If you were my age, with CF, what would you do differently for your health?

lilywing

New member
In my youth, I lived like there was no tomorrow, looking after myself lost out to partying. And now "tomorrow" is here. I never planned to be around at 31. So that would be my advice to you: plan to be around
 

lilywing

New member
In my youth, I lived like there was no tomorrow, looking after myself lost out to partying. And now "tomorrow" is here. I never planned to be around at 31. So that would be my advice to you: plan to be around
 

lilywing

New member
In my youth, I lived like there was no tomorrow, looking after myself lost out to partying. And now "tomorrow" is here. I never planned to be around at 31. So that would be my advice to you: plan to be around
 

lilywing

New member
In my youth, I lived like there was no tomorrow, looking after myself lost out to partying. And now "tomorrow" is here. I never planned to be around at 31. So that would be my advice to you: plan to be around
 

lilywing

New member
In my youth, I lived like there was no tomorrow, looking after myself lost out to partying. And now "tomorrow" is here. I never planned to be around at 31. So that would be my advice to you: plan to be around
 
B

benthyrdeeders

Guest
I would have sought out a career that helped me more intstead of dragged me down. Working for an employer that offers long term disablity is key and I wasn't informed of this when I entered the working world. Heath benefits are so important and I was totally ignorant in my 20's.

I would have been more involved with research and educated myself more about CF.


45w/cf dx 6month ddf508 mother of two boys w/o cf
 
B

benthyrdeeders

Guest
I would have sought out a career that helped me more intstead of dragged me down. Working for an employer that offers long term disablity is key and I wasn't informed of this when I entered the working world. Heath benefits are so important and I was totally ignorant in my 20's.

I would have been more involved with research and educated myself more about CF.


45w/cf dx 6month ddf508 mother of two boys w/o cf
 
B

benthyrdeeders

Guest
I would have sought out a career that helped me more intstead of dragged me down. Working for an employer that offers long term disablity is key and I wasn't informed of this when I entered the working world. Heath benefits are so important and I was totally ignorant in my 20's.

I would have been more involved with research and educated myself more about CF.


45w/cf dx 6month ddf508 mother of two boys w/o cf
 
B

benthyrdeeders

Guest
I would have sought out a career that helped me more intstead of dragged me down. Working for an employer that offers long term disablity is key and I wasn't informed of this when I entered the working world. Heath benefits are so important and I was totally ignorant in my 20's.

I would have been more involved with research and educated myself more about CF.


45w/cf dx 6month ddf508 mother of two boys w/o cf
 
B

benthyrdeeders

Guest
I would have sought out a career that helped me more intstead of dragged me down. Working for an employer that offers long term disablity is key and I wasn't informed of this when I entered the working world. Heath benefits are so important and I was totally ignorant in my 20's.
<br />
<br />I would have been more involved with research and educated myself more about CF.
<br />
<br />
<br />45w/cf dx 6month ddf508 mother of two boys w/o cf
 
6

65rosessamurai

Guest
Hi Blake,

Its been a while since I've seen you on here, but its been a while since I've been here, myself.

I'm going on 45 next May and my PFT's are still in the high 90's.

The most I could see that helped me and I wouldn't wanna change is my decision at the age of 18 to get involved in the Martial Arts because I found it an interest of mine that I felt would last me a long time to continue in excercise as well as a "way of life" for myself.

I'm still involved in the Martial Arts, though work and other things tend to get in the way, sometimes.

I also think my career has a bit to do with it in the fact that I did what I could to not be exposed to elements which would inhibit my health. I'm not sure what your career goals are, but I hope they are also in consideration of your working environment.

Coming to live in Japan is sort of a toss-up for me for something I'd do differently. In regards to CF care, there is absolutely none, but on the contrary, the diet and lifestyle in Japan seems to match my needs very well.

I hope this is helpful for how you will decide to manage your health for the long-run.

best to you,
Fred
 
6

65rosessamurai

Guest
Hi Blake,

Its been a while since I've seen you on here, but its been a while since I've been here, myself.

I'm going on 45 next May and my PFT's are still in the high 90's.

The most I could see that helped me and I wouldn't wanna change is my decision at the age of 18 to get involved in the Martial Arts because I found it an interest of mine that I felt would last me a long time to continue in excercise as well as a "way of life" for myself.

I'm still involved in the Martial Arts, though work and other things tend to get in the way, sometimes.

I also think my career has a bit to do with it in the fact that I did what I could to not be exposed to elements which would inhibit my health. I'm not sure what your career goals are, but I hope they are also in consideration of your working environment.

Coming to live in Japan is sort of a toss-up for me for something I'd do differently. In regards to CF care, there is absolutely none, but on the contrary, the diet and lifestyle in Japan seems to match my needs very well.

I hope this is helpful for how you will decide to manage your health for the long-run.

best to you,
Fred
 
6

65rosessamurai

Guest
Hi Blake,

Its been a while since I've seen you on here, but its been a while since I've been here, myself.

I'm going on 45 next May and my PFT's are still in the high 90's.

The most I could see that helped me and I wouldn't wanna change is my decision at the age of 18 to get involved in the Martial Arts because I found it an interest of mine that I felt would last me a long time to continue in excercise as well as a "way of life" for myself.

