noncompliant

welshwitch · Mar 14, 2008

i was non compliant until last year. i was terrified of what my friends would think since i'm not too open about CF. i'm still a little weird about it, but i am letting myself do meds in front of my boyfriend and i remind myself to exercise.

i'm not sure if doing meds makes me feel better or not, since i'm pretty healthy. i do know that exercise and getting enough sleep (pretty much a basic) makes a huge difference. i think of myself as a healthy person who just has a smaller margin of error re: taking care of myself.

i think having this site really got my butt in gear and established a sense of normalcy to medications. before i thought of them as some type of alien lifeform since no one else had to do them and i convinced myself that they were optional since no one was making me do them.

it's true--just like anything else (a diet, losing 5 pounds, taking up a new extracurricular) you gotta do it for yourself and no one else. also ease yourself into it! don't worry about having to do everything...baby steps!

welshwitch · Mar 14, 2008

i was non compliant until last year. i was terrified of what my friends would think since i'm not too open about CF. i'm still a little weird about it, but i am letting myself do meds in front of my boyfriend and i remind myself to exercise.

i'm not sure if doing meds makes me feel better or not, since i'm pretty healthy. i do know that exercise and getting enough sleep (pretty much a basic) makes a huge difference. i think of myself as a healthy person who just has a smaller margin of error re: taking care of myself.

i think having this site really got my butt in gear and established a sense of normalcy to medications. before i thought of them as some type of alien lifeform since no one else had to do them and i convinced myself that they were optional since no one was making me do them.

it's true--just like anything else (a diet, losing 5 pounds, taking up a new extracurricular) you gotta do it for yourself and no one else. also ease yourself into it! don't worry about having to do everything...baby steps!

welshwitch · Mar 14, 2008

i was non compliant until last year. i was terrified of what my friends would think since i'm not too open about CF. i'm still a little weird about it, but i am letting myself do meds in front of my boyfriend and i remind myself to exercise.

i'm not sure if doing meds makes me feel better or not, since i'm pretty healthy. i do know that exercise and getting enough sleep (pretty much a basic) makes a huge difference. i think of myself as a healthy person who just has a smaller margin of error re: taking care of myself.

i think having this site really got my butt in gear and established a sense of normalcy to medications. before i thought of them as some type of alien lifeform since no one else had to do them and i convinced myself that they were optional since no one was making me do them.

it's true--just like anything else (a diet, losing 5 pounds, taking up a new extracurricular) you gotta do it for yourself and no one else. also ease yourself into it! don't worry about having to do everything...baby steps!

welshwitch · Mar 14, 2008

i was non compliant until last year. i was terrified of what my friends would think since i'm not too open about CF. i'm still a little weird about it, but i am letting myself do meds in front of my boyfriend and i remind myself to exercise.

i'm not sure if doing meds makes me feel better or not, since i'm pretty healthy. i do know that exercise and getting enough sleep (pretty much a basic) makes a huge difference. i think of myself as a healthy person who just has a smaller margin of error re: taking care of myself.

i think having this site really got my butt in gear and established a sense of normalcy to medications. before i thought of them as some type of alien lifeform since no one else had to do them and i convinced myself that they were optional since no one was making me do them.

it's true--just like anything else (a diet, losing 5 pounds, taking up a new extracurricular) you gotta do it for yourself and no one else. also ease yourself into it! don't worry about having to do everything...baby steps!

welshwitch · Mar 14, 2008

i was non compliant until last year. i was terrified of what my friends would think since i'm not too open about CF. i'm still a little weird about it, but i am letting myself do meds in front of my boyfriend and i remind myself to exercise.
 
 i'm not sure if doing meds makes me feel better or not, since i'm pretty healthy. i do know that exercise and getting enough sleep (pretty much a basic) makes a huge difference. i think of myself as a healthy person who just has a smaller margin of error re: taking care of myself.
 
 i think having this site really got my butt in gear and established a sense of normalcy to medications. before i thought of them as some type of alien lifeform since no one else had to do them and i convinced myself that they were optional since no one was making me do them.
 
 it's true--just like anything else (a diet, losing 5 pounds, taking up a new extracurricular) you gotta do it for yourself and no one else. also ease yourself into it! don't worry about having to do everything...baby steps!

thefrogprincess · Mar 14, 2008

I was pretty noncompliant up until the end of last year. I would have spirts where I would do really good for a few months, then something would happen (working a lot would be the most common) and I would fall back.

