Amnio test said my baby is positive for CF

lflatford · May 31, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: nicole781

Peanut,

please don't think that I'm trying to talk you out of a decision that you've made, but I would like to help clear up some misinformation that your dr. seems to be giving you.

Delta F508 is the most COMMON mutation, but not the worst. CF mutations go from a class 1 to a class 5 i believe, and DF508 is a class 2. My daughter has the same mutations.

Don't think that with these mutations that you will be saying goodbye to your baby within weeks, months or years. My daughter is 7 months old, and a normal baby who takes some extra medication every day.

There are people on this board with DF508 that are in their late 30's early 40's, so don't let the doctor scare you into something that you don't want 100%.

Good luck with whatever decision you make, and feel free to PM me if you need to.</end quote></div>

I could not agree with you more! My little girl has DDF508 and at the age of 4 she is as healthy as any 4 year old without CF. Sometimes the information we get is misleading, that is why a second opinion is very important. I fully expect Avery to grow up and bury my wife and I when we are old and gray, have kids, grandkids of her own.

Chuck

lflatford · May 31, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: nicole781

Peanut,

please don't think that I'm trying to talk you out of a decision that you've made, but I would like to help clear up some misinformation that your dr. seems to be giving you.

Delta F508 is the most COMMON mutation, but not the worst. CF mutations go from a class 1 to a class 5 i believe, and DF508 is a class 2. My daughter has the same mutations.

Don't think that with these mutations that you will be saying goodbye to your baby within weeks, months or years. My daughter is 7 months old, and a normal baby who takes some extra medication every day.

There are people on this board with DF508 that are in their late 30's early 40's, so don't let the doctor scare you into something that you don't want 100%.

Good luck with whatever decision you make, and feel free to PM me if you need to.</end quote></div>

I could not agree with you more! My little girl has DDF508 and at the age of 4 she is as healthy as any 4 year old without CF. Sometimes the information we get is misleading, that is why a second opinion is very important. I fully expect Avery to grow up and bury my wife and I when we are old and gray, have kids, grandkids of her own.

Chuck

lflatford · May 31, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: nicole781

Peanut,

please don't think that I'm trying to talk you out of a decision that you've made, but I would like to help clear up some misinformation that your dr. seems to be giving you.

Delta F508 is the most COMMON mutation, but not the worst. CF mutations go from a class 1 to a class 5 i believe, and DF508 is a class 2. My daughter has the same mutations.

Don't think that with these mutations that you will be saying goodbye to your baby within weeks, months or years. My daughter is 7 months old, and a normal baby who takes some extra medication every day.

There are people on this board with DF508 that are in their late 30's early 40's, so don't let the doctor scare you into something that you don't want 100%.

Good luck with whatever decision you make, and feel free to PM me if you need to.</end quote></div>

I could not agree with you more! My little girl has DDF508 and at the age of 4 she is as healthy as any 4 year old without CF. Sometimes the information we get is misleading, that is why a second opinion is very important. I fully expect Avery to grow up and bury my wife and I when we are old and gray, have kids, grandkids of her own.

Chuck

lflatford · May 31, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: nicole781

Peanut,

please don't think that I'm trying to talk you out of a decision that you've made, but I would like to help clear up some misinformation that your dr. seems to be giving you.

Delta F508 is the most COMMON mutation, but not the worst. CF mutations go from a class 1 to a class 5 i believe, and DF508 is a class 2. My daughter has the same mutations.

Don't think that with these mutations that you will be saying goodbye to your baby within weeks, months or years. My daughter is 7 months old, and a normal baby who takes some extra medication every day.

There are people on this board with DF508 that are in their late 30's early 40's, so don't let the doctor scare you into something that you don't want 100%.

Good luck with whatever decision you make, and feel free to PM me if you need to.</end quote>

I could not agree with you more! My little girl has DDF508 and at the age of 4 she is as healthy as any 4 year old without CF. Sometimes the information we get is misleading, that is why a second opinion is very important. I fully expect Avery to grow up and bury my wife and I when we are old and gray, have kids, grandkids of her own.

Chuck

lflatford · May 31, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: nicole781
 
 Peanut,
 
 please don't think that I'm trying to talk you out of a decision that you've made, but I would like to help clear up some misinformation that your dr. seems to be giving you.
 
 
 
 Delta F508 is the most COMMON mutation, but not the worst. CF mutations go from a class 1 to a class 5 i believe, and DF508 is a class 2. My daughter has the same mutations.
 
 
 
 Don't think that with these mutations that you will be saying goodbye to your baby within weeks, months or years. My daughter is 7 months old, and a normal baby who takes some extra medication every day.
 
 
 
 There are people on this board with DF508 that are in their late 30's early 40's, so don't let the doctor scare you into something that you don't want 100%.
 
 
 
 Good luck with whatever decision you make, and feel free to PM me if you need to.</end quote>
 
 
 I could not agree with you more! My little girl has DDF508 and at the age of 4 she is as healthy as any 4 year old without CF. Sometimes the information we get is misleading, that is why a second opinion is very important. I fully expect Avery to grow up and bury my wife and I when we are old and gray, have kids, grandkids of her own.
 
 Chuck

beleache · May 31, 2008

Hi Peanut, I didn't answer the first time, but wanted to say to you my heart breaks for you and that very hard decision you had to make. No judgement here, just a great big {{{{{Hug}}}}} to you.. Take care and God Bless you ~ <img src="i/expressions/heart.gif" border="0"> joni PS if you want to talk just PM me..

beleache · May 31, 2008

Hi Peanut, I didn't answer the first time, but wanted to say to you my heart breaks for you and that very hard decision you had to make. No judgement here, just a great big {{{{{Hug}}}}} to you.. Take care and God Bless you ~ <img src="i/expressions/heart.gif" border="0"> joni PS if you want to talk just PM me..

beleache · May 31, 2008

Hi Peanut, I didn't answer the first time, but wanted to say to you my heart breaks for you and that very hard decision you had to make. No judgement here, just a great big {{{{{Hug}}}}} to you.. Take care and God Bless you ~ <img src="i/expressions/heart.gif" border="0"> joni PS if you want to talk just PM me..

beleache · May 31, 2008

Hi Peanut, I didn't answer the first time, but wanted to say to you my heart breaks for you and that very hard decision you had to make. No judgement here, just a great big {{{{{Hug}}}}} to you.. Take care and God Bless you ~ <img src="i/expressions/heart.gif" border="0"> joni PS if you want to talk just PM me..

beleache · May 31, 2008

Hi Peanut, I didn't answer the first time, but wanted to say to you my heart breaks for you and that very hard decision you had to make. No judgement here, just a great big {{{{{Hug}}}}} to you.. Take care and God Bless you ~ <img src="i/expressions/heart.gif" border="0"> joni PS if you want to talk just PM me..

hopesiris · Jun 1, 2008