Amnio test said my baby is positive for CF

[LouLou]

Peanut, The mutations won't predict your childs symptomatic future but they help add to the picture of the great puzzle cf is. Once he is born and a little older he'll be sweat tested which will help the doctors to know if his CFTR is functioning. If you live in a state with newborn screening they might have these results on your child too. This test detects abnormalities that can be a sign of cf malabsorbtion.

Two siblings with the exact same genes often do not have the same clinical outcome. That is why you can't bet on the mutations.

Dbtoo on this site is in his 50s and doing great with my mutations. Shamrock is also doing wonderfully post transplant. Semperfi... and I'm sure there's others. They all have the same mutations as I but we are all at different progressions of this disease (age differences aside). A lot goes into clinical outcomes including our environment, diet, compliance with care, and something called modifier genes which is the reason its not a far out idea to support breast cancer research with hopes of it trickling down to help cf.

 

[LouLou]

Peanut, The mutations won't predict your childs symptomatic future but they help add to the picture of the great puzzle cf is. Once he is born and a little older he'll be sweat tested which will help the doctors to know if his CFTR is functioning. If you live in a state with newborn screening they might have these results on your child too. This test detects abnormalities that can be a sign of cf malabsorbtion.

Two siblings with the exact same genes often do not have the same clinical outcome. That is why you can't bet on the mutations.

Dbtoo on this site is in his 50s and doing great with my mutations. Shamrock is also doing wonderfully post transplant. Semperfi... and I'm sure there's others. They all have the same mutations as I but we are all at different progressions of this disease (age differences aside). A lot goes into clinical outcomes including our environment, diet, compliance with care, and something called modifier genes which is the reason its not a far out idea to support breast cancer research with hopes of it trickling down to help cf.

 

[LouLou]

Peanut, The mutations won't predict your childs symptomatic future but they help add to the picture of the great puzzle cf is. Once he is born and a little older he'll be sweat tested which will help the doctors to know if his CFTR is functioning. If you live in a state with newborn screening they might have these results on your child too. This test detects abnormalities that can be a sign of cf malabsorbtion.

Two siblings with the exact same genes often do not have the same clinical outcome. That is why you can't bet on the mutations.

Dbtoo on this site is in his 50s and doing great with my mutations. Shamrock is also doing wonderfully post transplant. Semperfi... and I'm sure there's others. They all have the same mutations as I but we are all at different progressions of this disease (age differences aside). A lot goes into clinical outcomes including our environment, diet, compliance with care, and something called modifier genes which is the reason its not a far out idea to support breast cancer research with hopes of it trickling down to help cf.

 

[LouLou]

Peanut, The mutations won't predict your childs symptomatic future but they help add to the picture of the great puzzle cf is. Once he is born and a little older he'll be sweat tested which will help the doctors to know if his CFTR is functioning. If you live in a state with newborn screening they might have these results on your child too. This test detects abnormalities that can be a sign of cf malabsorbtion.

Two siblings with the exact same genes often do not have the same clinical outcome. That is why you can't bet on the mutations.

Dbtoo on this site is in his 50s and doing great with my mutations. Shamrock is also doing wonderfully post transplant. Semperfi... and I'm sure there's others. They all have the same mutations as I but we are all at different progressions of this disease (age differences aside). A lot goes into clinical outcomes including our environment, diet, compliance with care, and something called modifier genes which is the reason its not a far out idea to support breast cancer research with hopes of it trickling down to help cf.

 

[LouLou]

Peanut, The mutations won't predict your childs symptomatic future but they help add to the picture of the great puzzle cf is. Once he is born and a little older he'll be sweat tested which will help the doctors to know if his CFTR is functioning. If you live in a state with newborn screening they might have these results on your child too. This test detects abnormalities that can be a sign of cf malabsorbtion.

Two siblings with the exact same genes often do not have the same clinical outcome. That is why you can't bet on the mutations.

Dbtoo on this site is in his 50s and doing great with my mutations. Shamrock is also doing wonderfully post transplant. Semperfi... and I'm sure there's others. They all have the same mutations as I but we are all at different progressions of this disease (age differences aside). A lot goes into clinical outcomes including our environment, diet, compliance with care, and something called modifier genes which is the reason its not a far out idea to support breast cancer research with hopes of it trickling down to help cf.

