Family history of CF

[emerenta18]

hi well there was one other family member who had cf,he was my mothers first cousin and he died when she was at child,at 17.it still wasnt taken into consideration when i had sinus infections and and chest infections as a child,i had my adenoids removed at 5 and had gromids in my ear,i got quite sick at 11 but wasnt diagnosed until i was 14,i think it was being pancreatic sufficient was partly the reason,sorry im rambling,wel thats the only member of the family with cf that i know of

 

[emerenta18]

hi well there was one other family member who had cf,he was my mothers first cousin and he died when she was at child,at 17.it still wasnt taken into consideration when i had sinus infections and and chest infections as a child,i had my adenoids removed at 5 and had gromids in my ear,i got quite sick at 11 but wasnt diagnosed until i was 14,i think it was being pancreatic sufficient was partly the reason,sorry im rambling,wel thats the only member of the family with cf that i know of

 

[emerenta18]

hi well there was one other family member who had cf,he was my mothers first cousin and he died when she was at child,at 17.it still wasnt taken into consideration when i had sinus infections and and chest infections as a child,i had my adenoids removed at 5 and had gromids in my ear,i got quite sick at 11 but wasnt diagnosed until i was 14,i think it was being pancreatic sufficient was partly the reason,sorry im rambling,wel thats the only member of the family with cf that i know of

 

[emerenta18]

hi well there was one other family member who had cf,he was my mothers first cousin and he died when she was at child,at 17.it still wasnt taken into consideration when i had sinus infections and and chest infections as a child,i had my adenoids removed at 5 and had gromids in my ear,i got quite sick at 11 but wasnt diagnosed until i was 14,i think it was being pancreatic sufficient was partly the reason,sorry im rambling,wel thats the only member of the family with cf that i know of

 

[emerenta18]

hi well there was one other family member who had cf,he was my mothers first cousin and he died when she was at child,at 17.it still wasnt taken into consideration when i had sinus infections and and chest infections as a child,i had my adenoids removed at 5 and had gromids in my ear,i got quite sick at 11 but wasnt diagnosed until i was 14,i think it was being pancreatic sufficient was partly the reason,sorry im rambling,wel thats the only member of the family with cf that i know of

 

[chrissyd]

I'm the only one known to have CF. As far as we know no one else had it, but it's all abit up in the air since way back when the didn't know what it was.
Also my mom and I both share a mitochondrial mutation, but I have a second one that NIH says is completely unique.

<img src="i/expressions/rose.gif" border="0">

Chrissy 30 w/CF

 

[chrissyd]

I'm the only one known to have CF. As far as we know no one else had it, but it's all abit up in the air since way back when the didn't know what it was.
Also my mom and I both share a mitochondrial mutation, but I have a second one that NIH says is completely unique.

<img src="i/expressions/rose.gif" border="0">

Chrissy 30 w/CF

 

[chrissyd]

I'm the only one known to have CF. As far as we know no one else had it, but it's all abit up in the air since way back when the didn't know what it was.
Also my mom and I both share a mitochondrial mutation, but I have a second one that NIH says is completely unique.

<img src="i/expressions/rose.gif" border="0">

Chrissy 30 w/CF

 

[chrissyd]

I'm the only one known to have CF. As far as we know no one else had it, but it's all abit up in the air since way back when the didn't know what it was.
Also my mom and I both share a mitochondrial mutation, but I have a second one that NIH says is completely unique.

<img src="i/expressions/rose.gif" border="0">

Chrissy 30 w/CF

 

[chrissyd]

I'm the only one known to have CF. As far as we know no one else had it, but it's all abit up in the air since way back when the didn't know what it was.
Also my mom and I both share a mitochondrial mutation, but I have a second one that NIH says is completely unique.

<img src="i/expressions/rose.gif" border="0">

Chrissy 30 w/CF

 

[letsrockcfem]

I am the only one with a CF diagnosis on both my mom's and dad's side. My grandpa (mom's dad) did have a little brother that died of pnuemonia when he was under 5 I think..same situation on my dad's side. Really big shock to my parents when I was diagnosed. Funny thing here: We were on vacation a few days after my sweat test ( was 18months old) and we met a family that had 2 or 3 kids with CF...my parents hadn't heard about my sweat test results yet but as soon as we got home from vacation the diagnosis was confirmed...so it was just a crazy encounter that was kinda eerie.

I strongly believe my mom's brother has CF too..he is like 5'3 and pretty petite..he always has a raspy voice and a little cough..and he never gains weight but he eats a TON. Last month when he was in town I examined his fingers and it looks like he has some clubbing. Next time I visit him in NYC I am taking him to get tested!!

Rock CF!

 

[letsrockcfem]

I am the only one with a CF diagnosis on both my mom's and dad's side. My grandpa (mom's dad) did have a little brother that died of pnuemonia when he was under 5 I think..same situation on my dad's side. Really big shock to my parents when I was diagnosed. Funny thing here: We were on vacation a few days after my sweat test ( was 18months old) and we met a family that had 2 or 3 kids with CF...my parents hadn't heard about my sweat test results yet but as soon as we got home from vacation the diagnosis was confirmed...so it was just a crazy encounter that was kinda eerie.

