Amnio test said my baby is positive for CF

[fourkidsmom]

I know this is a big shock to you, I was in the same situation 6 yrs ago. My son was diagnosed when I was 7 months pregnant. I had the amnio, I also had the amnio with my now 5 yr old and it said she didn't have CF, but she has other issues. You just never know what can happen in life, people have kids and they develop cancer, epilepsy, ms, whatever. I believe everything happens for a reason, you will find you are stronger than you thought. You "will" change having a child with cf, you can't help it. But you will find that that child will be a true blessing in your life and you don't know what you would of done without your precious son. There will be hard times, there will be easier times, just do the best you can and know that you have. I hope you can get past this, it takes time. You willl find lots of support here and people who really care. Please let me know if you need anything.

Fourkidsmom
<img src="http://i69.photobucket.com/albums/i72/fourkidsmom/2007christmas012-1.jpg">

 

[fourkidsmom]

I know this is a big shock to you, I was in the same situation 6 yrs ago. My son was diagnosed when I was 7 months pregnant. I had the amnio, I also had the amnio with my now 5 yr old and it said she didn't have CF, but she has other issues. You just never know what can happen in life, people have kids and they develop cancer, epilepsy, ms, whatever. I believe everything happens for a reason, you will find you are stronger than you thought. You "will" change having a child with cf, you can't help it. But you will find that that child will be a true blessing in your life and you don't know what you would of done without your precious son. There will be hard times, there will be easier times, just do the best you can and know that you have. I hope you can get past this, it takes time. You willl find lots of support here and people who really care. Please let me know if you need anything.

Fourkidsmom
<img src="http://i69.photobucket.com/albums/i72/fourkidsmom/2007christmas012-1.jpg">

 

[fourkidsmom]

I know this is a big shock to you, I was in the same situation 6 yrs ago. My son was diagnosed when I was 7 months pregnant. I had the amnio, I also had the amnio with my now 5 yr old and it said she didn't have CF, but she has other issues. You just never know what can happen in life, people have kids and they develop cancer, epilepsy, ms, whatever. I believe everything happens for a reason, you will find you are stronger than you thought. You "will" change having a child with cf, you can't help it. But you will find that that child will be a true blessing in your life and you don't know what you would of done without your precious son. There will be hard times, there will be easier times, just do the best you can and know that you have. I hope you can get past this, it takes time. You willl find lots of support here and people who really care. Please let me know if you need anything.

Fourkidsmom
<img src="http://i69.photobucket.com/albums/i72/fourkidsmom/2007christmas012-1.jpg">

 

[fourkidsmom]

I know this is a big shock to you, I was in the same situation 6 yrs ago. My son was diagnosed when I was 7 months pregnant. I had the amnio, I also had the amnio with my now 5 yr old and it said she didn't have CF, but she has other issues. You just never know what can happen in life, people have kids and they develop cancer, epilepsy, ms, whatever. I believe everything happens for a reason, you will find you are stronger than you thought. You "will" change having a child with cf, you can't help it. But you will find that that child will be a true blessing in your life and you don't know what you would of done without your precious son. There will be hard times, there will be easier times, just do the best you can and know that you have. I hope you can get past this, it takes time. You willl find lots of support here and people who really care. Please let me know if you need anything.

Fourkidsmom
<img src="http://i69.photobucket.com/albums/i72/fourkidsmom/2007christmas012-1.jpg">

 

[fourkidsmom]

I know this is a big shock to you, I was in the same situation 6 yrs ago. My son was diagnosed when I was 7 months pregnant. I had the amnio, I also had the amnio with my now 5 yr old and it said she didn't have CF, but she has other issues. You just never know what can happen in life, people have kids and they develop cancer, epilepsy, ms, whatever. I believe everything happens for a reason, you will find you are stronger than you thought. You "will" change having a child with cf, you can't help it. But you will find that that child will be a true blessing in your life and you don't know what you would of done without your precious son. There will be hard times, there will be easier times, just do the best you can and know that you have. I hope you can get past this, it takes time. You willl find lots of support here and people who really care. Please let me know if you need anything.