 

[TracyMatthews01]

I know how you feel. I've got 2 daughters with CF. When Heather was born- over 26 years ago, she was purfect. It wasn't until her first birthday when everything fell apart, and I was introduced to CF. There's a lot to take in, and everyone has opinions, but I didn't think I was strong enough either, but you have to remember that God never gives you more than you can handle. I do have 2 'so called normal' sons. They are 23 and 14, and they are both really over-protective of their 26 and 13 year old sisters. They don't suffer, I mean we have good days and bad days; but so does everyone. There have been so many new therapies that have happened just since Amanda was born in 1994. They are discovering new things every day.
If you want to e-mail me it's TracyMatthews01@bellsouth.net
You didn't say what state you're in- I'm in Alabama.
<img src="i/expressions/face-icon-small-happy.gif" border="0">

 

[TracyMatthews01]

I know how you feel. I've got 2 daughters with CF. When Heather was born- over 26 years ago, she was purfect. It wasn't until her first birthday when everything fell apart, and I was introduced to CF. There's a lot to take in, and everyone has opinions, but I didn't think I was strong enough either, but you have to remember that God never gives you more than you can handle. I do have 2 'so called normal' sons. They are 23 and 14, and they are both really over-protective of their 26 and 13 year old sisters. They don't suffer, I mean we have good days and bad days; but so does everyone. There have been so many new therapies that have happened just since Amanda was born in 1994. They are discovering new things every day.
If you want to e-mail me it's TracyMatthews01@bellsouth.net
You didn't say what state you're in- I'm in Alabama.
<img src="i/expressions/face-icon-small-happy.gif" border="0">

 

[TracyMatthews01]

I know how you feel. I've got 2 daughters with CF. When Heather was born- over 26 years ago, she was purfect. It wasn't until her first birthday when everything fell apart, and I was introduced to CF. There's a lot to take in, and everyone has opinions, but I didn't think I was strong enough either, but you have to remember that God never gives you more than you can handle. I do have 2 'so called normal' sons. They are 23 and 14, and they are both really over-protective of their 26 and 13 year old sisters. They don't suffer, I mean we have good days and bad days; but so does everyone. There have been so many new therapies that have happened just since Amanda was born in 1994. They are discovering new things every day.
If you want to e-mail me it's TracyMatthews01@bellsouth.net
You didn't say what state you're in- I'm in Alabama.
<img src="i/expressions/face-icon-small-happy.gif" border="0">

 

[TracyMatthews01]

I know how you feel. I've got 2 daughters with CF. When Heather was born- over 26 years ago, she was purfect. It wasn't until her first birthday when everything fell apart, and I was introduced to CF. There's a lot to take in, and everyone has opinions, but I didn't think I was strong enough either, but you have to remember that God never gives you more than you can handle. I do have 2 'so called normal' sons. They are 23 and 14, and they are both really over-protective of their 26 and 13 year old sisters. They don't suffer, I mean we have good days and bad days; but so does everyone. There have been so many new therapies that have happened just since Amanda was born in 1994. They are discovering new things every day.
If you want to e-mail me it's TracyMatthews01@bellsouth.net
You didn't say what state you're in- I'm in Alabama.
<img src="i/expressions/face-icon-small-happy.gif" border="0">

 

[TracyMatthews01]

I know how you feel. I've got 2 daughters with CF. When Heather was born- over 26 years ago, she was purfect. It wasn't until her first birthday when everything fell apart, and I was introduced to CF. There's a lot to take in, and everyone has opinions, but I didn't think I was strong enough either, but you have to remember that God never gives you more than you can handle. I do have 2 'so called normal' sons. They are 23 and 14, and they are both really over-protective of their 26 and 13 year old sisters. They don't suffer, I mean we have good days and bad days; but so does everyone. There have been so many new therapies that have happened just since Amanda was born in 1994. They are discovering new things every day.
If you want to e-mail me it's TracyMatthews01@bellsouth.net
You didn't say what state you're in- I'm in Alabama.
<img src="i/expressions/face-icon-small-happy.gif" border="0">

 

[NYCLawGirl]

I think everyone on this forum has something very relevant and helpful to say about this subject, and people are right to point out all the medical advancements that have made CF more "livable" in the past few years. For example, I am working full-time at age 26 and have had many experiences that no one would have ever predicted at the time I was born (at which point my doctor's exact words to my parents were "take her home and love her as long as you can"). And I by no means want to be a downer or discredit the very real experiences of people out there who have lived fairly "normal" lives with CF, but I have to caution against going into this birth believing that CF is no longer much of an issue.