I strongly believe my mom's brother has CF too..he is like 5'3 and pretty petite..he always has a raspy voice and a little cough..and he never gains weight but he eats a TON. Last month when he was in town I examined his fingers and it looks like he has some clubbing. Next time I visit him in NYC I am taking him to get tested!!

Rock CF!

 

[letsrockcfem]

I am the only one with a CF diagnosis on both my mom's and dad's side. My grandpa (mom's dad) did have a little brother that died of pnuemonia when he was under 5 I think..same situation on my dad's side. Really big shock to my parents when I was diagnosed. Funny thing here: We were on vacation a few days after my sweat test ( was 18months old) and we met a family that had 2 or 3 kids with CF...my parents hadn't heard about my sweat test results yet but as soon as we got home from vacation the diagnosis was confirmed...so it was just a crazy encounter that was kinda eerie.

I strongly believe my mom's brother has CF too..he is like 5'3 and pretty petite..he always has a raspy voice and a little cough..and he never gains weight but he eats a TON. Last month when he was in town I examined his fingers and it looks like he has some clubbing. Next time I visit him in NYC I am taking him to get tested!!

Rock CF!

 

[letsrockcfem]

I am the only one with a CF diagnosis on both my mom's and dad's side. My grandpa (mom's dad) did have a little brother that died of pnuemonia when he was under 5 I think..same situation on my dad's side. Really big shock to my parents when I was diagnosed. Funny thing here: We were on vacation a few days after my sweat test ( was 18months old) and we met a family that had 2 or 3 kids with CF...my parents hadn't heard about my sweat test results yet but as soon as we got home from vacation the diagnosis was confirmed...so it was just a crazy encounter that was kinda eerie.

I strongly believe my mom's brother has CF too..he is like 5'3 and pretty petite..he always has a raspy voice and a little cough..and he never gains weight but he eats a TON. Last month when he was in town I examined his fingers and it looks like he has some clubbing. Next time I visit him in NYC I am taking him to get tested!!

Rock CF!

 

[letsrockcfem]

I am the only one with a CF diagnosis on both my mom's and dad's side. My grandpa (mom's dad) did have a little brother that died of pnuemonia when he was under 5 I think..same situation on my dad's side. Really big shock to my parents when I was diagnosed. Funny thing here: We were on vacation a few days after my sweat test ( was 18months old) and we met a family that had 2 or 3 kids with CF...my parents hadn't heard about my sweat test results yet but as soon as we got home from vacation the diagnosis was confirmed...so it was just a crazy encounter that was kinda eerie.

I strongly believe my mom's brother has CF too..he is like 5'3 and pretty petite..he always has a raspy voice and a little cough..and he never gains weight but he eats a TON. Last month when he was in town I examined his fingers and it looks like he has some clubbing. Next time I visit him in NYC I am taking him to get tested!!

Rock CF!

 

[bittyhorse23]

I am the only known one in my family as well. My brother is healthy and he has never been tested to see if he is a carrier, but my nephew is perfectly healthy as well!! My parents should have known it was coming...I weighed 6lbs 9oz when born and not a single baby on either side of the family was under 9.5lbs EVER! Including my brother 2 years later and my nephew 3 years ago.

My dad has 8 brothers and sisters and none of them have been tested for the gene though they all have children now and they are all healthy. There are 20+ cousins on my dad's side and I am not sure how many on my mom's. Her side is smaller. But there are ALOT of second and third cousins on my dad's side.

I actually have a friend who I had known for years before we found out we were related. I knew his cousins (twin girls) both had CF. They also both died within a year of each other at age 15 <img src="i/expressions/face-icon-small-sad.gif" border="0"> Anywho...His mom is a 3rd cousin to my dad's second cousin. So they could have been blood related but I am not too sure...It is hard to trace it since both of us have huge family trees.

I don't know of any family members dying from wierd things or young. I know my paternal grandmother's family had a colon cancer epidemic and half of her family died from that. Actually that is genetic too the dr told us and all but 2 of my dad's siblings had colon cancer (my dad too) and they all lived since we have to get screened every year starting at age 20 (ok well I have yet to go I am just too scared!).

Ok rambling is fun LOL!!! <img src="i/expressions/face-icon-small-wink.gif" border="0">

 

[bittyhorse23]

I am the only known one in my family as well. My brother is healthy and he has never been tested to see if he is a carrier, but my nephew is perfectly healthy as well!! My parents should have known it was coming...I weighed 6lbs 9oz when born and not a single baby on either side of the family was under 9.5lbs EVER! Including my brother 2 years later and my nephew 3 years ago.

My dad has 8 brothers and sisters and none of them have been tested for the gene though they all have children now and they are all healthy. There are 20+ cousins on my dad's side and I am not sure how many on my mom's. Her side is smaller. But there are ALOT of second and third cousins on my dad's side.