Fourkidsmom
<img src="http://i69.photobucket.com/albums/i72/fourkidsmom/2007christmas012-1.jpg">

 

[pnhuffman]

Peanut,
I know this must be extremely scarey for you and your hubby. But you have to remember that everything you read on the internet is not always updated. There have been many advances in medication and treatments then there were many years ago.

I have a child that i have known since he was 4 mos old. He was diagonosed at 7 mos with Cf he also has shunted hydrocephalus and Arnold Chiari Malformation. We have had full legal custody of him (basically like adoption) of this child since he was 2 years old. I cannot begin to think of what my life would be like without him in it now.

this child has brought so much joys and excitement to our family it is unreal. Don't get me wrong we have our bad days also. It gets very time consuming but I believe in giving this little guy a fair shake at life.

He is a pretty normal child in everyway except for taking daily meds and treatments. And thankfully he has only gone into the hospital once a year. He is very active, participates in school (loves school) and loves just being an ornery little boy.

But one thng i wanted to mention god forbid if anything happened to your older child would you not want to deal with taking care of her. I dont mean that in a bad way. Or am i saying this sarcastically. But like Jennifer said the baby is breathing and moving and everything now. Would you consider adoption?
I honestly think that if you choose to keep this child that you will love him just as much as you do your other child.

And a plus is that your daughter is old enough that she just may feel like she needs to play mommy to him also and be protective.

Anyways I hope everything works out for the best no matter what your decision is. Hang in there and think things through. Ask questions if you need to . We are all here and support each other in many ways.

 

[pnhuffman]

Peanut,
I know this must be extremely scarey for you and your hubby. But you have to remember that everything you read on the internet is not always updated. There have been many advances in medication and treatments then there were many years ago.

I have a child that i have known since he was 4 mos old. He was diagonosed at 7 mos with Cf he also has shunted hydrocephalus and Arnold Chiari Malformation. We have had full legal custody of him (basically like adoption) of this child since he was 2 years old. I cannot begin to think of what my life would be like without him in it now.

this child has brought so much joys and excitement to our family it is unreal. Don't get me wrong we have our bad days also. It gets very time consuming but I believe in giving this little guy a fair shake at life.

He is a pretty normal child in everyway except for taking daily meds and treatments. And thankfully he has only gone into the hospital once a year. He is very active, participates in school (loves school) and loves just being an ornery little boy.

But one thng i wanted to mention god forbid if anything happened to your older child would you not want to deal with taking care of her. I dont mean that in a bad way. Or am i saying this sarcastically. But like Jennifer said the baby is breathing and moving and everything now. Would you consider adoption?
I honestly think that if you choose to keep this child that you will love him just as much as you do your other child.

And a plus is that your daughter is old enough that she just may feel like she needs to play mommy to him also and be protective.

Anyways I hope everything works out for the best no matter what your decision is. Hang in there and think things through. Ask questions if you need to . We are all here and support each other in many ways.

 

[pnhuffman]

Peanut,
I know this must be extremely scarey for you and your hubby. But you have to remember that everything you read on the internet is not always updated. There have been many advances in medication and treatments then there were many years ago.

I have a child that i have known since he was 4 mos old. He was diagonosed at 7 mos with Cf he also has shunted hydrocephalus and Arnold Chiari Malformation. We have had full legal custody of him (basically like adoption) of this child since he was 2 years old. I cannot begin to think of what my life would be like without him in it now.

this child has brought so much joys and excitement to our family it is unreal. Don't get me wrong we have our bad days also. It gets very time consuming but I believe in giving this little guy a fair shake at life.

He is a pretty normal child in everyway except for taking daily meds and treatments. And thankfully he has only gone into the hospital once a year. He is very active, participates in school (loves school) and loves just being an ornery little boy.