Most people living with CF have symptoms, and most of us start to show these at a pretty early age, even infancy. Some people have extremely severe cases and still die or require a lung transplant very young. Others live well into their 20s or 30s without experiencing many problems at all. Still others (myself included) are healthy for a very long time and then experience a very sudden decline, which may or may not be recoverable. I am not trying to suggest your child will fit into any one of these over-simplified categories; I am trying to point out the CF is EXTREMELY unpredictable. I am 26 and still (thankfully!) on my first set of lungs, diabetes and osteoporosis free, and functioning at a pretty high level. I know people younger than me, born into the era of DNAse and Tobi, who have already required lung transplants, or who suffer from the many other complications of this disease. Nearly half the CF population still requires disability at some point in their lives and almost everyone with CF has high medical expenses. Obviously there are some whose experiences do not fit these rubriks, but please understand they are more the blessed exception than the rule.

Medical advancements continue to be made and it is not wishful thinking to believe that your unborn son or daughter will have a significantly better "shot" at living a long and healthy life with CF than many of us who were born earlier. The life expectancy continues to rise and it is not at all uncommon for CFers to live well into their 30s and 40s now. Just please, for your own sake, take this time to prepare yourself (whichever decision you make) and do not just assume your child will not show the "classic" symptoms of CF. Hope is an absolutely wonderful thing and a healing force for us all, but if you go into this thinking CF is no longer a very real problem for most patients you may find yourself heartbroken and shattered if this is not the case.

Also, although I am extremely happy to read that some on this board have had such mild cases of CF (and wish them continued health), please do not ignore or skip clinic visits! I don't always agree with my doctors or take every piece of their advice when they recommend I not participate in an activity (travel is a good example), but I can say from experience that for many of us the choice to stop going to the doctor because it is "depressing" can have VERY serious consequences in the long run!

 

[NYCLawGirl]

I think everyone on this forum has something very relevant and helpful to say about this subject, and people are right to point out all the medical advancements that have made CF more "livable" in the past few years. For example, I am working full-time at age 26 and have had many experiences that no one would have ever predicted at the time I was born (at which point my doctor's exact words to my parents were "take her home and love her as long as you can"). And I by no means want to be a downer or discredit the very real experiences of people out there who have lived fairly "normal" lives with CF, but I have to caution against going into this birth believing that CF is no longer much of an issue.

Most people living with CF have symptoms, and most of us start to show these at a pretty early age, even infancy. Some people have extremely severe cases and still die or require a lung transplant very young. Others live well into their 20s or 30s without experiencing many problems at all. Still others (myself included) are healthy for a very long time and then experience a very sudden decline, which may or may not be recoverable. I am not trying to suggest your child will fit into any one of these over-simplified categories; I am trying to point out the CF is EXTREMELY unpredictable. I am 26 and still (thankfully!) on my first set of lungs, diabetes and osteoporosis free, and functioning at a pretty high level. I know people younger than me, born into the era of DNAse and Tobi, who have already required lung transplants, or who suffer from the many other complications of this disease. Nearly half the CF population still requires disability at some point in their lives and almost everyone with CF has high medical expenses. Obviously there are some whose experiences do not fit these rubriks, but please understand they are more the blessed exception than the rule.

Medical advancements continue to be made and it is not wishful thinking to believe that your unborn son or daughter will have a significantly better "shot" at living a long and healthy life with CF than many of us who were born earlier. The life expectancy continues to rise and it is not at all uncommon for CFers to live well into their 30s and 40s now. Just please, for your own sake, take this time to prepare yourself (whichever decision you make) and do not just assume your child will not show the "classic" symptoms of CF. Hope is an absolutely wonderful thing and a healing force for us all, but if you go into this thinking CF is no longer a very real problem for most patients you may find yourself heartbroken and shattered if this is not the case.

Also, although I am extremely happy to read that some on this board have had such mild cases of CF (and wish them continued health), please do not ignore or skip clinic visits! I don't always agree with my doctors or take every piece of their advice when they recommend I not participate in an activity (travel is a good example), but I can say from experience that for many of us the choice to stop going to the doctor because it is "depressing" can have VERY serious consequences in the long run!