I actually have a friend who I had known for years before we found out we were related. I knew his cousins (twin girls) both had CF. They also both died within a year of each other at age 15 <img src="i/expressions/face-icon-small-sad.gif" border="0"> Anywho...His mom is a 3rd cousin to my dad's second cousin. So they could have been blood related but I am not too sure...It is hard to trace it since both of us have huge family trees.

I don't know of any family members dying from wierd things or young. I know my paternal grandmother's family had a colon cancer epidemic and half of her family died from that. Actually that is genetic too the dr told us and all but 2 of my dad's siblings had colon cancer (my dad too) and they all lived since we have to get screened every year starting at age 20 (ok well I have yet to go I am just too scared!).

Ok rambling is fun LOL!!! <img src="i/expressions/face-icon-small-wink.gif" border="0">

 

[bittyhorse23]

I am the only known one in my family as well. My brother is healthy and he has never been tested to see if he is a carrier, but my nephew is perfectly healthy as well!! My parents should have known it was coming...I weighed 6lbs 9oz when born and not a single baby on either side of the family was under 9.5lbs EVER! Including my brother 2 years later and my nephew 3 years ago.

My dad has 8 brothers and sisters and none of them have been tested for the gene though they all have children now and they are all healthy. There are 20+ cousins on my dad's side and I am not sure how many on my mom's. Her side is smaller. But there are ALOT of second and third cousins on my dad's side.

I actually have a friend who I had known for years before we found out we were related. I knew his cousins (twin girls) both had CF. They also both died within a year of each other at age 15 <img src="i/expressions/face-icon-small-sad.gif" border="0"> Anywho...His mom is a 3rd cousin to my dad's second cousin. So they could have been blood related but I am not too sure...It is hard to trace it since both of us have huge family trees.

I don't know of any family members dying from wierd things or young. I know my paternal grandmother's family had a colon cancer epidemic and half of her family died from that. Actually that is genetic too the dr told us and all but 2 of my dad's siblings had colon cancer (my dad too) and they all lived since we have to get screened every year starting at age 20 (ok well I have yet to go I am just too scared!).

Ok rambling is fun LOL!!! <img src="i/expressions/face-icon-small-wink.gif" border="0">

 

[bittyhorse23]

I am the only known one in my family as well. My brother is healthy and he has never been tested to see if he is a carrier, but my nephew is perfectly healthy as well!! My parents should have known it was coming...I weighed 6lbs 9oz when born and not a single baby on either side of the family was under 9.5lbs EVER! Including my brother 2 years later and my nephew 3 years ago.

My dad has 8 brothers and sisters and none of them have been tested for the gene though they all have children now and they are all healthy. There are 20+ cousins on my dad's side and I am not sure how many on my mom's. Her side is smaller. But there are ALOT of second and third cousins on my dad's side.

I actually have a friend who I had known for years before we found out we were related. I knew his cousins (twin girls) both had CF. They also both died within a year of each other at age 15 <img src="i/expressions/face-icon-small-sad.gif" border="0"> Anywho...His mom is a 3rd cousin to my dad's second cousin. So they could have been blood related but I am not too sure...It is hard to trace it since both of us have huge family trees.

I don't know of any family members dying from wierd things or young. I know my paternal grandmother's family had a colon cancer epidemic and half of her family died from that. Actually that is genetic too the dr told us and all but 2 of my dad's siblings had colon cancer (my dad too) and they all lived since we have to get screened every year starting at age 20 (ok well I have yet to go I am just too scared!).

Ok rambling is fun LOL!!! <img src="i/expressions/face-icon-small-wink.gif" border="0">

 

[bittyhorse23]

I am the only known one in my family as well. My brother is healthy and he has never been tested to see if he is a carrier, but my nephew is perfectly healthy as well!! My parents should have known it was coming...I weighed 6lbs 9oz when born and not a single baby on either side of the family was under 9.5lbs EVER! Including my brother 2 years later and my nephew 3 years ago.

My dad has 8 brothers and sisters and none of them have been tested for the gene though they all have children now and they are all healthy. There are 20+ cousins on my dad's side and I am not sure how many on my mom's. Her side is smaller. But there are ALOT of second and third cousins on my dad's side.

I actually have a friend who I had known for years before we found out we were related. I knew his cousins (twin girls) both had CF. They also both died within a year of each other at age 15 <img src="i/expressions/face-icon-small-sad.gif" border="0"> Anywho...His mom is a 3rd cousin to my dad's second cousin. So they could have been blood related but I am not too sure...It is hard to trace it since both of us have huge family trees.

I don't know of any family members dying from wierd things or young. I know my paternal grandmother's family had a colon cancer epidemic and half of her family died from that. Actually that is genetic too the dr told us and all but 2 of my dad's siblings had colon cancer (my dad too) and they all lived since we have to get screened every year starting at age 20 (ok well I have yet to go I am just too scared!).

Ok rambling is fun LOL!!! <img src="i/expressions/face-icon-small-wink.gif" border="0">