But one thng i wanted to mention god forbid if anything happened to your older child would you not want to deal with taking care of her. I dont mean that in a bad way. Or am i saying this sarcastically. But like Jennifer said the baby is breathing and moving and everything now. Would you consider adoption?
I honestly think that if you choose to keep this child that you will love him just as much as you do your other child.

And a plus is that your daughter is old enough that she just may feel like she needs to play mommy to him also and be protective.

Anyways I hope everything works out for the best no matter what your decision is. Hang in there and think things through. Ask questions if you need to . We are all here and support each other in many ways.

 

[pnhuffman]

Peanut,
I know this must be extremely scarey for you and your hubby. But you have to remember that everything you read on the internet is not always updated. There have been many advances in medication and treatments then there were many years ago.

I have a child that i have known since he was 4 mos old. He was diagonosed at 7 mos with Cf he also has shunted hydrocephalus and Arnold Chiari Malformation. We have had full legal custody of him (basically like adoption) of this child since he was 2 years old. I cannot begin to think of what my life would be like without him in it now.

this child has brought so much joys and excitement to our family it is unreal. Don't get me wrong we have our bad days also. It gets very time consuming but I believe in giving this little guy a fair shake at life.

He is a pretty normal child in everyway except for taking daily meds and treatments. And thankfully he has only gone into the hospital once a year. He is very active, participates in school (loves school) and loves just being an ornery little boy.

But one thng i wanted to mention god forbid if anything happened to your older child would you not want to deal with taking care of her. I dont mean that in a bad way. Or am i saying this sarcastically. But like Jennifer said the baby is breathing and moving and everything now. Would you consider adoption?
I honestly think that if you choose to keep this child that you will love him just as much as you do your other child.

And a plus is that your daughter is old enough that she just may feel like she needs to play mommy to him also and be protective.

Anyways I hope everything works out for the best no matter what your decision is. Hang in there and think things through. Ask questions if you need to . We are all here and support each other in many ways.

 

[pnhuffman]

Peanut,
I know this must be extremely scarey for you and your hubby. But you have to remember that everything you read on the internet is not always updated. There have been many advances in medication and treatments then there were many years ago.

I have a child that i have known since he was 4 mos old. He was diagonosed at 7 mos with Cf he also has shunted hydrocephalus and Arnold Chiari Malformation. We have had full legal custody of him (basically like adoption) of this child since he was 2 years old. I cannot begin to think of what my life would be like without him in it now.

this child has brought so much joys and excitement to our family it is unreal. Don't get me wrong we have our bad days also. It gets very time consuming but I believe in giving this little guy a fair shake at life.

He is a pretty normal child in everyway except for taking daily meds and treatments. And thankfully he has only gone into the hospital once a year. He is very active, participates in school (loves school) and loves just being an ornery little boy.

But one thng i wanted to mention god forbid if anything happened to your older child would you not want to deal with taking care of her. I dont mean that in a bad way. Or am i saying this sarcastically. But like Jennifer said the baby is breathing and moving and everything now. Would you consider adoption?
I honestly think that if you choose to keep this child that you will love him just as much as you do your other child.

And a plus is that your daughter is old enough that she just may feel like she needs to play mommy to him also and be protective.

Anyways I hope everything works out for the best no matter what your decision is. Hang in there and think things through. Ask questions if you need to . We are all here and support each other in many ways.

 

[no1mostwanted]

If you are really too weak physically and emotionally then do your self and your family a favor and teminate without guilt. If you continue and have a cf child .GOOD LUCK! You'll need tahtand sots of strength and support. I speak from first hand experience, having had two out of three of our children born with cf. Over fifty years ago, before diagnosis was was barely being discovered. We finally found that diagnosis whenmy third child (and only daughter) was taken to an emergency visit to NY Presbyterian, Childrens Hospital. There the discoverer of the disease, (cannot remember her name) gave us that heart rending news.