 

[NYCLawGirl]

I think everyone on this forum has something very relevant and helpful to say about this subject, and people are right to point out all the medical advancements that have made CF more "livable" in the past few years. For example, I am working full-time at age 26 and have had many experiences that no one would have ever predicted at the time I was born (at which point my doctor's exact words to my parents were "take her home and love her as long as you can"). And I by no means want to be a downer or discredit the very real experiences of people out there who have lived fairly "normal" lives with CF, but I have to caution against going into this birth believing that CF is no longer much of an issue.

Most people living with CF have symptoms, and most of us start to show these at a pretty early age, even infancy. Some people have extremely severe cases and still die or require a lung transplant very young. Others live well into their 20s or 30s without experiencing many problems at all. Still others (myself included) are healthy for a very long time and then experience a very sudden decline, which may or may not be recoverable. I am not trying to suggest your child will fit into any one of these over-simplified categories; I am trying to point out the CF is EXTREMELY unpredictable. I am 26 and still (thankfully!) on my first set of lungs, diabetes and osteoporosis free, and functioning at a pretty high level. I know people younger than me, born into the era of DNAse and Tobi, who have already required lung transplants, or who suffer from the many other complications of this disease. Nearly half the CF population still requires disability at some point in their lives and almost everyone with CF has high medical expenses. Obviously there are some whose experiences do not fit these rubriks, but please understand they are more the blessed exception than the rule.

Medical advancements continue to be made and it is not wishful thinking to believe that your unborn son or daughter will have a significantly better "shot" at living a long and healthy life with CF than many of us who were born earlier. The life expectancy continues to rise and it is not at all uncommon for CFers to live well into their 30s and 40s now. Just please, for your own sake, take this time to prepare yourself (whichever decision you make) and do not just assume your child will not show the "classic" symptoms of CF. Hope is an absolutely wonderful thing and a healing force for us all, but if you go into this thinking CF is no longer a very real problem for most patients you may find yourself heartbroken and shattered if this is not the case.

Also, although I am extremely happy to read that some on this board have had such mild cases of CF (and wish them continued health), please do not ignore or skip clinic visits! I don't always agree with my doctors or take every piece of their advice when they recommend I not participate in an activity (travel is a good example), but I can say from experience that for many of us the choice to stop going to the doctor because it is "depressing" can have VERY serious consequences in the long run!

 

[NYCLawGirl]

I think everyone on this forum has something very relevant and helpful to say about this subject, and people are right to point out all the medical advancements that have made CF more "livable" in the past few years. For example, I am working full-time at age 26 and have had many experiences that no one would have ever predicted at the time I was born (at which point my doctor's exact words to my parents were "take her home and love her as long as you can"). And I by no means want to be a downer or discredit the very real experiences of people out there who have lived fairly "normal" lives with CF, but I have to caution against going into this birth believing that CF is no longer much of an issue.

Most people living with CF have symptoms, and most of us start to show these at a pretty early age, even infancy. Some people have extremely severe cases and still die or require a lung transplant very young. Others live well into their 20s or 30s without experiencing many problems at all. Still others (myself included) are healthy for a very long time and then experience a very sudden decline, which may or may not be recoverable. I am not trying to suggest your child will fit into any one of these over-simplified categories; I am trying to point out the CF is EXTREMELY unpredictable. I am 26 and still (thankfully!) on my first set of lungs, diabetes and osteoporosis free, and functioning at a pretty high level. I know people younger than me, born into the era of DNAse and Tobi, who have already required lung transplants, or who suffer from the many other complications of this disease. Nearly half the CF population still requires disability at some point in their lives and almost everyone with CF has high medical expenses. Obviously there are some whose experiences do not fit these rubriks, but please understand they are more the blessed exception than the rule.

Medical advancements continue to be made and it is not wishful thinking to believe that your unborn son or daughter will have a significantly better "shot" at living a long and healthy life with CF than many of us who were born earlier. The life expectancy continues to rise and it is not at all uncommon for CFers to live well into their 30s and 40s now. Just please, for your own sake, take this time to prepare yourself (whichever decision you make) and do not just assume your child will not show the "classic" symptoms of CF. Hope is an absolutely wonderful thing and a healing force for us all, but if you go into this thinking CF is no longer a very real problem for most patients you may find yourself heartbroken and shattered if this is not the case.