What scared me straight was my first episode of hemoptisis. It wasn't a bad bleed, but it was enough. I did my first round of IVs after that. I also got my first vest. I am not going to say that I have been perfect, sometimes I was up late and don't do my morning treatments. But I have gotten MUCH better about it and I feel so much better.

It should not be an overwhelming thing for you. Think of how much better you feel, and think of the kids you want to have. What kind of parent would you be if you were too sick to take care of them because you don't take care of yourself? My noncompliance has forced me to make the choice not to have children because I have lost too much lung function. I just could not handle it physically anymore. Don't let that happen to you!

thefrogprincess · Mar 14, 2008

I was pretty noncompliant up until the end of last year. I would have spirts where I would do really good for a few months, then something would happen (working a lot would be the most common) and I would fall back.

What scared me straight was my first episode of hemoptisis. It wasn't a bad bleed, but it was enough. I did my first round of IVs after that. I also got my first vest. I am not going to say that I have been perfect, sometimes I was up late and don't do my morning treatments. But I have gotten MUCH better about it and I feel so much better.

It should not be an overwhelming thing for you. Think of how much better you feel, and think of the kids you want to have. What kind of parent would you be if you were too sick to take care of them because you don't take care of yourself? My noncompliance has forced me to make the choice not to have children because I have lost too much lung function. I just could not handle it physically anymore. Don't let that happen to you!

thefrogprincess · Mar 14, 2008

I was pretty noncompliant up until the end of last year. I would have spirts where I would do really good for a few months, then something would happen (working a lot would be the most common) and I would fall back.

What scared me straight was my first episode of hemoptisis. It wasn't a bad bleed, but it was enough. I did my first round of IVs after that. I also got my first vest. I am not going to say that I have been perfect, sometimes I was up late and don't do my morning treatments. But I have gotten MUCH better about it and I feel so much better.

It should not be an overwhelming thing for you. Think of how much better you feel, and think of the kids you want to have. What kind of parent would you be if you were too sick to take care of them because you don't take care of yourself? My noncompliance has forced me to make the choice not to have children because I have lost too much lung function. I just could not handle it physically anymore. Don't let that happen to you!

thefrogprincess · Mar 14, 2008

I was pretty noncompliant up until the end of last year. I would have spirts where I would do really good for a few months, then something would happen (working a lot would be the most common) and I would fall back.

What scared me straight was my first episode of hemoptisis. It wasn't a bad bleed, but it was enough. I did my first round of IVs after that. I also got my first vest. I am not going to say that I have been perfect, sometimes I was up late and don't do my morning treatments. But I have gotten MUCH better about it and I feel so much better.

It should not be an overwhelming thing for you. Think of how much better you feel, and think of the kids you want to have. What kind of parent would you be if you were too sick to take care of them because you don't take care of yourself? My noncompliance has forced me to make the choice not to have children because I have lost too much lung function. I just could not handle it physically anymore. Don't let that happen to you!

thefrogprincess · Mar 14, 2008

I was pretty noncompliant up until the end of last year. I would have spirts where I would do really good for a few months, then something would happen (working a lot would be the most common) and I would fall back.
 
 What scared me straight was my first episode of hemoptisis. It wasn't a bad bleed, but it was enough. I did my first round of IVs after that. I also got my first vest. I am not going to say that I have been perfect, sometimes I was up late and don't do my morning treatments. But I have gotten MUCH better about it and I feel so much better.
 
 It should not be an overwhelming thing for you. Think of how much better you feel, and think of the kids you want to have. What kind of parent would you be if you were too sick to take care of them because you don't take care of yourself? My noncompliance has forced me to make the choice not to have children because I have lost too much lung function. I just could not handle it physically anymore. Don't let that happen to you!

mom2lillian · Mar 15, 2008

Kate,

I joined in Jan/Feb of last year, a few weeks after having my daughter and was pretty non-compliant and managed to get away with it farely well still having around 90% function. Since having my daughter I have become compliant by doing just what NoExcuses said, I hung out, gleamed tips, got the )&%(# scared out of me, did a reality check. I looked at it like hey if I am going to be married and have a family this is NOT about just me and I need to do everything I can for them, to stay around for them even if I didnt want to do it for myself, now dont get me wrong I do it for myself too NOW but initially that was not my motivating factor because I thought I already felt pretty good/did pretty good. I actually hadnt read other posters about not doing it for yourself until just now and while I woudl say dont do it for someone else do it for you in the long run it is a great motivator when there are tiems I really dont 'feel' like doing it etc and as I mentioned above it IS what got ME on the right track, every person is different.