At the hospital and clinics over the years many of the children we became aquainted with died. these were devestating events. In 1967 when he was 11 years old my oldest son who sas very active and intelligent, as were all my children, and well aware of his fate died while being cared for at the childrens Hospital. Even his physician cried. At age nearly 16 my daughter sucumbed at LI Jewish. All in all we had 21 years of misery and heartbreak in caring for these wonderful children and trying to not neglect thao only son who was lucky and healthy. My son and his wife haave been tested for the gene and were negative and so now I have two beautiful grand kids who are now in college. Take all that for what its worh and make your descision. again, Good Luck.

 

[no1mostwanted]

If you are really too weak physically and emotionally then do your self and your family a favor and teminate without guilt. If you continue and have a cf child .GOOD LUCK! You'll need tahtand sots of strength and support. I speak from first hand experience, having had two out of three of our children born with cf. Over fifty years ago, before diagnosis was was barely being discovered. We finally found that diagnosis whenmy third child (and only daughter) was taken to an emergency visit to NY Presbyterian, Childrens Hospital. There the discoverer of the disease, (cannot remember her name) gave us that heart rending news.

At the hospital and clinics over the years many of the children we became aquainted with died. these were devestating events. In 1967 when he was 11 years old my oldest son who sas very active and intelligent, as were all my children, and well aware of his fate died while being cared for at the childrens Hospital. Even his physician cried. At age nearly 16 my daughter sucumbed at LI Jewish. All in all we had 21 years of misery and heartbreak in caring for these wonderful children and trying to not neglect thao only son who was lucky and healthy. My son and his wife haave been tested for the gene and were negative and so now I have two beautiful grand kids who are now in college. Take all that for what its worh and make your descision. again, Good Luck.

 

[no1mostwanted]

If you are really too weak physically and emotionally then do your self and your family a favor and teminate without guilt. If you continue and have a cf child .GOOD LUCK! You'll need tahtand sots of strength and support. I speak from first hand experience, having had two out of three of our children born with cf. Over fifty years ago, before diagnosis was was barely being discovered. We finally found that diagnosis whenmy third child (and only daughter) was taken to an emergency visit to NY Presbyterian, Childrens Hospital. There the discoverer of the disease, (cannot remember her name) gave us that heart rending news.

At the hospital and clinics over the years many of the children we became aquainted with died. these were devestating events. In 1967 when he was 11 years old my oldest son who sas very active and intelligent, as were all my children, and well aware of his fate died while being cared for at the childrens Hospital. Even his physician cried. At age nearly 16 my daughter sucumbed at LI Jewish. All in all we had 21 years of misery and heartbreak in caring for these wonderful children and trying to not neglect thao only son who was lucky and healthy. My son and his wife haave been tested for the gene and were negative and so now I have two beautiful grand kids who are now in college. Take all that for what its worh and make your descision. again, Good Luck.

 

[no1mostwanted]

If you are really too weak physically and emotionally then do your self and your family a favor and teminate without guilt. If you continue and have a cf child .GOOD LUCK! You'll need tahtand sots of strength and support. I speak from first hand experience, having had two out of three of our children born with cf. Over fifty years ago, before diagnosis was was barely being discovered. We finally found that diagnosis whenmy third child (and only daughter) was taken to an emergency visit to NY Presbyterian, Childrens Hospital. There the discoverer of the disease, (cannot remember her name) gave us that heart rending news.

At the hospital and clinics over the years many of the children we became aquainted with died. these were devestating events. In 1967 when he was 11 years old my oldest son who sas very active and intelligent, as were all my children, and well aware of his fate died while being cared for at the childrens Hospital. Even his physician cried. At age nearly 16 my daughter sucumbed at LI Jewish. All in all we had 21 years of misery and heartbreak in caring for these wonderful children and trying to not neglect thao only son who was lucky and healthy. My son and his wife haave been tested for the gene and were negative and so now I have two beautiful grand kids who are now in college. Take all that for what its worh and make your descision. again, Good Luck.

