just reschedule, give yourself more time to gather more information, talk to the specialist (I am assuming here that the specialist is a doctor who treats cf patients? That is who you need to talk to) and don't let yourself be rushed or pushed into something you can't undo, only to find out later that you didn't have all the facts and might have decided differently. That would be a horrible regret to live with.

AnD · Jan 23, 2008

Just to let you know, I am a double DF508, 37 years old and have my original lungs. Because of the new treatments, I am in better shape than I was 6 years ago, when my doctor's said I was healthy enough to have a baby.

I have a normal life. Yes, there are treatments to be done, yes, sometimes I have to go in the hospital, yes, it is hard sometimes, but heck, so is life for anybody else too. But it is worth it. IMHO, of course. Seems alot of other people here think so too, who have been where you are, and are living what you are considering.

We, the adults and children who have cf, and parents and family of cf patients who are here, living and enjoying life's big and little joys, managing through and supporting each other through the hard times, are the reality, not some doctor who obviously doesn't know what he is talking about.

If we all here didn't have something in life that we enjoy, or something to strive for, goals we enjoy accomplishing, basically, if we weren't glad to be alive, this site would not be here, and so full of adults living with cf.

The median age of survival for cf patients now is 37 years old. This means, that even those of us who didn't have the new medicines and treatments when we were younger (when there was practically nothing!) are still living well into adulthood now.

The chances that your child will be just as healthy (or healthier, with the new medications and treatments that are going through testing right now) as any other child or adult here are good. At least you will be giving him a chance.

As someone said, there is always adoption if you don't think you can handle it, though as many people here have said, it is doable, and certainly worth it to give your child a chance. There are members here who have adopted children with cf.

Just reschedule, give yourself more time to gather more information, talk to the specialist (I am assuming here that the specialist is a doctor who treats cf patients? That is who you need to talk to) and don't let yourself be rushed or pushed into something you can't undo, only to find out later that you didn't have all the facts and might have decided differently. That would be a horrible regret to live with.

AnD · Jan 23, 2008

Just to let you know, I am a double DF508, 37 years old and have my original lungs. Because of the new treatments, I am in better shape than I was 6 years ago, when my doctor's said I was healthy enough to have a baby.

I have a normal life. Yes, there are treatments to be done, yes, sometimes I have to go in the hospital, yes, it is hard sometimes, but heck, so is life for anybody else too. But it is worth it. IMHO, of course. Seems alot of other people here think so too, who have been where you are, and are living what you are considering.

We, the adults and children who have cf, and parents and family of cf patients who are here, living and enjoying life's big and little joys, managing through and supporting each other through the hard times, are the reality, not some doctor who obviously doesn't know what he is talking about.

If we all here didn't have something in life that we enjoy, or something to strive for, goals we enjoy accomplishing, basically, if we weren't glad to be alive, this site would not be here, and so full of adults living with cf.

The median age of survival for cf patients now is 37 years old. This means, that even those of us who didn't have the new medicines and treatments when we were younger (when there was practically nothing!) are still living well into adulthood now.

The chances that your child will be just as healthy (or healthier, with the new medications and treatments that are going through testing right now) as any other child or adult here are good. At least you will be giving him a chance.

As someone said, there is always adoption if you don't think you can handle it, though as many people here have said, it is doable, and certainly worth it to give your child a chance. There are members here who have adopted children with cf.

Just reschedule, give yourself more time to gather more information, talk to the specialist (I am assuming here that the specialist is a doctor who treats cf patients? That is who you need to talk to) and don't let yourself be rushed or pushed into something you can't undo, only to find out later that you didn't have all the facts and might have decided differently. That would be a horrible regret to live with.

Amnio test said my baby is positive for CF

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