So anyway do what was mentioned and hang out, improve bit by bit. One thing in beginning that helped me was doing an evaluation of where I was at, what I should be doing, I made a chart of each thing, vitamins, inhaler, med, physio etc and each day week and kept it hung up and checked of each thing each day this way both my huband and I SAW what I was missing and I then tried ot get each thing done every day. Then I formulated an FYI plan (see my blog under 'my stuff') then at the end of the year I did a CF PDP (see my blog, same section). I am very analytical person and I believe you will see my results are veyr amazing in both my PFT increases as well as my number of exacerbations.

take care and good luck!

mom2lillian · Mar 15, 2008

Kate,

I joined in Jan/Feb of last year, a few weeks after having my daughter and was pretty non-compliant and managed to get away with it farely well still having around 90% function. Since having my daughter I have become compliant by doing just what NoExcuses said, I hung out, gleamed tips, got the )&%(# scared out of me, did a reality check. I looked at it like hey if I am going to be married and have a family this is NOT about just me and I need to do everything I can for them, to stay around for them even if I didnt want to do it for myself, now dont get me wrong I do it for myself too NOW but initially that was not my motivating factor because I thought I already felt pretty good/did pretty good. I actually hadnt read other posters about not doing it for yourself until just now and while I woudl say dont do it for someone else do it for you in the long run it is a great motivator when there are tiems I really dont 'feel' like doing it etc and as I mentioned above it IS what got ME on the right track, every person is different.

So anyway do what was mentioned and hang out, improve bit by bit. One thing in beginning that helped me was doing an evaluation of where I was at, what I should be doing, I made a chart of each thing, vitamins, inhaler, med, physio etc and each day week and kept it hung up and checked of each thing each day this way both my huband and I SAW what I was missing and I then tried ot get each thing done every day. Then I formulated an FYI plan (see my blog under 'my stuff') then at the end of the year I did a CF PDP (see my blog, same section). I am very analytical person and I believe you will see my results are veyr amazing in both my PFT increases as well as my number of exacerbations.

take care and good luck!

mom2lillian · Mar 15, 2008

Kate,

I joined in Jan/Feb of last year, a few weeks after having my daughter and was pretty non-compliant and managed to get away with it farely well still having around 90% function. Since having my daughter I have become compliant by doing just what NoExcuses said, I hung out, gleamed tips, got the )&%(# scared out of me, did a reality check. I looked at it like hey if I am going to be married and have a family this is NOT about just me and I need to do everything I can for them, to stay around for them even if I didnt want to do it for myself, now dont get me wrong I do it for myself too NOW but initially that was not my motivating factor because I thought I already felt pretty good/did pretty good. I actually hadnt read other posters about not doing it for yourself until just now and while I woudl say dont do it for someone else do it for you in the long run it is a great motivator when there are tiems I really dont 'feel' like doing it etc and as I mentioned above it IS what got ME on the right track, every person is different.

So anyway do what was mentioned and hang out, improve bit by bit. One thing in beginning that helped me was doing an evaluation of where I was at, what I should be doing, I made a chart of each thing, vitamins, inhaler, med, physio etc and each day week and kept it hung up and checked of each thing each day this way both my huband and I SAW what I was missing and I then tried ot get each thing done every day. Then I formulated an FYI plan (see my blog under 'my stuff') then at the end of the year I did a CF PDP (see my blog, same section). I am very analytical person and I believe you will see my results are veyr amazing in both my PFT increases as well as my number of exacerbations.

take care and good luck!

mom2lillian · Mar 15, 2008

Kate,

I joined in Jan/Feb of last year, a few weeks after having my daughter and was pretty non-compliant and managed to get away with it farely well still having around 90% function. Since having my daughter I have become compliant by doing just what NoExcuses said, I hung out, gleamed tips, got the )&%(# scared out of me, did a reality check. I looked at it like hey if I am going to be married and have a family this is NOT about just me and I need to do everything I can for them, to stay around for them even if I didnt want to do it for myself, now dont get me wrong I do it for myself too NOW but initially that was not my motivating factor because I thought I already felt pretty good/did pretty good. I actually hadnt read other posters about not doing it for yourself until just now and while I woudl say dont do it for someone else do it for you in the long run it is a great motivator when there are tiems I really dont 'feel' like doing it etc and as I mentioned above it IS what got ME on the right track, every person is different.