 

[no1mostwanted]

If you are really too weak physically and emotionally then do your self and your family a favor and teminate without guilt. If you continue and have a cf child .GOOD LUCK! You'll need tahtand sots of strength and support. I speak from first hand experience, having had two out of three of our children born with cf. Over fifty years ago, before diagnosis was was barely being discovered. We finally found that diagnosis whenmy third child (and only daughter) was taken to an emergency visit to NY Presbyterian, Childrens Hospital. There the discoverer of the disease, (cannot remember her name) gave us that heart rending news.

At the hospital and clinics over the years many of the children we became aquainted with died. these were devestating events. In 1967 when he was 11 years old my oldest son who sas very active and intelligent, as were all my children, and well aware of his fate died while being cared for at the childrens Hospital. Even his physician cried. At age nearly 16 my daughter sucumbed at LI Jewish. All in all we had 21 years of misery and heartbreak in caring for these wonderful children and trying to not neglect thao only son who was lucky and healthy. My son and his wife haave been tested for the gene and were negative and so now I have two beautiful grand kids who are now in college. Take all that for what its worh and make your descision. again, Good Luck.

 

[dancer78]

I have read all the terrific replies, and I thought I would add my 2 cents:
maybe my experiences can help you.

First of all, just because "they" say your child has CF, DOES NOT MEAN your child will be sick.

I am 47. Yes, I have CF, and was diagnosed at 5. I am happily married (15 years), have a very full time career in the advertisng field, live on a tree farm, and house an animal rescue operation. I have been in the hospital 5 times in 47 years, and was tested 3 times, different years, because I showed no symptoms at all. I have had a terrific life, except for the doctors always telling me and my parents "not to do this," and "don't let her do that," all because "she's not going to live, and hurry up and do what ever. It was such an irritating, negative atmosphere, I finally stopped going.

And, it was, all nonsense. But, it must be said that even though I have a mild case of CF, I definitely have it, and it reared it's ugly head when I was 39. I realize now that if I had not had a brother who was born with an obstruction, prompting a series of events that would lead to the whole family being tested, I would never have been diagnosed until my late 30s. And for me, it would have been so much better.

The symptoms of my "getting a bit worse" were so unlike what was written, stated over and over, or on any symptoms list, etc. I had no idea it was CF. I could breathe just fine. Didn't take any medication. But I was exhausted all the time, and started drinking lattes instead of eating. I was going to see a regular doctor for Chronic Fatigue Syndrome. It must also be said that I only go to a Cf center every 2 years, and back then I was so angry with all the doctors, I hadn't been for 5 years. Of course, doctors are much better now than in the 60's 70's and 80s.

I tell you all this to say.....you (and the doctors) have NO IDEA what sort of child you will have, and what sort of mutation. The mutation doesn't count for much either, because it has no bearing on the severity of the disease. I've been told that I have the "classic Mutation of CF." which means nothing. I do not "match" the regular profile of a person with this mutation. But, knowing as I get older, that may change, I do specific things each day, like drink carrot/oj juice. It works!

So take heart, ask God for calmness, and relax. Remember, you can't see the future, and neither can the doctors. Focus on a healthy baby, nothing more. And whatever you do, don't let your own fear, or the doctors, limit your child's future.

 

[dancer78]

I have read all the terrific replies, and I thought I would add my 2 cents:
maybe my experiences can help you.

First of all, just because "they" say your child has CF, DOES NOT MEAN your child will be sick.

I am 47. Yes, I have CF, and was diagnosed at 5. I am happily married (15 years), have a very full time career in the advertisng field, live on a tree farm, and house an animal rescue operation. I have been in the hospital 5 times in 47 years, and was tested 3 times, different years, because I showed no symptoms at all. I have had a terrific life, except for the doctors always telling me and my parents "not to do this," and "don't let her do that," all because "she's not going to live, and hurry up and do what ever. It was such an irritating, negative atmosphere, I finally stopped going.