I'm still involved in the Martial Arts, though work and other things tend to get in the way, sometimes.

I also think my career has a bit to do with it in the fact that I did what I could to not be exposed to elements which would inhibit my health. I'm not sure what your career goals are, but I hope they are also in consideration of your working environment.

Coming to live in Japan is sort of a toss-up for me for something I'd do differently. In regards to CF care, there is absolutely none, but on the contrary, the diet and lifestyle in Japan seems to match my needs very well.

I hope this is helpful for how you will decide to manage your health for the long-run.

best to you,
Fred
 
6

65rosessamurai

Guest
Hi Blake,

Its been a while since I've seen you on here, but its been a while since I've been here, myself.

I'm going on 45 next May and my PFT's are still in the high 90's.

The most I could see that helped me and I wouldn't wanna change is my decision at the age of 18 to get involved in the Martial Arts because I found it an interest of mine that I felt would last me a long time to continue in excercise as well as a "way of life" for myself.

I'm still involved in the Martial Arts, though work and other things tend to get in the way, sometimes.

I also think my career has a bit to do with it in the fact that I did what I could to not be exposed to elements which would inhibit my health. I'm not sure what your career goals are, but I hope they are also in consideration of your working environment.

Coming to live in Japan is sort of a toss-up for me for something I'd do differently. In regards to CF care, there is absolutely none, but on the contrary, the diet and lifestyle in Japan seems to match my needs very well.

I hope this is helpful for how you will decide to manage your health for the long-run.

best to you,
Fred
 
6

65rosessamurai

Guest
Hi Blake,
<br />
<br />Its been a while since I've seen you on here, but its been a while since I've been here, myself.
<br />
<br />I'm going on 45 next May and my PFT's are still in the high 90's.
<br />
<br />The most I could see that helped me and I wouldn't wanna change is my decision at the age of 18 to get involved in the Martial Arts because I found it an interest of mine that I felt would last me a long time to continue in excercise as well as a "way of life" for myself.
<br />
<br />I'm still involved in the Martial Arts, though work and other things tend to get in the way, sometimes.
<br />
<br />I also think my career has a bit to do with it in the fact that I did what I could to not be exposed to elements which would inhibit my health. I'm not sure what your career goals are, but I hope they are also in consideration of your working environment.
<br />
<br />Coming to live in Japan is sort of a toss-up for me for something I'd do differently. In regards to CF care, there is absolutely none, but on the contrary, the diet and lifestyle in Japan seems to match my needs very well.
<br />
<br />I hope this is helpful for how you will decide to manage your health for the long-run.
<br />
<br />best to you,
<br />Fred
 

beleache

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dbtoo</b></i>

<a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/blogpost.cfm?threadid=32641&catid=1953">Live for today, plan for a tomorrow! </a>



If I had it to do over, I'd be more crazy than I was....!!! Or am!</end quote></div>

lol David ... I couldn't have possibly have been more wild & crazy than i was.. Especially since i didn't know i had cf till i was 44 !

I wish however i did know way sooner. I would have done a lot of things differently ..

Take good care of yourself.. <img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dbtoo</b></i>

<a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/blogpost.cfm?threadid=32641&catid=1953">Live for today, plan for a tomorrow! </a>



If I had it to do over, I'd be more crazy than I was....!!! Or am!</end quote></div>

lol David ... I couldn't have possibly have been more wild & crazy than i was.. Especially since i didn't know i had cf till i was 44 !

I wish however i did know way sooner. I would have done a lot of things differently ..

Take good care of yourself.. <img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dbtoo</b></i>

<a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/blogpost.cfm?threadid=32641&catid=1953">Live for today, plan for a tomorrow! </a>



If I had it to do over, I'd be more crazy than I was....!!! Or am!</end quote></div>

lol David ... I couldn't have possibly have been more wild & crazy than i was.. Especially since i didn't know i had cf till i was 44 !

I wish however i did know way sooner. I would have done a lot of things differently ..

Take good care of yourself.. <img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dbtoo</b></i>

<a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/blogpost.cfm?threadid=32641&catid=1953">Live for today, plan for a tomorrow! </a>



If I had it to do over, I'd be more crazy than I was....!!! Or am!</end quote>

lol David ... I couldn't have possibly have been more wild & crazy than i was.. Especially since i didn't know i had cf till i was 44 !

I wish however i did know way sooner. I would have done a lot of things differently ..

Take good care of yourself.. <img src="i/expressions/heart.gif" border="0"> joni
 

beleache

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dbtoo</b></i>
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://blogs.cysticfibrosis.com/blogpost.cfm?threadid=32641&catid=1953">Live for today, plan for a tomorrow! </a>
<br />
<br />
<br />
<br />If I had it to do over, I'd be more crazy than I was....!!! Or am!</end quote>
<br />
<br />lol David ... I couldn't have possibly have been more wild & crazy than i was.. Especially since i didn't know i had cf till i was 44 !
<br />
<br /> I wish however i did know way sooner. I would have done a lot of things differently ..
<br />
<br /> Take good care of yourself.. <img src="i/expressions/heart.gif" border="0"> joni
 
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