Also, although I am extremely happy to read that some on this board have had such mild cases of CF (and wish them continued health), please do not ignore or skip clinic visits! I don't always agree with my doctors or take every piece of their advice when they recommend I not participate in an activity (travel is a good example), but I can say from experience that for many of us the choice to stop going to the doctor because it is "depressing" can have VERY serious consequences in the long run!

 

[NYCLawGirl]

I think everyone on this forum has something very relevant and helpful to say about this subject, and people are right to point out all the medical advancements that have made CF more "livable" in the past few years. For example, I am working full-time at age 26 and have had many experiences that no one would have ever predicted at the time I was born (at which point my doctor's exact words to my parents were "take her home and love her as long as you can"). And I by no means want to be a downer or discredit the very real experiences of people out there who have lived fairly "normal" lives with CF, but I have to caution against going into this birth believing that CF is no longer much of an issue.

Most people living with CF have symptoms, and most of us start to show these at a pretty early age, even infancy. Some people have extremely severe cases and still die or require a lung transplant very young. Others live well into their 20s or 30s without experiencing many problems at all. Still others (myself included) are healthy for a very long time and then experience a very sudden decline, which may or may not be recoverable. I am not trying to suggest your child will fit into any one of these over-simplified categories; I am trying to point out the CF is EXTREMELY unpredictable. I am 26 and still (thankfully!) on my first set of lungs, diabetes and osteoporosis free, and functioning at a pretty high level. I know people younger than me, born into the era of DNAse and Tobi, who have already required lung transplants, or who suffer from the many other complications of this disease. Nearly half the CF population still requires disability at some point in their lives and almost everyone with CF has high medical expenses. Obviously there are some whose experiences do not fit these rubriks, but please understand they are more the blessed exception than the rule.

Medical advancements continue to be made and it is not wishful thinking to believe that your unborn son or daughter will have a significantly better "shot" at living a long and healthy life with CF than many of us who were born earlier. The life expectancy continues to rise and it is not at all uncommon for CFers to live well into their 30s and 40s now. Just please, for your own sake, take this time to prepare yourself (whichever decision you make) and do not just assume your child will not show the "classic" symptoms of CF. Hope is an absolutely wonderful thing and a healing force for us all, but if you go into this thinking CF is no longer a very real problem for most patients you may find yourself heartbroken and shattered if this is not the case.

Also, although I am extremely happy to read that some on this board have had such mild cases of CF (and wish them continued health), please do not ignore or skip clinic visits! I don't always agree with my doctors or take every piece of their advice when they recommend I not participate in an activity (travel is a good example), but I can say from experience that for many of us the choice to stop going to the doctor because it is "depressing" can have VERY serious consequences in the long run!

 

[Peanut2008]

Hello everyone, frist of all i would like to thank everyone that has been here for me and that has taken out the time to respond to me and pray for me and my little peanut. But, unfortuantly I have been hit with another blow today after going to the doctor. It turns out the baby will have the most critical mutation of Cystic Fibrosis, Delta 508 which as from what the doctor told me is the worse and my little peanut would be in pain and suffering every day of its life. I want to keep my peanut more than anything in this world, my heart is killing me and beleive me if i could trade places with this little angel i would do it in a heart beat but as per the Doctors they are telling me that this would only prolong the inevitable and it would hurt a whole lot more to hold my baby and see him hurting. I am a coward, maybe i am selfish, maybe i am the worse person in this world because i dont want to see my child suffer when he tries to take a breath but this cold hard world is bad enough without having to live with something as terrible as this. My appointment is on Friday and i do hope that i dont wake up from it because i honestly feel that i dont deserve to live either. I will keep all of u in my heart and being that i am now aware of this horrible disease i will do everything in my power to educate those that dont know about it and will hope for a cure for all you who are innocent to this horrible condition.