And, it was, all nonsense. But, it must be said that even though I have a mild case of CF, I definitely have it, and it reared it's ugly head when I was 39. I realize now that if I had not had a brother who was born with an obstruction, prompting a series of events that would lead to the whole family being tested, I would never have been diagnosed until my late 30s. And for me, it would have been so much better.

The symptoms of my "getting a bit worse" were so unlike what was written, stated over and over, or on any symptoms list, etc. I had no idea it was CF. I could breathe just fine. Didn't take any medication. But I was exhausted all the time, and started drinking lattes instead of eating. I was going to see a regular doctor for Chronic Fatigue Syndrome. It must also be said that I only go to a Cf center every 2 years, and back then I was so angry with all the doctors, I hadn't been for 5 years. Of course, doctors are much better now than in the 60's 70's and 80s.

I tell you all this to say.....you (and the doctors) have NO IDEA what sort of child you will have, and what sort of mutation. The mutation doesn't count for much either, because it has no bearing on the severity of the disease. I've been told that I have the "classic Mutation of CF." which means nothing. I do not "match" the regular profile of a person with this mutation. But, knowing as I get older, that may change, I do specific things each day, like drink carrot/oj juice. It works!

So take heart, ask God for calmness, and relax. Remember, you can't see the future, and neither can the doctors. Focus on a healthy baby, nothing more. And whatever you do, don't let your own fear, or the doctors, limit your child's future.

 

[dancer78]

I have read all the terrific replies, and I thought I would add my 2 cents:
maybe my experiences can help you.

First of all, just because "they" say your child has CF, DOES NOT MEAN your child will be sick.

I am 47. Yes, I have CF, and was diagnosed at 5. I am happily married (15 years), have a very full time career in the advertisng field, live on a tree farm, and house an animal rescue operation. I have been in the hospital 5 times in 47 years, and was tested 3 times, different years, because I showed no symptoms at all. I have had a terrific life, except for the doctors always telling me and my parents "not to do this," and "don't let her do that," all because "she's not going to live, and hurry up and do what ever. It was such an irritating, negative atmosphere, I finally stopped going.

And, it was, all nonsense. But, it must be said that even though I have a mild case of CF, I definitely have it, and it reared it's ugly head when I was 39. I realize now that if I had not had a brother who was born with an obstruction, prompting a series of events that would lead to the whole family being tested, I would never have been diagnosed until my late 30s. And for me, it would have been so much better.

The symptoms of my "getting a bit worse" were so unlike what was written, stated over and over, or on any symptoms list, etc. I had no idea it was CF. I could breathe just fine. Didn't take any medication. But I was exhausted all the time, and started drinking lattes instead of eating. I was going to see a regular doctor for Chronic Fatigue Syndrome. It must also be said that I only go to a Cf center every 2 years, and back then I was so angry with all the doctors, I hadn't been for 5 years. Of course, doctors are much better now than in the 60's 70's and 80s.

I tell you all this to say.....you (and the doctors) have NO IDEA what sort of child you will have, and what sort of mutation. The mutation doesn't count for much either, because it has no bearing on the severity of the disease. I've been told that I have the "classic Mutation of CF." which means nothing. I do not "match" the regular profile of a person with this mutation. But, knowing as I get older, that may change, I do specific things each day, like drink carrot/oj juice. It works!

So take heart, ask God for calmness, and relax. Remember, you can't see the future, and neither can the doctors. Focus on a healthy baby, nothing more. And whatever you do, don't let your own fear, or the doctors, limit your child's future.

 

[dancer78]

I have read all the terrific replies, and I thought I would add my 2 cents:
maybe my experiences can help you.

First of all, just because "they" say your child has CF, DOES NOT MEAN your child will be sick.