So anyway do what was mentioned and hang out, improve bit by bit. One thing in beginning that helped me was doing an evaluation of where I was at, what I should be doing, I made a chart of each thing, vitamins, inhaler, med, physio etc and each day week and kept it hung up and checked of each thing each day this way both my huband and I SAW what I was missing and I then tried ot get each thing done every day. Then I formulated an FYI plan (see my blog under 'my stuff') then at the end of the year I did a CF PDP (see my blog, same section). I am very analytical person and I believe you will see my results are veyr amazing in both my PFT increases as well as my number of exacerbations.

take care and good luck!

mom2lillian · Mar 15, 2008

Kate,
 
 I joined in Jan/Feb of last year, a few weeks after having my daughter and was pretty non-compliant and managed to get away with it farely well still having around 90% function. Since having my daughter I have become compliant by doing just what NoExcuses said, I hung out, gleamed tips, got the )&%(# scared out of me, did a reality check. I looked at it like hey if I am going to be married and have a family this is NOT about just me and I need to do everything I can for them, to stay around for them even if I didnt want to do it for myself, now dont get me wrong I do it for myself too NOW but initially that was not my motivating factor because I thought I already felt pretty good/did pretty good. I actually hadnt read other posters about not doing it for yourself until just now and while I woudl say dont do it for someone else do it for you in the long run it is a great motivator when there are tiems I really dont 'feel' like doing it etc and as I mentioned above it IS what got ME on the right track, every person is different.
 
 So anyway do what was mentioned and hang out, improve bit by bit. One thing in beginning that helped me was doing an evaluation of where I was at, what I should be doing, I made a chart of each thing, vitamins, inhaler, med, physio etc and each day week and kept it hung up and checked of each thing each day this way both my huband and I SAW what I was missing and I then tried ot get each thing done every day. Then I formulated an FYI plan (see my blog under 'my stuff') then at the end of the year I did a CF PDP (see my blog, same section). I am very analytical person and I believe you will see my results are veyr amazing in both my PFT increases as well as my number of exacerbations.
 
 take care and good luck!

Daveyboy209 · Mar 15, 2008

Kate,
Man can I relate to your compliance issues. I was diagnosed later in life (34) and for the 12 years since then have lived in denial of my disease. I recently wrote an article in CF Roundtable about my story. Maybe you will find it helpful, maybe not. It was a first for me to open up about my life with CF. Take care...no really!
Dave 46 w/CF

Daveyboy209 · Mar 15, 2008

Kate,
Man can I relate to your compliance issues. I was diagnosed later in life (34) and for the 12 years since then have lived in denial of my disease. I recently wrote an article in CF Roundtable about my story. Maybe you will find it helpful, maybe not. It was a first for me to open up about my life with CF. Take care...no really!
Dave 46 w/CF

Daveyboy209 · Mar 15, 2008

Kate,
Man can I relate to your compliance issues. I was diagnosed later in life (34) and for the 12 years since then have lived in denial of my disease. I recently wrote an article in CF Roundtable about my story. Maybe you will find it helpful, maybe not. It was a first for me to open up about my life with CF. Take care...no really!
Dave 46 w/CF

Daveyboy209 · Mar 15, 2008

Kate,
Man can I relate to your compliance issues. I was diagnosed later in life (34) and for the 12 years since then have lived in denial of my disease. I recently wrote an article in CF Roundtable about my story. Maybe you will find it helpful, maybe not. It was a first for me to open up about my life with CF. Take care...no really!
Dave 46 w/CF

Daveyboy209 · Mar 15, 2008

Kate,
 Man can I relate to your compliance issues. I was diagnosed later in life (34) and for the 12 years since then have lived in denial of my disease. I recently wrote an article in CF Roundtable about my story. Maybe you will find it helpful, maybe not. It was a first for me to open up about my life with CF. Take care...no really!
 Dave 46 w/CF

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