Goodbye from me Sandra Rodriguez and Peanut who will forever remain an <b>Angel</b>

 

[Peanut2008]

Hello everyone, frist of all i would like to thank everyone that has been here for me and that has taken out the time to respond to me and pray for me and my little peanut. But, unfortuantly I have been hit with another blow today after going to the doctor. It turns out the baby will have the most critical mutation of Cystic Fibrosis, Delta 508 which as from what the doctor told me is the worse and my little peanut would be in pain and suffering every day of its life. I want to keep my peanut more than anything in this world, my heart is killing me and beleive me if i could trade places with this little angel i would do it in a heart beat but as per the Doctors they are telling me that this would only prolong the inevitable and it would hurt a whole lot more to hold my baby and see him hurting. I am a coward, maybe i am selfish, maybe i am the worse person in this world because i dont want to see my child suffer when he tries to take a breath but this cold hard world is bad enough without having to live with something as terrible as this. My appointment is on Friday and i do hope that i dont wake up from it because i honestly feel that i dont deserve to live either. I will keep all of u in my heart and being that i am now aware of this horrible disease i will do everything in my power to educate those that dont know about it and will hope for a cure for all you who are innocent to this horrible condition.

Goodbye from me Sandra Rodriguez and Peanut who will forever remain an <b>Angel</b>

 

[Peanut2008]

Hello everyone, frist of all i would like to thank everyone that has been here for me and that has taken out the time to respond to me and pray for me and my little peanut. But, unfortuantly I have been hit with another blow today after going to the doctor. It turns out the baby will have the most critical mutation of Cystic Fibrosis, Delta 508 which as from what the doctor told me is the worse and my little peanut would be in pain and suffering every day of its life. I want to keep my peanut more than anything in this world, my heart is killing me and beleive me if i could trade places with this little angel i would do it in a heart beat but as per the Doctors they are telling me that this would only prolong the inevitable and it would hurt a whole lot more to hold my baby and see him hurting. I am a coward, maybe i am selfish, maybe i am the worse person in this world because i dont want to see my child suffer when he tries to take a breath but this cold hard world is bad enough without having to live with something as terrible as this. My appointment is on Friday and i do hope that i dont wake up from it because i honestly feel that i dont deserve to live either. I will keep all of u in my heart and being that i am now aware of this horrible disease i will do everything in my power to educate those that dont know about it and will hope for a cure for all you who are innocent to this horrible condition.

Goodbye from me Sandra Rodriguez and Peanut who will forever remain an <b>Angel</b>

 

[Peanut2008]

Hello everyone, frist of all i would like to thank everyone that has been here for me and that has taken out the time to respond to me and pray for me and my little peanut. But, unfortuantly I have been hit with another blow today after going to the doctor. It turns out the baby will have the most critical mutation of Cystic Fibrosis, Delta 508 which as from what the doctor told me is the worse and my little peanut would be in pain and suffering every day of its life. I want to keep my peanut more than anything in this world, my heart is killing me and beleive me if i could trade places with this little angel i would do it in a heart beat but as per the Doctors they are telling me that this would only prolong the inevitable and it would hurt a whole lot more to hold my baby and see him hurting. I am a coward, maybe i am selfish, maybe i am the worse person in this world because i dont want to see my child suffer when he tries to take a breath but this cold hard world is bad enough without having to live with something as terrible as this. My appointment is on Friday and i do hope that i dont wake up from it because i honestly feel that i dont deserve to live either. I will keep all of u in my heart and being that i am now aware of this horrible disease i will do everything in my power to educate those that dont know about it and will hope for a cure for all you who are innocent to this horrible condition.

Goodbye from me Sandra Rodriguez and Peanut who will forever remain an <b>Angel</b>

 

[Peanut2008]

Hello everyone, frist of all i would like to thank everyone that has been here for me and that has taken out the time to respond to me and pray for me and my little peanut. But, unfortuantly I have been hit with another blow today after going to the doctor. It turns out the baby will have the most critical mutation of Cystic Fibrosis, Delta 508 which as from what the doctor told me is the worse and my little peanut would be in pain and suffering every day of its life. I want to keep my peanut more than anything in this world, my heart is killing me and beleive me if i could trade places with this little angel i would do it in a heart beat but as per the Doctors they are telling me that this would only prolong the inevitable and it would hurt a whole lot more to hold my baby and see him hurting. I am a coward, maybe i am selfish, maybe i am the worse person in this world because i dont want to see my child suffer when he tries to take a breath but this cold hard world is bad enough without having to live with something as terrible as this. My appointment is on Friday and i do hope that i dont wake up from it because i honestly feel that i dont deserve to live either. I will keep all of u in my heart and being that i am now aware of this horrible disease i will do everything in my power to educate those that dont know about it and will hope for a cure for all you who are innocent to this horrible condition.

Goodbye from me Sandra Rodriguez and Peanut who will forever remain an <b>Angel</b>