I am 47. Yes, I have CF, and was diagnosed at 5. I am happily married (15 years), have a very full time career in the advertisng field, live on a tree farm, and house an animal rescue operation. I have been in the hospital 5 times in 47 years, and was tested 3 times, different years, because I showed no symptoms at all. I have had a terrific life, except for the doctors always telling me and my parents "not to do this," and "don't let her do that," all because "she's not going to live, and hurry up and do what ever. It was such an irritating, negative atmosphere, I finally stopped going.

And, it was, all nonsense. But, it must be said that even though I have a mild case of CF, I definitely have it, and it reared it's ugly head when I was 39. I realize now that if I had not had a brother who was born with an obstruction, prompting a series of events that would lead to the whole family being tested, I would never have been diagnosed until my late 30s. And for me, it would have been so much better.

The symptoms of my "getting a bit worse" were so unlike what was written, stated over and over, or on any symptoms list, etc. I had no idea it was CF. I could breathe just fine. Didn't take any medication. But I was exhausted all the time, and started drinking lattes instead of eating. I was going to see a regular doctor for Chronic Fatigue Syndrome. It must also be said that I only go to a Cf center every 2 years, and back then I was so angry with all the doctors, I hadn't been for 5 years. Of course, doctors are much better now than in the 60's 70's and 80s.

I tell you all this to say.....you (and the doctors) have NO IDEA what sort of child you will have, and what sort of mutation. The mutation doesn't count for much either, because it has no bearing on the severity of the disease. I've been told that I have the "classic Mutation of CF." which means nothing. I do not "match" the regular profile of a person with this mutation. But, knowing as I get older, that may change, I do specific things each day, like drink carrot/oj juice. It works!

So take heart, ask God for calmness, and relax. Remember, you can't see the future, and neither can the doctors. Focus on a healthy baby, nothing more. And whatever you do, don't let your own fear, or the doctors, limit your child's future.

 

[dancer78]

I have read all the terrific replies, and I thought I would add my 2 cents:
maybe my experiences can help you.

First of all, just because "they" say your child has CF, DOES NOT MEAN your child will be sick.

I am 47. Yes, I have CF, and was diagnosed at 5. I am happily married (15 years), have a very full time career in the advertisng field, live on a tree farm, and house an animal rescue operation. I have been in the hospital 5 times in 47 years, and was tested 3 times, different years, because I showed no symptoms at all. I have had a terrific life, except for the doctors always telling me and my parents "not to do this," and "don't let her do that," all because "she's not going to live, and hurry up and do what ever. It was such an irritating, negative atmosphere, I finally stopped going.

And, it was, all nonsense. But, it must be said that even though I have a mild case of CF, I definitely have it, and it reared it's ugly head when I was 39. I realize now that if I had not had a brother who was born with an obstruction, prompting a series of events that would lead to the whole family being tested, I would never have been diagnosed until my late 30s. And for me, it would have been so much better.

The symptoms of my "getting a bit worse" were so unlike what was written, stated over and over, or on any symptoms list, etc. I had no idea it was CF. I could breathe just fine. Didn't take any medication. But I was exhausted all the time, and started drinking lattes instead of eating. I was going to see a regular doctor for Chronic Fatigue Syndrome. It must also be said that I only go to a Cf center every 2 years, and back then I was so angry with all the doctors, I hadn't been for 5 years. Of course, doctors are much better now than in the 60's 70's and 80s.

I tell you all this to say.....you (and the doctors) have NO IDEA what sort of child you will have, and what sort of mutation. The mutation doesn't count for much either, because it has no bearing on the severity of the disease. I've been told that I have the "classic Mutation of CF." which means nothing. I do not "match" the regular profile of a person with this mutation. But, knowing as I get older, that may change, I do specific things each day, like drink carrot/oj juice. It works!

So take heart, ask God for calmness, and relax. Remember, you can't see the future, and neither can the doctors. Focus on a healthy baby, nothing more. And whatever you do, don't let your own fear, or the doctors, limit your child's future.